Learning, Growing, Healing, TryingSometimes I can't help but hold myself to an able-bodied standard. By this I mean, I can't help but think it's bad...reactionscomments
Traveling For The Holidays With SMAThe holiday season is around the corner, and many of us are gearing up for travel to visit friends and family. I know...reactionscomments
Competing In Sports With SMAMy SMA story begins at the age of two. Up until that time, I was meeting all my physical milestones until one...reactions3comments
Raising Awareness About Early Diagnosis and Immediate TreatmentAs someone living with spinal muscular atrophy (SMA), I know firsthand the challenges and triumphs that come with this condition. That's why...reactions1comment
Power of the ChairWhen people see another person in a wheelchair, a subtle transformation occurs, and they do their best to act with kindness. Often...reactions1comment
Helping Others Helps MeLiving with a disability like spinal muscular atrophy can be difficult at times. My 46 years of experience have taught me some...reactionscomments
The Benefits of Opening an ABLE AccountFinancial planning can be a daunting task for anyone, but for individuals with disabilities, such as spinal muscular atrophy, and their families...reactionscomments
Top Things To Do in NYC That Are AccessibleMy mom and I love to travel, and as we live close to the city, New York City, I wanted to share...reactionscomments
Embracing Independence: My Journey with IncontinenceGrowing up with spinal muscular atrophy (SMA) and relying on a wheelchair, my daily life was an intricate dance of navigating the...reactions2comments
Just Let Me Return ThisHome delivery of groceries and online shopping became a normal occurrence for many people during the COVID-19 pandemic. As someone with mobility...reactions1comment
Balancing Life When You Are IllLife with SMA has two halves - the mobility half, and the illness half. Managing the mobility issues and illness of spinal...reactions2comments
Talking to Others About SMAWhat are your tips for talking to your family and friends about SMA? What are your tips for talking to your coworkers...reactions1comment
Getting Tips and Support at the 2023 Cure SMA ConferenceLast year was the first in-person Cure SMA conference post-pandemic, and unfortunately, I couldn't go due to health issues. I was absolutely...reactionscomments
How to Maintain Privacy with Around-the-Clock Care at HomeThe other day I was in my home observing the business. I had two caregivers shuffling through my bedroom and kitchen, kids...reactionscomments
This is How True Crime Podcasts StartThis is how true crime podcasts start: As someone who travels with my power wheelchair and who cannot transfer easily for trips...reactionscomments
Managing EnergyI often struggle with low energy, year-round. I'd like to share some things that have helped me and hopefully will help you...reactions6comments
Challenges of SMA and Its ProgressionLiving with a chronic condition like spinal muscular atrophy (SMA) can have significant social and emotional impacts on individuals and their families...reactions1comment
Accessibility EtiquetteWe asked our Health Leaders who live with spinal muscular atrophy: "What needs to make it into an 'accessibility etiquette' guide? What...reactionscomments
Embracing Freedom: Swimming with SMAAs someone with spinal muscular atrophy, swimming has always held a special place in my heart. Ever since I was a child...reactionscomments
Loss in the SMA CommunityMy SMA community was struck hard this winter season by a string of deaths. Blow by blow it broke me. My friend...reactions1comment
