What A Small Cold Can DoIn October, my mom caught a little cold during a trip to her doctor's office. She suffered a sore throat, cough, runny...reactionscomments
My Battle With Chronic Pain and SMAIn my life, aches and pains have been constant companions. In my younger years, I chalked them up as part of the...reactions1comment
The Evolution of Adaptive Showering EquipmentMany people with disabilities, like spinal muscular atrophy, may struggle with self-care necessities, especially bathing/showering when access is hard. My situation was...reactions2comments
Struggling to Find the Right FitIt can be frustrating shopping for clothes that fit my body comfortably, especially dress clothes. I am at an age now where...reactions1comment
OverwhelmedLast year, to make a long story short, I had a bunch of GI issues. The GI team decided to give me...reactions2comments
Tips for a Successful Night Out as a Wheelchair UserGoing out can be nerve-wracking for anyone, but when you're a wheelchair user with spinal muscular atrophy, the stress can multiply. From...reactions3comments
New Year - New Me?I never liked the phrase "new year, new me." It made me feel like everything I did last year was thrown away...reactionscomments
Friends That Travel Together, Stay TogetherPeople say travel friendships can last a lifetime. With traveling, it shows how solid your friendships are because you will know how...reactionscomments
Getting Ready in the MorningGetting ready in the morning when you have spinal muscular atrophy (SMA) can be challenging because of the lack of strength and...reactionscomments
Things I Wish People KnewToday I wanted to talk about SMA (spinal muscular atrophy). Most folks out there aren’t exactly experts on it, so I want...reactions2comments
Planning a Family With SMA: Things to ConsiderIf you have a child with spinal muscular atrophy (SMA) or are a carrier of the SMA gene, you face some serious...reactionscomments
Adding Fun to Tiring Doctors AppointmentsIn general, I believe that all of us would like to be and stay healthy as much as possible. With spinal muscular...reactions2comments
Thoughtful Christmas Gifts for Wheelchair UsersI cannot believe it’s already that time of year. I’m getting the question, “What do you want for Christmas!?” I have found myself...reactionscomments
First Grade-How My Advocacy StartedI have spinal muscular atrophy (SMA), a condition that affects my muscles and mobility. But the amazing part is that I went...reactionscomments
Awarded an MBE for Disability AdvocacyIf I were to say 2023 has been a wild ride, it would be a huge understatement - and there are still...reactions1comment
Radical InclusivityDefinition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice...reactions1comment
Cold Weather Tool Kit EssentialsThe anticipation of the winter season brings joy and excitement to many as it heralds the arrival of holidays and gatherings with...reactions5comments
Parking Lot Mishaps: The Wheelchair EditionWe've all witnessed that mom clutching her child's hand like it's a lifeline as they navigate a chaotic parking lot. This could...reactions2comments
Six Months With My First Power ChairIt has been six months since I started using my first power wheelchair. Over the last 28 years, I used an electric...reactionscomments
Dealing With Grief During Festive SeasonsEvery year when we come to the festive season (for us in Malaysia it's Hari Raya Aidilfitri), it is the hardest time...reactions1comment
