Challenges of SMA and Its Progression...Additionally, early intervention, medical treatments, and comprehensive care can improve outcomes and enhance the overall quality of life for those living... By Allie Williams2 min readBookmark for laterReactions0reactionsComments1 comments
Sibling Love...This is truly sibling love and a necessary blessing for Mike’s quality of life.... By Maryalice Noon2 min readBookmark for laterReactions0reactionsComments0 comments
Treatment Expectations for Adults with SMA...They also need access to mental health services and palliative care to maintain their quality of life.... By Editorial Team 2 min readBookmark for later
Severe neck weakness ...It is affecting my quality of life hugely, so I was wondering if anyone has experienced anything similar or can...Reactions0reactionsComments7 repliesComplicationsSurgerySymptoms
Fears of the BiPAP...But ultimately, it has allowed me to take better care of my lungs and improve my overall quality of life.... By Megan DeJarnett3 min readBookmark for laterReactions0reactionsComments1 comments
Navigating Kidney Health with Spinal Muscular Atrophy...By doing so, we not only manage SMA more effectively but also improve our overall quality of life.... By Megan DeJarnett2 min readBookmark for laterReactions0reactionsComments0 comments
Children and Spinal Muscular Atrophy...Coping with the impact of SMA is important to maintain mental health and quality of life.... By Editorial Team 3 min readBookmark for later
A Conversation Between Myself and Heaven...So, is this the quality of life you wish for your daughter, Marc?... By Marc Mitnick3 min readBookmark for laterReactions0reactionsComments1 comments
Type 1 Werdnig-Hoffmann...Treatment for type 1 SMA usually involves respiratory support to improve quality of life.... By Editorial Team 3 min readBookmark for later
Preparing Emotionally with a Child with Spinal Muscular Atrophy...What kind of quality of life did she now have, being bedbound? Is this fair to her? We went back and forth... By Marc Mitnick3 min readBookmark for laterReactions0reactionsComments0 comments
SMA Treatment Advancements...My treatment center has monitored a number of measurements, including Quality of Life scores and motor function scores.... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
The Benefits of Opening an ABLE Account..., or enhancing their quality of life.... By Megan DeJarnett3 min readBookmark for laterReactions0reactionsComments0 comments
Nutrition and Spinal Muscular Atrophy...The goal is to maintain a diet that reduces illness while maximizing growth and quality of life.... By Editorial Team 3 min readBookmark for later
Complication Of Spinal Muscular Atrophy: Pain...Increased pain worsens quality of life, mood, mobility, and social functioning in children with SMA.... By Editorial Team 3 min readBookmark for later
Why Advocacy Is Important to the SMA Community...This has the potential to lead to more funding for research, better support services, and improved quality of life for those affected.... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
What Is a Tracheostomy?...Doctors can discuss options based on the child’s clinical status, prognosis, and quality of life.... By Editorial Team 3 min readBookmark for later
My Journey With Evrysdi...Finally, my overall quality of life feels different in a good way. As I mentioned, my SMA was quickly declining before... By Kellie Cusack4 min readBookmark for laterReactions0reactionsComments0 comments
Why Are Car Repairs So Expensive?...It is important to note that the $2,000 limit can significantly impede one's quality of life.... By Allie Williams3 min readBookmark for laterReactions0reactionsComments1 comments
My Battle With Chronic Pain and SMA...Opioids, while not a one-size-fits-all solution, have been my lifeline, significantly enhancing my quality of life.... By Jennifer Greer4 min readBookmark for laterReactions0reactionsComments1 comments