A Parent's JourneyAs a parent, we can remember that day when we heard the news, "Congratulations, you are going to have a baby." From...reactions1comment
Cold Weather Tool Kit EssentialsThe anticipation of the winter season brings joy and excitement to many as it heralds the arrival of holidays and gatherings with...reactions5comments
Six Months With My First Power ChairIt has been six months since I started using my first power wheelchair. Over the last 28 years, I used an electric...reactionscomments
Competing In Sports With SMAMy SMA story begins at the age of two. Up until that time, I was meeting all my physical milestones until one...reactions3comments
Traveling For The Holidays With SMAThe holiday season is around the corner, and many of us are gearing up for travel to visit friends and family. I know...reactionscomments
Power of the ChairWhen people see another person in a wheelchair, a subtle transformation occurs, and they do their best to act with kindness. Often...reactions1comment
Patient Assistance Programs for SMAAffording your spinal muscular atrophy (SMA) drugs and other treatment costs can be challenging. Luckily, there are programs that may be able...reactionscomments
The Benefits of Opening an ABLE AccountFinancial planning can be a daunting task for anyone, but for individuals with disabilities, such as spinal muscular atrophy, and their families...reactionscomments
Top Things To Do in NYC That Are AccessibleMy mom and I love to travel, and as we live close to the city, New York City, I wanted to share...reactionscomments
ABLE Account InformationLet’s talk about saving money while being on government assistance in the United States. I am on social security disability which is...reactionscomments
Telling Loved Ones About Your Child's SMA DiagnosisAfter getting news that your child has a serious illness like spinal muscular atrophy (SMA), you will likely turn to family and...reactionscomments
Navigating School Accommodations for Children With SMAThe United States government has many laws that protect rights to education for children with disabilities. Spinal muscular atrophy (SMA) is considered...reactions1comment
Jessie’s First Grade Class Learns About DisabilitiesThe back story: My daughter Jessie, had spinal muscular atrophy [SMA]. She was the first handicapped child to be mainstreamed in our...reactions4comments
Why Is Self-Care Important and How Can We Practice It?Self-care is one of those things we all know we should take care of, but neglect during stressful times. When managing daily...reactionscomments
For Parents: Advice on Talking to Young Children About SMAIt can be challenging as a parent to tackle difficult conversations with children and young adults about spinal muscular atrophy or disabilities...reactionscomments
Adaptive Fashion and the Double Take Fashion ShowHello everyone! Today, since it's officially June as I write this, and the warm weather is here, (my favorite season!) I wanted...reactionscomments
Helping My Daughter Make Choices and Experience LifeI realized that we, as parents of a child with spinal muscular atrophy (SMA), were trying to do everything possible to meet...reactionscomments
My Reactions To Finding Out That My Daughter Had Spinal Muscular AtrophyMy experience with anticipatory grief (AG) began when Jessie was about 3 months old. She was not meeting her developmental goals compared...reactionscomments
Just Let Me Return ThisHome delivery of groceries and online shopping became a normal occurrence for many people during the COVID-19 pandemic. As someone with mobility...reactions1comment
Interviewing for a Job When You Have a DisabilityInterviewing for a job can be a daunting task for anyone regardless of how physically or mentally capable you are. But when...reactions1comment
