Forced Poverty in the Disability CommunityFrom an early age, individuals with disabilities face a unique set of financial challenges. For me, these challenges began at 16, a...reactionscomments
Buying My First HomeAfter almost 2 years of searching and being outbid, my dream of becoming a homeowner has come to fruition. I would imagine...reactionscomments
Challenges of SMA and Its ProgressionLiving with a chronic condition like spinal muscular atrophy (SMA) can have significant social and emotional impacts on individuals and their families...reactions1comment
Can Someone Really Predict Life Expectancy?I was about 4 years old when my parents became concerned about my physical well-being. My younger brother was becoming stronger than...reactionscomments
Speech Therapy for Children with SMAI am a speech pathologist. My daughter had spinal muscular atrophy. One of my daughter’s needs was speech therapy services. Since I...reactionscomments
Letting Go of a PCALike any other job in this world, being someone’s personal care assistant just isn’t for everyone. But unlike every other job, this...reactions4comments
Mixing Advocacy With Travel in Washington, DCGuess what I did? I took a trip to Washington, D.C., to advocate for a cure for spinal muscular atrophy (SMA) on...reactionscomments
Disability and AbuseBy definition, abuse is something that inflicts pain or emotional distress on a vulnerable person through verbal or nonverbal acts. Abuse thrives...reactionscomments
The Bully In My MindFor me, personally, the smallest things are the scariest. I know that you just have to do it, as they say, but...reactions4comments
An Open Letter To My Mom, My CaregiverAs Mother’s Day approaches, I find myself reflecting on all the things my mom has done for me since I was diagnosed...reactions2comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
Genetic CounselingI was born in the 1970s and, while genetic counseling started in 1969, it wasn’t what it is today. There was no...reactions1comment
SpinalMuscularAtrophy.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on SPINALMUSCULARATROPHY.NET, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
Accessibility EtiquetteWe asked our Health Leaders who live with spinal muscular atrophy: "What needs to make it into an 'accessibility etiquette' guide? What...reactionscomments
Getting Back In the Pool After Surgery With SMAHaving spinal muscular atrophy (SMA) means relying on a powered wheelchair for mobility. While my wheelchairs and assistive gear offer a sense...reactionscomments
Art and SMA12 artworks in 7 months. In Nelson Mandela's words, “It always seems impossible until it’s done”. Who would’ve thought I managed to...reactions1comment
Embracing Freedom: Swimming with SMAAs someone with spinal muscular atrophy, swimming has always held a special place in my heart. Ever since I was a child...reactionscomments
Why Are Car Repairs So Expensive?Maintaining a reliable vehicle is vital for individuals living with spinal muscular atrophy (SMA) to maintain their independence and overall well-being. Unfortunately...reactions1comment
Social Media and Mental HealthSocial media can be a game changing tool for anyone, especially people in the SMA and disabled communities. I've chatted about this...reactions4comments
Getting Out Of My HeadI know that I am not alone in this feeling. We ‘SMAers’ are very observant wallflowers. Meaning that we see everything. For...reactions2comments
