The Misery of Accessible House HuntingSearching for a dream home or apartment is a daunting task and even more so for a person with a disability. There...reactions1comment
Coming Up With A Treatment PlanRecently this topic was suggested to me and to be honest, I have sat with my feelings on this for quite some...reactions2comments
My COVID ExperienceYou’ve heard the saying “the fear of the unknown.” I would not consider myself a fearFULL or pessimistic person however when COVID...reactionscomments
Stop Surviving and Start LivingRecently I just got over my second respiratory infection in two months. Thankfully I hadn’t been sick or needed an antibiotic in...reactions2comments
Finding the Correct Treatment JourneyWhen we are given a health issue, we face a new journey. When it’s our own personal journey, we do our best...reactions1comment
Adapting MakeupMakeup for me has always been something I give myself as a gift of self-care. I enjoy doing my makeup every day and...reactionscomments
SMA and Snow Days I don’t think I am alone when I say that winter is just not our favorite season. I tend to run cold...reactionscomments
Managing Fear in SMAOne of the topics I see covered a lot by parents of young people with SMA is the fear that they are experiencing...reactions3comments
Adaptive Equipment for Jessie: Providing Medical, Educational, and Social SupportBack in the 1970s, we found out that our daughter, Jessie, had spinal muscular atrophy [SMA]. A respected doctor told us that...reactionscomments
Trying to Experience an Inaccessible WorldI have so many stories to tell regarding this topic. I have talked about how lucky I consider myself in previous articles...reactions3comments
Rare In America: What's That?The "In America survey" is now closed. A diagnosis of spinal muscular atrophy (SMA) can be isolating, bringing many questions to the...reactionscomments
Navigating My Treatment Journey as an Adult with SMA – 5 StepsMy journey to getting treatment was not a conventional one. I had not been seen for my SMA in over 13 years...reactions1comment
My Top Travel TipsThe holidays are upon us. If you’re like me, and you are going to be traveling to other people’s homes for the...reactions1comment
My Accessible Home AdventureOn Valentine’s Day in 2019, my life was pushed into a tailspin. I was a full-time college student and I was renting a...reactions1comment
Turning 30As his parents, we have walked with him through childhood, adolescence, young adult, and now moving into the next decade with all...reactions1comment
SMA Awareness Month Giveaway Terms & ConditionsOfficial Rules, Terms and Conditions for the SMA Awareness Month 2022 Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES...reactionscomments
Let’s Make Flying More AccessibleEverybody deserves to get away and chill by the pool or visit their dream destination. But traveling with a disability can be...reactions3comments
The Power of ResearchFor those of us living with SMA, these are exciting times when it comes to research and FDA-approved treatments. I’ve always been...reactionscomments
How to Make Working At Home WorkIf we have learned anything through the pandemic, it's that most jobs can be done at home. The world has adjusted to...reactionscomments
Dealing with SMA in the Age of Social MediaThis article is more for parents of younger children who have SMA. There are a lot of Facebook groups revolving around SMA...reactions4comments
