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...Having a chronic condition like spinal muscular atrophy (SMA) can take a toll on mental health. Lack of control and fear of...

...People with spinal muscular atrophy (SMA) have mutated SMN1 genes. This leads to low levels of the “survival of motor neuron” (SMN)...

...Parents of children with spinal muscular atrophy (SMA) are usually their child’s main caregivers. With support from doctors, parents become the experts...

...Recognizing the symptoms of spinal muscular atrophy (SMA) early can help doctors diagnose and start treatment as soon as possible. This is...

...Palliative care is an important part of treatment for spinal muscular atrophy (SMA). This refers to therapies that focus on comfort more...

...People with spinal muscular atrophy (SMA) face many challenges throughout life. Physical symptoms can lead to emotional and social challenges for children...

...Talking to other people living with spinal muscular atrophy (SMA) is a great way to find support. Support groups can provide advice...

...Understanding of spinal muscular atrophy (SMA) has come a long way, especially in the past few decades. Researchers in the 1990s found...

...Siblings of people with spinal muscular atrophy (SMA) often help their parents with caregiving. This can impact your life in positive and...

...Caregiving can be a fulfilling experience that improves your relationship with loved ones. However, it is often a full-time responsibility that affects...

...Treatment of spinal muscular atrophy (SMA) should focus on therapies with proven clinical benefit. This includes disease-modifying treatments that have been approved...

...Weak chest muscles can make breathing difficult for children with spinal muscular atrophy (SMA). This is because their lungs may not fully...

...Muscle weakness is the most obvious symptom of spinal muscular atrophy (SMA). It varies for every person, depending on disease severity. How...

...Getting diagnosed with any chronic illness is an overwhelming experience. In spinal muscular atrophy (SMA), diagnosis usually happens at birth or during...

...Spinal muscular atrophy (SMA) is caused by problems with nerve cells in the spine that control muscles. Tests for muscle health and...

...Adults with spinal muscular atrophy (SMA) have the same desire to live and work independently as everyone else. Stereotypes about disabilities often...

...People with spinal muscular atrophy (SMA) may have difficulty swallowing and other feeding problems. This can lead to undernutrition, which can make...

...In 2016, Spinraza (nusinersen) became the first drug approved by the US Food and Drug Administration (FDA) to treat children and adults...

...Having spinal muscular atrophy (SMA) does not mean it is impossible to date or have sex. Adults with SMA still have happy...

...Coughing is an important way to clear mucus and other secretions from our airways. This helps prevent the airways from getting blocked...