How I Protect My Physical and Mental Health with SMA...Living with spinal muscular atrophy (SMA) causes a toll on your mental and physical health on a daily basis. You learn to live...reactionscomments
My Experience with Wheelchair Joystick Grips...Living with SMA, it often feels like we’re slowly losing strength or independence daily. Of course, now with the new medications that...reactions1comment
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who...
Summertime With SMA...Good old summertime! How do you manage the summer with your SMA? Do you embrace the hot summer weather or prefer to...reactionscomments
Understanding Mental Health and Mental Health Resources...Living with a chronic illness is about more than just physical symptoms. It also impacts how you think, feel, and act. For...
What an Interabled Relationship is Really Like: A Perspective on SMA and Love...Love knows no boundaries, and when it comes to interabled relationships, it is no different. Mike and I are in an interabled...reactionscomments
Samantha Przybylski...Samantha Przybylski is a 38-year-old mother and fiancé, living in Wisconsin. She was diagnosed with spinal muscular atrophy type 3 at the...
Community Health Leaders...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with spinal muscular atrophy...
A Guide to Disclosing SMA to Your Employer...Talking to an employer about spinal muscular atrophy (SMA) can be scary. But many people find that open communication with their employer...reactionscomments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent...
Keeping Positive During Life’s Transitions...Our lives will be constantly changing. This is true for everyone. Whether you are disabled or not. Life never stays stagnant so...reactionscomments
My Diagnosis Story: Living With Spinal Muscular Atrophy...It all started here Mom was wondering why a bubbly little girl who can already speak at 10 months old cannot crawl...reactions1comment
Allie Williams...Allie Williams is a 45-year-old woman with spinal muscular atrophy type 2. She was diagnosed at age 18 months, and her parents...
Coping as a Young Adult With SMA...We asked a couple of our young Health Leaders, Kellie and Jennifer, about the transition from their teenage years to adulthood, how...reactions6comments
Coping with Anxiety and Helplessness with SMA When Alone...I was having a panic attack about being alone. As of writing this, I got a facial yesterday. My parents decided to...reactions7comments
What Does It Mean to Be a Silent Carrier for SMA?...Spinal muscular atrophy (SMA) is a rare genetic disorder passed from parents to their children. SMA affects the spinal nerves by causing...reactionscomments
Dealing with SMA in the Age of Social Media...This article is more for parents of younger children who have SMA. There are a lot of Facebook groups revolving around SMA...reactions4comments
My Go-To Tips for Dealing With Low Energy with SMA...I often struggle with low energy, year-round. I'd like to share some things that have helped me and hopefully will help you...reactions6comments
4 Fun and Accessible Date Ideas for Interabled Couples...I’m a firm believer that dating your spouse is equally as important when you’re 5 or 10 years into marriage than it...reactionscomments
A Parent's Long Journey to Finding SMA Treatment...When we are given a health issue, we face a new journey. When it’s our own personal journey, we do our best...reactions1comment
