New Year - New Me?I never liked the phrase "new year, new me." It made me feel like everything I did last year was thrown away...reactionscomments
Honest Look at a Parent’s HeartbreakThe emotions that each parent truly lives with from that first day our child is given a diagnosis of a neuromuscular disease...reactionscomments
CourageSometimes I find my confidence and insecurity going hand in hand. I know this might sound strange, but it's true. I don't...reactionscomments
Why Advocacy Is Important to the SMA CommunityFor families and people living with spinal muscular atrophy (SMA), health advocacy is a vital part of navigating the condition and improving...reactionscomments
Having Able-Bodied Siblings As Someone With SMAI am the youngest of my siblings at twenty nine years old. I have two step-brothers and one step-sister. Due to genetics...reactions2comments
Becoming Okay With My AnxietyIn middle school, I gained anxiety and was in pure denial, especially when it came to getting help, I was in that...reactionscomments
The Advocacy Issues That Matter To MeI feel like I've mentioned my advocacy here and there, and I'm sure we all know the reason behind why it's important;...reactionscomments
Personal GrowthBeing born with a genetic disorder like spinal muscular atrophy forces us to adapt to a world that wasn’t built for disabled...reactions2comments
Fears Of Flu and FeversAs summer eventually becomes fall and winter, bringing with it an increased risk of illness, those of us living with spinal muscular...reactionscomments
Discrimination SituationAround five years ago, I had a throbbing toothache. I had no idea what was wrong other than my face hurt and...reactionscomments
Unique Accessible Seating During a Fun Weekend TripHello everyone! Hope all is well! Today, I wanted to talk about a fun and interesting accessible seating option. So my family...reactionscomments
Hug Me Not My Wheelchair PleaseI’ve been driving a power wheelchair since the age of two. My wheelchair has been a part of my life and a...reactionscomments
Navigating Kidney Health with Spinal Muscular AtrophyAs a 34-year-old individual living with spinal muscular atrophy (SMA), my journey through the healthcare system has been extensive and enlightening. Regular...reactionscomments
How To Spend a Summer With SMASummer is finally here and I couldn’t be more excited for all the warm weather and thunderstorms to come. With summer here...reactionscomments
Using Your Disability to Impact LivesThe beauty of sharing our stories lies not just in the telling, but also in the impact they can have on others...reactions1comment
Lack of Accessible UbersIn May, I was out to dinner with my girlfriend Suzanne and a few of my old colleagues. After dinner, Suzanne wanted...reactionscomments
My Ewok CompanionIn the vast and colorful world of dog adoption, there are countless tales of furry companions who found their forever homes. These...reactions1comment
How Alexa Became One of My Disability Must-HavesI was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you...reactions2comments
Struggling to Find the Right FitIt can be frustrating shopping for clothes that fit my body comfortably, especially dress clothes. I am at an age now where...reactions1comment
Remembering My Spinal Fusion SurgeryWhen I was younger, I had a 90-degree curve in my spine due to scoliosis from spinal muscular atrophy (SMA). My torso...reactionscomments
