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...Chaz was previously a health leader on SpinalMuscularAtrophy.net. Chaz Hayden grew up in New Jersey and was diagnosed with spinal muscular atrophy...

...Families of children with spinal muscular atrophy (SMA) often choose to modify their home. These changes can help meet children’s specific needs...

...A common misconception is that spinal muscular atrophy (SMA) only affects children. However, adults make up a large portion of people living...

...Children with spinal muscular atrophy (SMA) can enjoy many of the same recreational activities as their peers. Exercise and recreation are important...

...Clinical trials for spinal muscular atrophy (SMA) help doctors understand more about the disease. Information from clinical trials helps develop new treatments...

...Caregiving for a loved one with spinal muscular atrophy (SMA) can be an emotional rollercoaster. It is normal to feel shocked or...

...People with spinal muscular atrophy (SMA) often face high healthcare costs. These costs usually come from hospital visits, medical equipment, and prescription...

...Mike lives in the suburbs of Philadelphia, PA. He was first diagnosed with spinal muscular atrophy type 3 in 1989, when he...

...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with spinal muscular atrophy...

...Adults with spinal muscular atrophy (SMA) may have lower mobility because of progressive muscle weakness. This can make it harder to carry...

...A common concern for adults with spinal muscular atrophy (SMA) is a loss of independence. As muscle weakness worsens over time, adults...

...Spinal muscular atrophy (SMA) is a long-term progressive disease that causes muscle weakness. This affects each child with SMA differently. Children often...

...Most treatments for spinal muscular atrophy (SMA) are supportive techniques. These are therapies that may delay or prevent complications and improve quality...

...Proper nutrition is important for everyone, but especially for people with spinal muscular atrophy (SMA). Many people with SMA have low height...

...Children with spinal muscular atrophy (SMA) often succeed in school. However, certain physical limitations may prevent them from participating in all academic...

...Spinal muscular atrophy (SMA) is an inherited disorder that can be diagnosed using a genetic test. Genetic tests use a blood sample...

...Muscle weakness because of spinal muscular atrophy (SMA) can make daily tasks difficult. How motor function and independence are affected depends on...

...Partners or spouses may be the main caregiver for adults with spinal muscular atrophy (SMA). Partners may need to help with daily...