Dealing With Grief During Festive SeasonsEvery year when we come to the festive season (for us in Malaysia it's Hari Raya Aidilfitri), it is the hardest time...reactions1comment
Getting Christmas Sorted with SMAAs a 31-year-old with SMA, Christmas is always pretty exciting. Ever since I was little, I’ve adored the sparkle of December. But...reactions1comment
Healthy Holiday BoundariesWe all just survived a pandemic. That is no small feat! As the holidays come around, we are going to be surrounded...reactionscomments
Your Story MattersAll of us have a unique story to share with the world. And whether it’s by writing a book, starting a blog...reactionscomments
What A Small Cold Can DoIn October, my mom caught a little cold during a trip to her doctor's office. She suffered a sore throat, cough, runny...reactionscomments
My Battle With Chronic Pain and SMAIn my life, aches and pains have been constant companions. In my younger years, I chalked them up as part of the...reactions1comment
Friends That Travel Together, Stay TogetherPeople say travel friendships can last a lifetime. With traveling, it shows how solid your friendships are because you will know how...reactionscomments
Adding Fun to Tiring Doctors AppointmentsIn general, I believe that all of us would like to be and stay healthy as much as possible. With spinal muscular...reactions2comments
Thoughtful Christmas Gifts for Wheelchair UsersI cannot believe it’s already that time of year. I’m getting the question, “What do you want for Christmas!?” I have found myself...reactionscomments
Awarded an MBE for Disability AdvocacyIf I were to say 2023 has been a wild ride, it would be a huge understatement - and there are still...reactions1comment
Radical InclusivityDefinition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice...reactions1comment
What is Your Definition of Independence?Living with a disability can make us stubborn in our ways. I know for me it’s the inability to control what my...reactionscomments
Best Date Ideas for Interabled CouplesI’m a firm believer that dating your spouse is equally as important when you’re 5 or 10 years into marriage than it...reactionscomments
5 Tips for Dating with a DisabilityThe dating landscape with social media and dating apps is not always an ideal way to meet others when you have a...reactions1comment
Let’s Make Flying More AccessibleEverybody deserves to get away and chill by the pool or visit their dream destination. But traveling with a disability can be...reactions3comments
Airline Travel When You Have SMA – Tips, Tricks, and What to Know Before You Go!Traveling when you have SMA can be a daunting undertaking. Many individuals who have SMA have never flown on an airplane. Air...reactionscomments
Air TravelMy biggest advice for traveling with SMA through airfare is to communicate, communicate, communicate. OVER-communicate. At least for me, I hate feeling...reactionscomments
Adapting MakeupMakeup for me has always been something I give myself as a gift of self-care. I enjoy doing my makeup every day and...reactionscomments
Smart IndependenceAs an independent disabled adult, one of my fears is that I will be alone with a caregiver and the caregiver will...reactions2comments
Working with SMA I have mentioned in a previous article that I have worked full time. After graduating college, I had a hard time finding...reactionscomments
