How To Be a Good FriendRecently I’ve read a few posts regarding being disabled and having friends. One was in a Muscular Dystrophy Facebook group where someone...reactionscomments
Healthy Holiday BoundariesWe all just survived a pandemic. That is no small feat! As the holidays come around, we are going to be surrounded...reactionscomments
SMA Mama – Preconception, Pregnancy, and PostpartumI have spinal muscular atrophy (SMA) type 3. I’m unable to stand, walk, or transfer. I use a manual wheelchair and power...reactionscomments
Traveling With SMA: What to ConsiderTraveling is a great way to relax, learn about other cultures, and bond with your family. People with spinal muscular atrophy (SMA)...reactionscomments
Where Does This Leave Siblings?That has been the question for our family for 39 years. I’m sure every parent asks themselves that often. My experience is...reactions1comment
Getting Wheelchair Accessible Concert TicketsIf you’ve ever lost out on accessible/ADA tickets to your favorite band or musician, today is your lucky day because I am...reactionscomments
The Importance of StretchingBeginning in my early 30’s, SMA started to take away a lot of my strength. As a result, I began sitting more...reactionscomments
My Journey to Becoming A Mom in a Wheelchair: Part 1Finding the right doctor. As a little 4-year-old girl, I used to pretend I was pregnant. I would stuff a pillow up...reactionscomments
Building a Wheelchair-Accessible Home With SMAAfter years of searching, I finally found a home builder for a new development that was more than willing to accommodate my...reactions10comments
Talking to Your Child About SMAWhen your child has a long-term illness like spinal muscular atrophy (SMA), it is normal for them to have questions. They may...reactionscomments
A Letter to My Parents: WE are Living with SMAParenting isn’t a job for the faint of heart. I live in a world full of adults living with disabilities, and I...reactions4comments
Designing New Locker RoomsThis is part 3 of an ongoing story. If you haven’t been following along you might want to start with Part 1...reactionscomments
Working with SMA I have mentioned in a previous article that I have worked full time. After graduating college, I had a hard time finding...reactionscomments
Your Story MattersAll of us have a unique story to share with the world. And whether it’s by writing a book, starting a blog...reactionscomments
The Number One Beach Accessory You Might Not Know AboutThe beach for me as someone with spinal muscular atrophy can be a difficult place. I often feel most disabled in this environment...reactionscomments
Monitoring Calories and Protein ConsumptionAfter getting my g-tube placed in 2017, food became more of a luxury than a necessity for nutrition. While my feeding tube...reactionscomments
Sports and Recreation: Finding the Right FitDifferent types of SMA come with different physical abilities. Some people have a mild form of the illness and can walk. Others...reactionscomments
Tips on Dating with a DisabilityI know every person‘s story is different, but the common denominator is the desire to be loved in most people's lives. As...reactionscomments
Feeling Left Behind at TimesWith most of my posts, I try to offer some kind of helpful information from my past experiences. But sometimes I feel...reactions1comment
Finding HopeIt broke my heart when one of my good friends' daughters was diagnosed with SMA. The diagnosis was tentative, as he was...reactionscomments
