Building a Wheelchair-Accessible Home With SMAAfter years of searching, I finally found a home builder for a new development that was more than willing to accommodate my...reactions10comments
Talking to Your Child About SMAWhen your child has a long-term illness like spinal muscular atrophy (SMA), it is normal for them to have questions. They may...reactionscomments
A Letter to My Parents: WE are Living with SMAParenting isn’t a job for the faint of heart. I live in a world full of adults living with disabilities, and I...reactions4comments
Mikes New Trial For The Family - A Cancer DiagnosisIt’s now the start of a new college school year. As always, we all load up the car and take Mike back...reactionscomments
Designing New Locker RoomsThis is part 3 of an ongoing story. If you haven’t been following along you might want to start with Part 1...reactionscomments
Working with SMA I have mentioned in a previous article that I have worked full time. After graduating college, I had a hard time finding...reactionscomments
Your Story MattersAll of us have a unique story to share with the world. And whether it’s by writing a book, starting a blog...reactionscomments
The Number One Beach Accessory You Might Not Know AboutThe beach for me as someone with spinal muscular atrophy can be a difficult place. I often feel most disabled in this environment...reactionscomments
Monitoring Calories and Protein ConsumptionAfter getting my g-tube placed in 2017, food became more of a luxury than a necessity for nutrition. While my feeding tube...reactionscomments
Sports and Recreation: Finding the Right FitDifferent types of SMA come with different physical abilities. Some people have a mild form of the illness and can walk. Others...reactionscomments
Tips on Dating with a DisabilityI know every person‘s story is different, but the common denominator is the desire to be loved in most people's lives. As...reactionscomments
Feeling Left Behind at TimesWith most of my posts, I try to offer some kind of helpful information from my past experiences. But sometimes I feel...reactions1comment
Finding HopeIt broke my heart when one of my good friends' daughters was diagnosed with SMA. The diagnosis was tentative, as he was...reactionscomments
The College YearsThe time came to visit some college campuses. Mike really wanted to go to school in Florida, but the realization of his...reactionscomments
Building Design and Accessible BathroomsWe left off when I was joining the board of directors at my local YMCA. If you haven’t read part one of...reactionscomments
Playing the Evrysdi Long GameGrowing up, it always seemed like there was never going to be a treatment for SMA aside from the normal physical therapy...reactions1comment
Becoming My Boyfriend’s Full Time SMA Caretaker I am the oldest of 5. I had one sister and 3 brothers. Growing up in my family I was always by...reactionscomments
Accessible Bathrooms: Expressing my ConcernsLet’s talk about wheelchair-accessible bathrooms and stalls. I just had an “incident” recently at my local YMCA. I have been a member...reactionscomments
Running a Successful Business From Your PhoneHave you ever wondered, “Am I capable of being a business owner?” Living with SMA, we run into the constant challenges of...reactions1comment
Introduction to MDA and My Son's Diagnosis JourneyAfter waiting months for the results of all those tests completed at St. Christopher’s Hospital, we went back to see the neurologist...reactions1comment
