Treatments for Spinal Muscular Atrophy...Early respiratory support and regular monitoring can improve quality of life and life expectancy....
Curious About How Others Manage SMA? Share Your Experience in Our Polls...relationships, and quality of life....reactionscomments
Working With Health Aids and In-Home Assistants...The goals of at-home SMA management are to reduce symptoms, prevent complications, and improve quality of life....
Spinal Fusion Surgery for Spinal Muscular Atrophy...Spinal fusion can improve comfort, appearance, and overall quality of life....
Mental Health Impact...Lack of control and fear of the future are common among children with SMA. This can lead to anxiety, depression, and poor overall quality of...
Caregiver Corner...Many siblings feel that caregiving improves their quality of life. But siblings take on a large burden as caregivers....
Needing Speech Therapy With SMA...It's never too late to invest in your quality of life....reactionscomments
Challenges with SMA Treatments...Treatments are all about stabilization and the possibility of small, quality of life improvements like better speech and eating more efficiently....reactionscomments
Living With SMA...Depending on other people can cause them to feel like they have a lack of control. This can worsen quality of life....
Understanding Clinical Trials...Quality-of-life trials look at ways to improve the quality of life of people with a certain illness....reactionscomments
ABLE Account Information...ABLE funds can be used by the account owner to fund expenses like health needs, education, food, housing, and other things needed to improve reactionscomments
Tips for Talking to Your Doctor About SMA...This can help improve quality of life and life expectancy. Communicating with doctors about SMA can be overwhelming....reactionscomments
SMA In America: Results from Our 2022 Survey...The survey ran from April 19, 2021 – April 8, 2022, and asked 90 questions about everything from addressing diagnosis, quality of life, ongoing...reactionscomments
Complementary and Alternative Medicine...It also includes physical therapy and breathing support. This improves quality of life and reduces complications....
Comparing Spinraza and Evrysdi: Things to Consider...They have both had a large impact on improving the quality of life of those living with SMA....reactionscomments
Thoughtful Christmas Gifts for Wheelchair Users...add to someone’s quality of life....reactionscomments
