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...Suzanne lives in the suburbs of Philadelphia, PA. She graduated from Tulane University with a degree in History. She has a 9 year old daughter, Ava. In August of 2015...

...Chaz was previously a health leader on SpinalMuscularAtrophy.net. Chaz Hayden grew up in New Jersey and was diagnosed with spinal muscular atrophy when he was three months old. Doctors told...

...Families of children with spinal muscular atrophy (SMA) often choose to modify their home. These changes can help meet children’s specific needs by improving safety, accessibility, and independence. Home modifications...

...A common misconception is that spinal muscular atrophy (SMA) only affects children. However, adults make up a large portion of people living with SMA. Even still, most of the research...

...Children with spinal muscular atrophy (SMA) can enjoy many of the same recreational activities as their peers. Exercise and recreation are important for children with SMA to maintain range of...

...Clinical trials for spinal muscular atrophy (SMA) help doctors understand more about the disease. Information from clinical trials helps develop new treatments and understand how to use them. Participating in...

...Caregiving for a loved one with spinal muscular atrophy (SMA) can be an emotional rollercoaster. It is normal to feel shocked or sad when a family member is diagnosed with...

...People with spinal muscular atrophy (SMA) often face high healthcare costs. These costs usually come from hospital visits, medical equipment, and prescription drugs. Healthcare in the United States can be...

...Mike lives in the suburbs of Philadelphia, PA. He was first diagnosed with spinal muscular atrophy type 3 in 1989, when he was 12 years old. He was ambulatory all...

...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with spinal muscular atrophy (SMA) every day, SpinalMuscularAtrophy.net brings you frequent articles, points of...

...Adults with spinal muscular atrophy (SMA) may have lower mobility because of progressive muscle weakness. This can make it harder to carry out daily tasks. The level of motor functioning...

...A common concern for adults with spinal muscular atrophy (SMA) is a loss of independence. As muscle weakness worsens over time, adults with SMA may lose some physical mobility. This...

...Spinal muscular atrophy (SMA) is a long-term progressive disease that causes muscle weakness. This affects each child with SMA differently. Children often have physical limitations, which may require accommodations in...

...Most treatments for spinal muscular atrophy (SMA) are supportive techniques. These are therapies that may delay or prevent complications and improve quality of life. There are also disease-modifying drugs approved...

...Proper nutrition is important for everyone, but especially for people with spinal muscular atrophy (SMA). Many people with SMA have low height and weight because of poor nutrient intake. Difficulty...

...Children with spinal muscular atrophy (SMA) often succeed in school. However, certain physical limitations may prevent them from participating in all academic activities. Accommodations in the school setting can help...

...Spinal muscular atrophy (SMA) is an inherited disorder that can be diagnosed using a genetic test. Genetic tests use a blood sample to identify alterations in a certain gene. Our...

...Muscle weakness because of spinal muscular atrophy (SMA) can make daily tasks difficult. How motor function and independence are affected depends on disease severity. Treatments and therapy aim to reduce...