Treatments for Spinal Muscular Atrophy...Early respiratory support and regular monitoring can improve quality of life and life expectancy.... By Editorial Team 3 min readBookmark for later
Surgery and SMA...Your doctor can suggest options based on clinical status and quality of life.... By Editorial Team 3 min readBookmark for later
Palliative Care...They can discuss all options based on quality of life and prognosis.... By Editorial Team 2 min readBookmark for later
Working With Health Aids and In-Home Assistants...The goals of at-home SMA management are to reduce symptoms, prevent complications, and improve quality of life.... By Editorial Team 3 min readBookmark for later
Spinal Fusion Surgery for Spinal Muscular Atrophy...Spinal fusion can improve comfort, appearance, and overall quality of life.... By Editorial Team 3 min readBookmark for later
Tips for Talking to Your Doctor About SMA...This can help improve quality of life and life expectancy. Communicating with doctors about SMA can be overwhelming.... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Mental Health Impact...Lack of control and fear of the future are common among children with SMA. This can lead to anxiety, depression, and poor overall quality of... By Editorial Team 3 min readBookmark for later
Living With SMA...Depending on other people can cause them to feel like they have a lack of control. This can worsen quality of life.... By Editorial Team 3 min readBookmark for later
Caregiver Corner...Many siblings feel that caregiving improves their quality of life. But siblings take on a large burden as caregivers.... By Editorial Team 3 min readBookmark for later
Challenges with SMA Treatments...Treatments are all about stabilization and the possibility of small, quality of life improvements like better speech and eating more efficiently.... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
ABLE Account Information...ABLE funds can be used by the account owner to fund expenses like health needs, education, food, housing, and other things needed to improve By Allie Williams3 min readBookmark for laterReactions0reactionsComments0 comments
Complementary and Alternative Medicine...It also includes physical therapy and breathing support. This improves quality of life and reduces complications.... By Editorial Team 3 min readBookmark for later
SMA In America: Results from Our 2022 Survey...The survey ran from April 19, 2021 – April 8, 2022, and asked 90 questions about everything from addressing diagnosis, quality of life, ongoing... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Understanding Clinical Trials...Quality-of-life trials look at ways to improve the quality of life of people with a certain illness.... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Severe neck weakness ...It is affecting my quality of life hugely, so I was wondering if anyone has experienced anything similar or can...Reactions0reactionsComments7 repliesComplicationsSurgerySymptoms
Comparing Spinraza and Evrysdi: Things to Consider...They have both had a large impact on improving the quality of life of those living with SMA.... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Thoughtful Christmas Gifts for Wheelchair Users...add to someone’s quality of life.... By Megan DeJarnett2 min readBookmark for laterReactions0reactionsComments0 comments
My Child Has SMA...Doctors who specialize in palliative care can help you make decisions and goals related to quality of life.... By Editorial Team 3 min readBookmark for later
Navigating Kidney Health with Spinal Muscular Atrophy...By doing so, we not only manage SMA more effectively but also improve our overall quality of life.... By Megan DeJarnett2 min readBookmark for laterReactions0reactionsComments0 comments
Sibling Love...This is truly sibling love and a necessary blessing for Mike’s quality of life.... By Maryalice Noon2 min readBookmark for laterReactions0reactionsComments0 comments
