Genetic CounselingI was born in the 1970s and, while genetic counseling started in 1969, it wasn’t what it is today. There was no...reactions1comment
SpinalMuscularAtrophy.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on SPINALMUSCULARATROPHY.NET, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
Accessibility EtiquetteWe asked our Health Leaders who live with spinal muscular atrophy: "What needs to make it into an 'accessibility etiquette' guide? What...reactionscomments
Getting Back In the Pool After Surgery With SMAHaving spinal muscular atrophy (SMA) means relying on a powered wheelchair for mobility. While my wheelchairs and assistive gear offer a sense...reactionscomments
Art and SMA12 artworks in 7 months. In Nelson Mandela's words, “It always seems impossible until it’s done”. Who would’ve thought I managed to...reactions1comment
Embracing Freedom: Swimming with SMAAs someone with spinal muscular atrophy, swimming has always held a special place in my heart. Ever since I was a child...reactionscomments
Why Are Car Repairs So Expensive?Maintaining a reliable vehicle is vital for individuals living with spinal muscular atrophy (SMA) to maintain their independence and overall well-being. Unfortunately...reactions1comment
Social Media and Mental HealthSocial media can be a game changing tool for anyone, especially people in the SMA and disabled communities. I've chatted about this...reactions4comments
Getting Out Of My HeadI know that I am not alone in this feeling. We ‘SMAers’ are very observant wallflowers. Meaning that we see everything. For...reactions2comments
Succeeding as a Disabled College StudentWhen it came time to start looking at colleges, there were two major items on my list that had to be checked:...reactionscomments
Finding Disabled JoySo many of my friends who are disabled have spoken about the magic of being in a room full of people who...reactionscomments
Getting Tips and Support at the 2023 Cure SMA ConferenceLast year was the first in-person Cure SMA conference post-pandemic, and unfortunately, I couldn't go due to health issues. I was absolutely...reactionscomments
Losing My Best FriendToday my household had to do something that owners of pets dread. We had to make the decision to end our dog’s pain...reactions1comment
The Gift of Self-Advocacy: Teaching Kids To Use Their VoiceGrowing up with spinal muscular atrophy (SMA), I've had the privilege of witnessing the remarkable impact of my parents' guidance in teaching...reactions5comments
What Would You Invent?Plato said, “Necessity is the mother of invention.” We asked our Health Leaders, who live with spinal muscular atrophy, "What accessibility-related invention...reactionscomments
I Was a Guinea PigIn the 1990s, I found myself unwittingly becoming a pioneer in the quest for advancements in SMA care. As a person living...reactions1comment
Valentine's Day and SMAThe holidays always bring their own set of challenges, and Valentine’s Day is no different for me. Throughout my life, I've never...reactions3comments
Worst Case Scenario: a Cold*This article was inspired by Balancing Life When You Are Ill by Michaela Hollywood* As of writing this, I was sick this...reactions1comment
Loss in the SMA CommunityMy SMA community was struck hard this winter season by a string of deaths. Blow by blow it broke me. My friend...reactions1comment
Learning, Growing, Healing, TryingSometimes I can't help but hold myself to an able-bodied standard. By this I mean, I can't help but think it's bad...reactionscomments
