A Family AffairI have been writing about my spinal muscular atrophy journey for a few years now. I often wonder who out there is...reactions2comments
Traveling with SMAWhen it came to my level of independence, I have been pretty lucky. An area of my life that was always a...reactionscomments
Trying to Experience an Inaccessible WorldI have so many stories to tell regarding this topic. I have talked about how lucky I consider myself in previous articles...reactions3comments
Maintaining Friends While Living With a DisabilityThis topic recently came up while talking with other writers from this page. I am very outgoing and have always loved being...reactions3comments
The Awkward GreetingA few weeks ago Suzanne and I went out to dinner with friends of ours to a new restaurant. We arrived first...reactionscomments
Why is He in a Wheelchair?"Why is he in a wheelchair?" If I had a dollar every time I heard that phrase, I would be rich. I...reactionscomments
Overcoming ObstaclesWhat has been the biggest obstacle that you have overcome with SMA? What was your greatest challenge and how did you get...reactionscomments
Talking With Children Who Have SMA About Their BodyI remember being a child and having very bold discussions with health care providers regarding my weight. Their focus was a clinical...reactions6comments
SMA Mama – Preconception, Pregnancy, and PostpartumI have spinal muscular atrophy (SMA) type 3. I’m unable to stand, walk, or transfer. I use a manual wheelchair and power...reactionscomments
What Is an Accessible Home? I have been house shopping. There is a better chance of winning the lottery than finding the perfect home that is 100%...reactionscomments
Building a Wheelchair-Accessible Home With SMAAfter years of searching, I finally found a home builder for a new development that was more than willing to accommodate my...reactions10comments
Eating with SMASitting down and sharing a meal with family and friends is one of the most basic social things to do. I love...reactions1comment
Performing on the Stage With SMAThe bright lights of Broadway have long been a beacon for dreamers, a symbol of passion, talent, and hard work converging to...reactionscomments
Accessible Getaway TipsWe asked our Health Leaders for some summertime advice: Do you have a summer vacation or getaway planned? What makes for the...reactionscomments
Cure SMA Conference TipsI went to the Cure SMA Conference for the first time when I was 10 with my mom, dad, and grandparents (my...reactions1comment
Traveling and SMATraveling has always been a passion of mine. When I was younger I was fortunate enough to travel to Costa Rica, Guatemala...reactionscomments
Self-Care RoutineWhen I first began to read blogs and see posts about others doing their “self-care,” I remember my first thought: “Well I...reactionscomments
Needing Speech Therapy With SMARecovering from my kidney stone removal didn’t go as planned. I expected some discomfort, but I never anticipated the complications that followed...reactionscomments
SMA Treatment AdvancementsWe asked our team of advocates: What have advancements in treatment for spinal muscular atrophy meant to you?Allie: The celebration of life...reactionscomments
Advice for Younger People with SMAWe asked our team of advocates: What advice do you have for younger people with SMA?Allie: Learn how to adapt what you...reactions2comments
