Ainaa Farhanah...is a very active young artist from Malaysia. Her passion for arts since childhood is depicted in all her designs and paintings...
Maryalice Noon...Maryalice was previously a health leader on SpinalMuscularAtrophy.net. Maryalice and her husband Dennis raised 3 children: Mike, Dan, and Ali. Their oldest...
Talking to an Employer About SMA...Talking to an employer about spinal muscular atrophy (SMA) can be scary. But many people find that open communication with their employer...reactionscomments
Suzanne Cutler...Suzanne lives in the suburbs of Philadelphia, PA. She graduated from Tulane University with a degree in History. She has a 9...
The Journey Begins...I am the parent of a wonderful son who lives with SMA. What I’ve learned is that when you have a loved...reactionscomments
Coping With Your Child’s SMA Diagnosis...A child’s diagnosis of spinal muscular atrophy (SMA) can be a life-changing event for parents. Parents say they feel a range of...reactions1comment
Chaz Hayden...Chaz was previously a health leader on SpinalMuscularAtrophy.net. Chaz Hayden grew up in New Jersey and was diagnosed with spinal muscular atrophy...
Home Accessibility...Families of children with spinal muscular atrophy (SMA) often choose to modify their home. These changes can help meet children’s specific needs...
Treatment Expectations for Adults with SMA...A common misconception is that spinal muscular atrophy (SMA) only affects children. However, adults make up a large portion of people living...
Sports and Recreation...Children with spinal muscular atrophy (SMA) can enjoy many of the same recreational activities as their peers. Exercise and recreation are important...
SMA Clinical Trials...Clinical trials for spinal muscular atrophy (SMA) help doctors understand more about the disease. Information from clinical trials helps develop new treatments...
Coping and Grief with SMA...Caregiving for a loved one with spinal muscular atrophy (SMA) can be an emotional rollercoaster. It is normal to feel shocked or...
SMA and Health Insurance...People with spinal muscular atrophy (SMA) often face high healthcare costs. These costs usually come from hospital visits, medical equipment, and prescription...
Mike Noon...Mike lives in the suburbs of Philadelphia, PA. He was first diagnosed with spinal muscular atrophy type 3 in 1989, when he...
Community Health Leaders...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with spinal muscular atrophy...
Assistive Equipment: Adults...Adults with spinal muscular atrophy (SMA) may have lower mobility because of progressive muscle weakness. This can make it harder to carry...
Independent Living With SMA...A common concern for adults with spinal muscular atrophy (SMA) is a loss of independence. As muscle weakness worsens over time, adults...
Children and Spinal Muscular Atrophy...Spinal muscular atrophy (SMA) is a long-term progressive disease that causes muscle weakness. This affects each child with SMA differently. Children often...
Treatments for Spinal Muscular Atrophy...Most treatments for spinal muscular atrophy (SMA) are supportive techniques. These are therapies that may delay or prevent complications and improve quality...
Nutrition and Spinal Muscular Atrophy...Proper nutrition is important for everyone, but especially for people with spinal muscular atrophy (SMA). Many people with SMA have low height...
