Navigating IEPs, 504 Plans, and School Accommodations for SMA...The United States government has many laws that protect rights to education for children with disabilities. Spinal muscular atrophy (SMA) is considered...reactions1comment
SMA and AI: How Are You Using It for Your Health?...Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactionscomments
Art and SMA...12 artworks in 7 months. In Nelson Mandela's words, “It always seems impossible until it’s done”. Who would’ve thought I managed to...reactions1comment
How Public Accessibility Unlocks Independence for People with Disabilities...Accessibility and independence go hand-in-hand but often times people do not realize that they rely on each other. I have spoken with...reactions7comments
Recognize and Prevent Abuse of People With Disabilities...By definition, abuse is something that inflicts pain or emotional distress on a vulnerable person through verbal or nonverbal acts. Abuse thrives...reactionscomments
Navigating the Dating Scene When You Have SMA...The dating landscape with social media and dating apps is not always an ideal way to meet others when you have a...reactions2comments
When My Wheelchair Stopped Feeling Like Home...For many people with spinal muscular atrophy (SMA), a wheelchair is more than a piece of equipment. It’s an extension of the...reactionscomments
How to Cope When Your Child Is Diagnosed With SMA...A child’s diagnosis of spinal muscular atrophy (SMA) can be a life-changing event for parents. Parents say they feel a range of...reactions2comments
My Son's Own Apartment ...When we moved into our new home in 1988 we had an apartment included for Grandma. In 2000 she decided to move...reactionscomments
Essential Items for Managing Daily Life With SMA...Living with spinal muscular atrophy takes a lot of preparation and planning ahead. We reached out to our team of advocates here...reactions3comments
What to Consider When Choosing Between Spinraza and Evrysdi...If you are taking Spinraza® (nusinersen) for spinal muscular atrophy (SMA), then you may be curious about Evrysdi® (risdiplam). Both therapies are...reactionscomments
Non-Invasive Breathing Support (NIV)...People with spinal muscular atrophy (SMA) often have difficulty breathing because of chest muscle weakness. Breathing support can make sure they get...
How I Protect My Physical and Mental Health with SMA...Living with spinal muscular atrophy (SMA) causes a toll on your mental and physical health on a daily basis. You learn to live...reactionscomments
My Experience with Wheelchair Joystick Grips...Living with SMA, it often feels like we’re slowly losing strength or independence daily. Of course, now with the new medications that...reactions1comment
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who...
Summertime With SMA...Good old summertime! How do you manage the summer with your SMA? Do you embrace the hot summer weather or prefer to...reactionscomments
Understanding Mental Health and Mental Health Resources...Living with a chronic illness is about more than just physical symptoms. It also impacts how you think, feel, and act. For...
What an Interabled Relationship is Really Like: A Perspective on SMA and Love...Love knows no boundaries, and when it comes to interabled relationships, it is no different. Mike and I are in an interabled...reactionscomments
Samantha Przybylski...Samantha Przybylski is a 38-year-old mother and fiancé, living in Wisconsin. She was diagnosed with spinal muscular atrophy type 3 at the...
Community Health Leaders...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with spinal muscular atrophy...
