School Accommodations and SMA...Children with spinal muscular atrophy (SMA) often succeed in school. However, certain physical limitations may prevent them from participating in all academic...
SMA Testing And Diagnosis...Spinal muscular atrophy (SMA) is an inherited disorder that can be diagnosed using a genetic test. Genetic tests use a blood sample...
SMA Assistive Equipment...Muscle weakness because of spinal muscular atrophy (SMA) can make daily tasks difficult. How motor function and independence are affected depends on...
My Partner Has SMA...Partners or spouses may be the main caregiver for adults with spinal muscular atrophy (SMA). Partners may need to help with daily...
Mental Health Impact...Having a chronic condition like spinal muscular atrophy (SMA) can take a toll on mental health. Lack of control and fear of...
Emerging Drugs...People with spinal muscular atrophy (SMA) have mutated SMN1 genes. This leads to low levels of the “survival of motor neuron” (SMN)...
My Child Has SMA...Parents of children with spinal muscular atrophy (SMA) are usually their child’s main caregivers. With support from doctors, parents become the experts...
Symptoms and Complications of SMA By Type...Recognizing the symptoms of spinal muscular atrophy (SMA) early can help doctors diagnose and start treatment as soon as possible. This is...
Palliative Care...Palliative care is an important part of treatment for spinal muscular atrophy (SMA). This refers to therapies that focus on comfort more...
Living With SMA...People with spinal muscular atrophy (SMA) face many challenges throughout life. Physical symptoms can lead to emotional and social challenges for children...
Support Groups for SMA...Talking to other people living with spinal muscular atrophy (SMA) is a great way to find support. Support groups can provide advice...
Spinal Muscular Atrophy Research...Understanding of spinal muscular atrophy (SMA) has come a long way, especially in the past few decades. Researchers in the 1990s found...
My Sibling Has SMA...Siblings of people with spinal muscular atrophy (SMA) often help their parents with caregiving. This can impact your life in positive and...
Caregiver Corner...Caregiving can be a fulfilling experience that improves your relationship with loved ones. However, it is often a full-time responsibility that affects...
Complementary and Alternative Medicine...Treatment of spinal muscular atrophy (SMA) should focus on therapies with proven clinical benefit. This includes disease-modifying treatments that have been approved...
What Is a Tracheostomy?...Weak chest muscles can make breathing difficult for children with spinal muscular atrophy (SMA). This is because their lungs may not fully...
Physical and Occupational Therapy for Spinal Muscular Atrophy...Muscle weakness is the most obvious symptom of spinal muscular atrophy (SMA). It varies for every person, depending on disease severity. How...
Coping with SMA Diagnosis...Getting diagnosed with any chronic illness is an overwhelming experience. In spinal muscular atrophy (SMA), diagnosis usually happens at birth or during...
Other Diagnostic Tests Used in SMA...Spinal muscular atrophy (SMA) is caused by problems with nerve cells in the spine that control muscles. Tests for muscle health and...
Adults and Spinal Muscular Atrophy...Adults with spinal muscular atrophy (SMA) have the same desire to live and work independently as everyone else. Stereotypes about disabilities often...