The Promise of TreatmentOur family journey began when Mike was five years old. After a barrage of testing and doctor appointments, we were given the diagnosis of Muscular Dystrophy. The name of just...reactionscomments
We Flow with the Changes in Our ChildYes, your role as a parent changes remarkably as your child grows from that little toddler into school age and then again into that teenager. Finally into that young adult...reactionscomments
Honest Look at a Parent’s HeartbreakThe emotions that each parent truly lives with from that first day our child is given a diagnosis of a neuromuscular disease. In reality, each parent feels that same initial...reactionscomments
Empty Nest AgainAs any typical parent will experience the day when your last child leaves the childhood home. At this point we are called “empty nesters”. This is met with different emotions. ...reactionscomments
Memories of the Labor Day TelethonI’m sure we all can remember that Labor Day meant watching the Jerry Lewis’s Muscular Dystrophy Telethon. It was always an emotional experience for me. My senior year of high...reactionscomments
Being a Parent of a Child with SMAI have talked about this a few times already. I have also read other parents' points of view on this site. I can say with certainty that we all come...reactionscomments
The FundraiserI wanted to give some insight about being receptive to the charity of well-meaning people. My coworkers were always supportive in listening to all my fears and concerns, in particular...reactionscomments
A Parent's JourneyAs a parent, we can remember that day when we heard the news, "Congratulations, you are going to have a baby." From that moment on, we immersed ourselves in planning...reactions1comment
The Joy of the MDA Summer CampI think we all can remember watching the MDA Telethon over the years. In addition to raising funds for research, a week at a summer camp for kids with a...reactionscomments
The First Time Pushing My Son in a WheelchairOur son was diagnosed with a neuromuscular disease at the age of 5. At that time the name given for his condition wasn’t the same as his final diagnosis. We...reactionscomments
Everyday LifeFor our firstborn son, the first five years of his life were pretty much routine. We were oblivious to any health problems. The only noticeable activity was that he ran...reactionscomments
Sibling LoveI have talked about Mike’s good friends who were always including him with all their adventures. Well, the best friend of all in his younger years was his brother Dan...reactionscomments
Finding the Correct Treatment JourneyWhen we are given a health issue, we face a new journey. When it’s our own personal journey, we do our best to get the right answers and treatment. We...reactions1comment
Turning 30As his parents, we have walked with him through childhood, adolescence, young adult, and now moving into the next decade with all the years of being brave and fighting that...reactions1comment
My Son's Own Apartment When we moved into our new home in 1988 we had an apartment included for Grandma. In 2000 she decided to move into a senior community. At this time and after...reactionscomments
A Young Man’s Social YearsEvery parent can relate to those years of watching your adult child living those carefree years after college, beginning their working careers. So now they have the income to enjoy...reactionscomments
Office of Vocational Rehabilitation (OVR)I mentioned this program briefly before. This was extremely helpful to our situation when we first were introduced to it in 1995. The goal of this program was to assist...reactionscomments
Preparing For the Working World With college behind him, it was now time for Mike to apply for that first job in the business world. I know that if you are a young adult with...reactions1comment
Where Does This Leave Siblings?That has been the question for our family for 39 years. I’m sure every parent asks themselves that often. My experience is that we all try our best to juggle...reactions1comment
Mikes New Trial For The Family - A Cancer DiagnosisIt’s now the start of a new college school year. As always, we all load up the car and take Mike back and get his room all set up for...reactionscomments
