Search

...Some of the Muppet-like characters were in a wheelchair, or were speech, visually and/or hearing impaired, etc....

...Dealing with the physical aspects of spinal muscular atrophy sometimes feels like a small part of the disease....

...On top of that, my top row of teeth was protruding forward....

...Because of this, a lot of home modifications are left to you....

...To keep a job at home and avoid the 9-5 life, I’ve found some things that work well for me....

...It turns what could've been an embarrassing memory into a funny story you can share, kind of like, "Remember that time I...

...So, I stick to the unofficial monitor of how my pants fit and how much energy I have to decide

...I wish that I knew this when I was younger and took care of my body better then....

...But like any crime, I think there are varying degrees of offenses....

...Caring for a loved one can often keep you separated from the other people in your life....

...I feel comfortable knowing thousands of other advocates like me are working hard to see a variety of health conditions' needs prioritized....

...I had SMA type 2 and became a mother at the age of 25. I then became a mother for

...Of course, I understand that any treatment at my age is just for maintenance, so I don’t lose more ability

...Driving can get stressful if your only goal is to get from point A to B but the best part of a...

...Another issue is finding the right combination of waist size and pant length....

...It includes knowing how to: For example, someone with good health literacy can understand the benefits and side effects of a drug, schedule...

...We want to raise awareness that an SMA diagnosis does not define a person — life can still be enjoyed, and new accessibility and...

...I know she’s aware of my condition, but just making sure of a few things....

...I would gauge how I would carry this conversation based on what I knew of the client but typically whatever I would say...