My Spark is Music, Not SMA...After living life the only way I knew, at the time, I divorced and moved on with my life.... By Allie Williams4 min readBookmark for laterReactions0reactionsComments1 comments
Things That Make Me Angry About SMA...I wanted to share some things about my life with SMA that really upset me because I don’t want someone else to feel... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
The Dreaded "What-If's"...Living with a physical disability such as SMA requires extra energy as is. I’ve tried to live looking at the positives in... By Mike Noon2 min readBookmark for laterReactions0reactionsComments0 comments
Dealing with SMA in the Age of Social Media...I feel this way for your children that you post pictures of. They are too young to properly give you their feelings.... By Mike Noon2 min readBookmark for laterReactions0reactionsComments4 comments
Keeping Positive During Life’s Transitions...Lists are my way to keep myself on task. Find something that works for you. The goal is to create a By Mike Noon2 min readBookmark for laterReactions0reactionsComments0 comments
Feeling Left Behind at Times...I always assumed we were on different levels in terms of how we saw our disability and what we wanted By Chaz Hayden2 min readBookmark for laterReactions0reactionsComments1 comments
How Alexa Became One of My Disability Must-Haves...of you!... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments2 comments
Disability Does Not Make You Immune to Hardship...life would look like.... By Samantha Przybylski2 min readBookmark for laterReactions0reactionsComments1 comments
Why Is Self-Care Important and How Can We Practice It?...The small, achievable suggestions that follow are meant to help you feel ready and capable to take on whatever life throws at you.... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
The Bully In My Mind...Meaning I am not the only one feeling this way. It's all a part of life. I am me and... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments4 comments
Hug Me Not My Wheelchair Please...I’ve been driving a power wheelchair since the age of two. My wheelchair has been a part of my life and a... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
Why Are You in a Wheelchair?...This is the question that every person with SMA will be asked more times than anything else in their life.... By Chaz Hayden2 min readBookmark for laterReactions0reactionsComments0 comments
Finding the Right Caregivers...One former caregiver of mine was deathly afraid of going out in public. I was in my mid-20s and wanted By Lewis Beatty2 min readBookmark for laterReactions0reactionsComments0 comments
Asking for Medical Accommodations at Your Job...Of course, the benefit will be obvious to you but I can tell you it’s 100% not obvious to someone who doesn’t... By Chaz Hayden2 min readBookmark for laterReactions0reactionsComments0 comments
Transitioning To Adulthood with SMA...But as a child, I viewed the way we lived life as normal.... By Megan DeJarnett2 min readBookmark for laterReactions0reactionsComments0 comments
About You: An Author and a Character with SMA...Because of that, stereotypes inherently occur because it’s not that person’s life.... By Chaz Hayden7 min readBookmark for laterReactions0reactionsComments3 comments
SMA Awareness Month 2022...Living with SMA does not mean that one is incapable of leading a normal life.... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Coping as a Young Adult With SMA...How optimistic are you for an independent adult life going forward?... By SpinalMuscularAtrophy.net Team5 min readBookmark for laterReactions0reactionsComments6 comments
Courage...I need to stop being afraid because I've been there for most of my life and that's not who I'm going to... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments0 comments
Worst Case Scenario: a Cold...Normally, I call them using Alexa, a piece of technology that I truly cannot live without. It's such a life-saver!... By Kellie Cusack4 min readBookmark for laterReactions0reactionsComments1 comments