How To Spend a Summer With SMASummer is finally here and I couldn’t be more excited for all the warm weather and thunderstorms to come. With summer here...reactionscomments
Using Your Disability to Impact LivesThe beauty of sharing our stories lies not just in the telling, but also in the impact they can have on others...reactions1comment
Taking Care of a Child With SMABy its very nature, caregiving can take an emotional and physical toll on your health. If your child has spinal muscular atrophy...reactionscomments
Lack of Accessible UbersIn May, I was out to dinner with my girlfriend Suzanne and a few of my old colleagues. After dinner, Suzanne wanted...reactionscomments
My Ewok CompanionIn the vast and colorful world of dog adoption, there are countless tales of furry companions who found their forever homes. These...reactions1comment
How Alexa Became One of My Disability Must-HavesI was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you...reactions2comments
Struggling to Find the Right FitIt can be frustrating shopping for clothes that fit my body comfortably, especially dress clothes. I am at an age now where...reactions1comment
Remembering My Spinal Fusion SurgeryWhen I was younger, I had a 90-degree curve in my spine due to scoliosis from spinal muscular atrophy (SMA). My torso...reactionscomments
Forced Poverty in the Disability CommunityFrom an early age, individuals with disabilities face a unique set of financial challenges. For me, these challenges began at 16, a...reactionscomments
Buying My First HomeAfter almost 2 years of searching and being outbid, my dream of becoming a homeowner has come to fruition. I would imagine...reactionscomments
Coping as a Young Adult With SMAWe asked a couple of our young Health Leaders, Kellie and Jennifer, about the transition from their teenage years to adulthood, how...reactions6comments
Challenges of SMA and Its ProgressionLiving with a chronic condition like spinal muscular atrophy (SMA) can have significant social and emotional impacts on individuals and their families...reactions1comment
Can Someone Really Predict Life Expectancy?I was about 4 years old when my parents became concerned about my physical well-being. My younger brother was becoming stronger than...reactionscomments
Speech Therapy for Children with SMAI am a speech pathologist. My daughter had spinal muscular atrophy. One of my daughter’s needs was speech therapy services. Since I...reactionscomments
Letting Go of a PCALike any other job in this world, being someone’s personal care assistant just isn’t for everyone. But unlike every other job, this...reactions4comments
Mixing Advocacy With Travel in Washington, DCGuess what I did? I took a trip to Washington, D.C., to advocate for a cure for spinal muscular atrophy (SMA) on...reactionscomments
Disability and AbuseBy definition, abuse is something that inflicts pain or emotional distress on a vulnerable person through verbal or nonverbal acts. Abuse thrives...reactionscomments
The Bully In My MindFor me, personally, the smallest things are the scariest. I know that you just have to do it, as they say, but...reactions4comments
An Open Letter To My Mom, My CaregiverAs Mother’s Day approaches, I find myself reflecting on all the things my mom has done for me since I was diagnosed...reactions2comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
