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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

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Doctors won’t address my sma

So, I was reading my mri report and it says I have mild to moderate paraspinal musculature atrophy. You can clearly see...

Switching from Spinraza to Risdiplam

Hi, Apologies if this has been discussed.. new to forum. I have 2 children with SMA 3, age 13 and 11. They...

Advice for First Time Living Independently/Managing PCAs

Hello! I am a college student and will be living independently with just PCAs soon for the first time. I am very...

Is this SMA?

Besides having severe multilevel spinal stenosis, my MRI says There is a left paraspinal muscular atrophy. Multilevel degenerative changes with multilevel disc...

Diet and Nutrition

Hello everyone, I need advice. I'm really struggling to figure out food. I don't see any recipes I like online that are...

Have you encountered challenges with your SMA treatment?

Whether it be side effects, financial, insurance denials, or complications, please share with us. We'd love to hear a bit about your...

Community Question: What would you buy?

If you found $100 on the sidewalk and wanted to help yourself manage your SMA, what would you buy?...

Daily Routines

What is your daily routine? Have you found that a routine helps you manage your SMA? Share below....

Pros and Cons of Power Chairs

Are you new to using a power chair, or have you used one for a while? What are some things you love...

Self Advocacy

Do you consider yourself an advocate for yourself? If so, how did you start advocating? How has it impacted your life with...

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