Treatments for Spinal Muscular Atrophy...Early respiratory support and regular monitoring can improve quality of life and life expectancy....
Spinal Fusion Surgery for Spinal Muscular Atrophy...Spinal fusion can improve comfort, appearance, and overall quality of life....
Working With Health Aids and In-Home Assistants...The goals of at-home SMA management are to reduce symptoms, prevent complications, and improve quality of life....
Mental Health Impact...Lack of control and fear of the future are common among children with SMA. This can lead to anxiety, depression, and poor overall quality of...
Caregiver Corner...Many siblings feel that caregiving improves their quality of life. But siblings take on a large burden as caregivers....
Challenges with SMA Treatments...Treatments are all about stabilization and the possibility of small, quality of life improvements like better speech and eating more efficiently....Reactions0reactionsComments0 comments
Living With SMA...Depending on other people can cause them to feel like they have a lack of control. This can worsen quality of life....
Understanding Clinical Trials...Quality-of-life trials look at ways to improve the quality of life of people with a certain illness....Reactions0reactionsComments0 comments
ABLE Account Information...ABLE funds can be used by the account owner to fund expenses like health needs, education, food, housing, and other things needed to improve Reactions0reactionsComments0 comments
SMA In America: Results from Our 2022 Survey...The survey ran from April 19, 2021 – April 8, 2022, and asked 90 questions about everything from addressing diagnosis, quality of life, ongoing...Reactions0reactionsComments0 comments
Tips for Talking to Your Doctor About SMA...This can help improve quality of life and life expectancy. Communicating with doctors about SMA can be overwhelming....Reactions0reactionsComments0 comments
Complementary and Alternative Medicine...It also includes physical therapy and breathing support. This improves quality of life and reduces complications....
Severe neck weakness ...It is affecting my quality of life hugely, so I was wondering if anyone has experienced anything similar or can...Reactions0reactionsComments7 repliesComplicationsSurgerySymptoms
Comparing Spinraza and Evrysdi: Things to Consider...They have both had a large impact on improving the quality of life of those living with SMA....Reactions0reactionsComments0 comments
Thoughtful Christmas Gifts for Wheelchair Users...add to someone’s quality of life....Reactions0reactionsComments0 comments
My Child Has SMA...Doctors who specialize in palliative care can help you make decisions and goals related to quality of life....
