Preparing Emotionally with a Child with Spinal Muscular AtrophyIt is 1974, and my wife was pregnant. We were not expecting twins However, we were blessed with twins. One of the...reactionscomments
Large Medical Team Helps a Child With SMAWhen our daughter, Jessie was born we were overjoyed. We were unaware of what was in store for my daughter and our...reactionscomments
Frequently Asked Questions (FAQs) About Spinal Muscular AtrophyWhether you are living with spinal muscular atrophy (SMA) or a caregiver for someone with SMA, here is a guide to the...reactionscomments
Talking to Others About SMAWhat are your tips for talking to your family and friends about SMA? What are your tips for talking to your coworkers...reactions1comment
This is How True Crime Podcasts StartThis is how true crime podcasts start: As someone who travels with my power wheelchair and who cannot transfer easily for trips...reactionscomments
Managing Thoughtless CommentsIf you use a wheelchair or scooter like me, because of spinal muscular atrophy, I am sure you have heard all of...reactionscomments
SMA Awareness or Pride?Everyone in the SMA community knows that August is our month... well, everyone except for me. I’m ashamed to admit I did...reactions4comments
Medicare Denials and Wonderful NonprofitsI recently wrote about my first wheelchair seating clinic experience. Since I wrote that article I was denied by Medicare for the...reactions1comment
Define LoveDefine love. It would be a broader definition for everyone. As I moved into the adulthood phase I started to get involved...reactionscomments
Therapy and Mental Health with SMAWarning: This post discusses my experience with mental health including anxiety and depression. Reader discretion is advised. I wanted to discuss my...reactions2comments
Living With a Disability: Movie RecommendationsWe asked our Health Leaders, "What good movies or television shows give a credible account of living with disability?" Here are some...reactions2comments
An Accessible Cruise VacationI just went on a birthday cruise on the Disney Wish with my mama! I wanted to share about accessibility and what...reactions3comments
Dressing Room Experience as a Wheelchair User: Tips and Personal InsightsTrying on clothes in a department store can be a daunting task for anyone, but it can be even more challenging if...reactionscomments
Mental Health Awareness MonthMay was designated National Mental Health Awareness Month in 1949 by the United States Congress due to the increased number of veterans...reactionscomments
The Promise of TreatmentOur family journey began when Mike was five years old. After a barrage of testing and doctor appointments, we were given the...reactionscomments
Keeping Positive During Life’s TransitionsOur lives will be constantly changing. This is true for everyone. Whether you are disabled or not. Life never stays stagnant so...reactionscomments
The Mom In The WheelchairRecently, I had an experience I didn’t know I desperately needed. I went to volunteer in my daughter’s kindergarten classroom. I was...reactions1comment
Disability Does Not Make You Immune to HardshipRecently, I have had a huge life transition and not a positive one. I feel society often thinks that disabled individuals do...reactions1comment
Patient LiftsHaving the inability to raise oneself out of a power chair to go to the bathroom or to the bed can be...reactionscomments
Traveling With SMA: What to ConsiderTraveling is a great way to relax, learn about other cultures, and bond with your family. People with spinal muscular atrophy (SMA)...reactionscomments
