The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program!... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments0 comments
Navigating My Treatment Journey as an Adult with SMA – 5 Steps...It will save you a lot of time in the future. This piece of the puzzle took some time.... By Samantha Przybylski4 min readBookmark for laterReactions0reactionsComments1 comments
Megan DeJarnett...She loves encouraging others that there's no "normal" way to do life and everything is possible.... By Editorial Team 1 min readBookmark for later
Preparing For Takeoff...The second piece of advice was to create a sheet of instructions for your power chair. If possible, try and laminate it so... By Mike Noon2 min readBookmark for laterReactions0reactionsComments0 comments
Type 3 Kugelberg-Welander...However, most people with type 3 SMA do not experience life-threatening complications and have a normal life expectancy.... By Editorial Team 2 min readBookmark for later
Thanksgiving & Difficulty Swallowing...For the past two years, I have tried to lessen the feeling of being left out by actively participating in the conversation... By Lewis Beatty3 min readBookmark for laterReactions0reactionsComments1 comments
Parenting From a Wheelchair...of a player.... By Megan DeJarnett2 min readBookmark for laterReactions0reactionsComments1 comments
Removing Wisdom Teeth While Dealing with Respiratory Issues...Another thing we had to think about was medication. I’m not a huge fan of my g-tube but that was a By Chaz Hayden2 min readBookmark for laterReactions0reactionsComments1 comments
Things We Learned as Parents...At this point, Mike was driving and always took Dan to practice and went to all of his meets.... By Maryalice Noon2 min readBookmark for laterReactions0reactionsComments1 comments
“I Have Chosen To Live With It Rather Than Just Survive”...I believe that we should all strive to live life to the fullest, regardless of our circumstances.... By Rafael I Garcia1 min readBookmark for laterReactions0reactionsComments3 comments
Jennifer Greer...Diagnosed at just 18 months old, she’s been navigating life from her power wheelchair since the age of 2.... By Editorial Team 1 min readBookmark for later
My Sibling Has SMA...Having a sibling with SMA also impacts other parts of your life.... By Editorial Team 3 min readBookmark for later
How Common is Spinal Muscular Atrophy?...However, people with type 1 SMA have the shortest life expectancy.... By Editorial Team 2 min readBookmark for later
General Mental Health Resources...Stigma can make day-to-day life even harder. These hardships mean people with mental health conditions may need several resources for support.... By Editorial Team 5 min readBookmark for later
Type 2 Dubowitz...As type 2 SMA progresses, life-threatening complications can occur.... By Editorial Team 3 min readBookmark for later
Other Neuromuscular Disorders...Symptoms usually do not worsen over time, and life expectancy varies greatly.... By Editorial Team 4 min readBookmark for later
What Does It Mean to Be a Silent Carrier for SMA?...Autosomal recessive means that you can only be affected if both of your parents are carriers.Modern tests usually make it easy to know By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Boredom Busters...Some of my recommendations: As far as games, I mostly use my Switch, but I love my Xbox too!... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments5 comments
SMA and Snow Days ...A nice hot cup of cocoa or a nice hot coffee not only keeps your hands warm but also warms your... By Megan DeJarnett2 min readBookmark for laterReactions0reactionsComments0 comments
Extra Care During a Cold...These include: Take steps to prevent exposure to colds and other viruses. This is especially important in the first few months of a child’s... By Editorial Team 3 min readBookmark for later