Buying My First HomeAfter almost 2 years of searching and being outbid, my dream of becoming a homeowner has come to fruition. I would imagine...reactionscomments
Unique Accessible Seating During a Fun Weekend TripHello everyone! Hope all is well! Today, I wanted to talk about a fun and interesting accessible seating option. So my family...reactionscomments
A Sense of BelongingI can't remember if I've mentioned this before but for most of my life, I hid my SMA as much as possible...reactionscomments
Getting Comfortable In My StyleLiving with spinal muscular atrophy (SMA) brings its own set of challenges. Some challenges are glaringly obvious. Others play out behind the...reactionscomments
Can Someone Really Predict Life Expectancy?I was about 4 years old when my parents became concerned about my physical well-being. My younger brother was becoming stronger than...reactionscomments
Mixing Advocacy With Travel in Washington, DCGuess what I did? I took a trip to Washington, D.C., to advocate for a cure for spinal muscular atrophy (SMA) on...reactionscomments
Can a Non-Disabled Counselor Be a Good Fit For Me?As a wheelchair user, I've navigated many paths—-some smooth, some fraught with obstacles. Yet, one of the most transformative journeys I've embarked...reactionscomments
Disability and AbuseBy definition, abuse is something that inflicts pain or emotional distress on a vulnerable person through verbal or nonverbal acts. Abuse thrives...reactionscomments
The Bully In My MindFor me, personally, the smallest things are the scariest. I know that you just have to do it, as they say, but...reactions4comments
Let’s Talk About Mental HealthHow do you find yourself managing your mental health on a day-to-day basis? Please join the conversation. Below are comments from SpinalMuscularAtrophy.net...reactions1comment
Coping as a Young Adult With SMAWe asked a couple of our young Health Leaders, Kellie and Jennifer, about the transition from their teenage years to adulthood, how...reactions6comments
An Open Letter To My Mom, My CaregiverAs Mother’s Day approaches, I find myself reflecting on all the things my mom has done for me since I was diagnosed...reactions2comments
On Being Told To Live Independently“You should learn to live independently. There’s a cerebral palsy patient that renovated her house and lives alone” “You should learn how...reactions1comment
Genetic CounselingI was born in the 1970s and, while genetic counseling started in 1969, it wasn’t what it is today. There was no...reactions1comment
Using Your Disability to Impact LivesThe beauty of sharing our stories lies not just in the telling, but also in the impact they can have on others...reactions1comment
Finding Humor in the SMA-PCA BondLiving with spinal muscular atrophy (SMA) feels like riding a rollercoaster of emotions, but having my lifeline, also known as my personal...reactions1comment
Personal GrowthBeing born with a genetic disorder like spinal muscular atrophy forces us to adapt to a world that wasn’t built for disabled...reactions2comments
Getting Back In the Pool After Surgery With SMAHaving spinal muscular atrophy (SMA) means relying on a powered wheelchair for mobility. While my wheelchairs and assistive gear offer a sense...reactionscomments
Art and SMA12 artworks in 7 months. In Nelson Mandela's words, “It always seems impossible until it’s done”. Who would’ve thought I managed to...reactions1comment
Pros and Cons of Owning an Accessible VanI feel as though having a disability is a constant balancing act of freedom and cost. Owning an accessible van can be...reactions10comments
