A Young Man’s Social YearsEvery parent can relate to those years of watching your adult child living those carefree years after college, beginning their working careers...reactionscomments
New Year, New CareWhen the New Year rolls around, everyone reflects on the previous year and sets goals for the new one. For those of...reactionscomments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with spinal...reactionscomments
Getting Christmas Sorted with SMAAs a 31-year-old with SMA, Christmas is always pretty exciting. Ever since I was little, I’ve adored the sparkle of December. But...reactions1comment
How My Elf On The Shelf Turned Into Something MoreMy daughter Stella is two and a half years old. Lately, Stella's development has revolved around exploration. Continuing to push her limits...reactions1comment
Why is He in a Wheelchair?"Why is he in a wheelchair?" If I had a dollar every time I heard that phrase, I would be rich. I...reactionscomments
Top Tips for Hiring a PCALet’s begin with what a PCA is, and what a PCA is not. A personal care assistant should entail three things: Personal...reactionscomments
Managing CaregiversWhen I was of college age, I was fortunate enough to attend a school that at the time offered a dormitory providing...reactionscomments
Self-Care RoutineWhen I first began to read blogs and see posts about others doing their “self-care,” I remember my first thought: “Well I...reactionscomments
Hiding Medical EquipmentGrowing up, I never felt embarrassed or ashamed of the extensive medical equipment that was on display in my bedroom. A BiPAP...reactionscomments
When Your Significant Other Becomes Your PCASuzanne and I met over 6 years ago. We both had an attraction to each other. Our friendship grew into a relationship...reactionscomments
The Freedom to SwimSometimes I just want to stand up and fling my arms around or jump or spin really fast until I’m dizzy and...reactions1comment
Office of Vocational Rehabilitation (OVR)I mentioned this program briefly before. This was extremely helpful to our situation when we first were introduced to it in 1995...reactionscomments
Talking With Children Who Have SMA About Their BodyI remember being a child and having very bold discussions with health care providers regarding my weight. Their focus was a clinical...reactions6comments
Frustrations Around Able-Bodied People Using the Accessible BathroomsIf you’re following along, this is Part 4 of my story. The first three articles are linked below: The event that prompted...reactionscomments
Thanksgiving & Difficulty SwallowingSo, the fourth Thursday of every November in the US is Thanksgiving. For our international friends, it is a national holiday centered...reactions1comment
Fashion Within the Disability WorldThis is a topic that I think the world is expanding upon: fashion within the disability world. For a long time, I...reactions1comment
Tips for Talking to Your Doctor About SMAMost people living with spinal muscular atrophy (SMA) need care from multiple doctors. Regular doctor’s visits help you or your child manage...reactionscomments
Giving Up DrivingI touched on this topic a little in my article “How Expensive Is That Minivan.” I drove without any driving adaptations for 24...reactionscomments
Preparing For the Working World With college behind him, it was now time for Mike to apply for that first job in the business world. I know...reactions1comment
