Fears Of Flu and FeversAs summer eventually becomes fall and winter, bringing with it an increased risk of illness, those of us living with spinal muscular...reactionscomments
Health Literacy and SMAFor people with spinal muscular atrophy (SMA), health literacy is crucial. SMA is a genetic disorder that affects muscle strength and movement...reactionscomments
Discrimination SituationAround five years ago, I had a throbbing toothache. I had no idea what was wrong other than my face hurt and...reactionscomments
Unique Accessible Seating During a Fun Weekend TripHello everyone! Hope all is well! Today, I wanted to talk about a fun and interesting accessible seating option. So my family...reactionscomments
Hug Me Not My Wheelchair PleaseI’ve been driving a power wheelchair since the age of two. My wheelchair has been a part of my life and a...reactionscomments
Navigating Kidney Health with Spinal Muscular AtrophyAs a 34-year-old individual living with spinal muscular atrophy (SMA), my journey through the healthcare system has been extensive and enlightening. Regular...reactionscomments
Abilities ExpoI have been using my new powered wheelchair for about a year. When I am sitting for long periods of time, I...reactionscomments
How To Spend a Summer With SMASummer is finally here and I couldn’t be more excited for all the warm weather and thunderstorms to come. With summer here...reactionscomments
Using Your Disability to Impact LivesThe beauty of sharing our stories lies not just in the telling, but also in the impact they can have on others...reactions1comment
Taking Care of a Child With SMABy its very nature, caregiving can take an emotional and physical toll on your health. If your child has spinal muscular atrophy...reactionscomments
Lack of Accessible UbersIn May, I was out to dinner with my girlfriend Suzanne and a few of my old colleagues. After dinner, Suzanne wanted...reactionscomments
My Ewok CompanionIn the vast and colorful world of dog adoption, there are countless tales of furry companions who found their forever homes. These...reactions1comment
How Alexa Became One of My Disability Must-HavesI was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you...reactions2comments
Struggling to Find the Right FitIt can be frustrating shopping for clothes that fit my body comfortably, especially dress clothes. I am at an age now where...reactions1comment
Remembering My Spinal Fusion SurgeryWhen I was younger, I had a 90-degree curve in my spine due to scoliosis from spinal muscular atrophy (SMA). My torso...reactionscomments
Forced Poverty in the Disability CommunityFrom an early age, individuals with disabilities face a unique set of financial challenges. For me, these challenges began at 16, a...reactionscomments
Buying My First HomeAfter almost 2 years of searching and being outbid, my dream of becoming a homeowner has come to fruition. I would imagine...reactionscomments
Challenges of SMA and Its ProgressionLiving with a chronic condition like spinal muscular atrophy (SMA) can have significant social and emotional impacts on individuals and their families...reactions1comment
Can Someone Really Predict Life Expectancy?I was about 4 years old when my parents became concerned about my physical well-being. My younger brother was becoming stronger than...reactionscomments
Speech Therapy for Children with SMAI am a speech pathologist. My daughter had spinal muscular atrophy. One of my daughter’s needs was speech therapy services. Since I...reactionscomments
