Asking For Help With SMA: Grocery Shopping...Living with spinal muscular atrophy (SMA) Type 2 means navigating a world where asking for help is a constant necessity. My body...reactions2comments
My Favorite Assistive Devices for Living with SMA...With spinal muscular atrophy, you know the easier something is, the better off you are. When you struggle to do the silliest...reactions5comments
Wheelchair Recommendations and Favorite Features...As someone with spinal muscular atrophy, I understand the importance of selecting the correct wheelchair. Not only is it a huge financial...reactions1comment
Tips for a Successful Night Out as a Wheelchair User...Going out can be nerve-wracking for anyone. But when you're a wheelchair user with spinal muscular atrophy, the stress can multiply. From...reactions3comments
The Ultimate SMA Gift Guide for Adults and Teens...No matter the time of year, we can always use a thoughtful gift. Here’s a guide to gifts that are accessible, thoughtful...reactions4comments
The Odd Mom Out...I had SMA type 2 and became a mother at the age of 25. I then became a mother for a second...reactionscomments
Let’s Talk About Mental Health...How do you find yourself managing your mental health on a day-to-day basis? Please join the conversation. Below are comments from SpinalMuscularAtrophy.net...reactions1comment
My Story of Coping with Constant PEG Tube Pain...Not long ago, to make a long story short, I had a bunch of GI issues. The GI team decided to give...reactions2comments
My Tips for Staying Hydrated as a Wheelchair User...Navigating life as a wheelchair user with spinal muscular atrophy has its unique set of challenges. Among those, something as seemingly simple...reactions1comment
Creative Ways to Organize Medical Equipment at Home...Growing up, I never felt embarrassed or ashamed of the extensive medical equipment that was on display in my bedroom. A BiPAP...reactions2comments
About Us...At SpinalMuscularAtrophy.net we empower patients and caregivers to take control of spinal muscular atrophy by providing a platform to learn, educate, and...
Treatments for Spinal Muscular Atrophy...Most treatments for spinal muscular atrophy (SMA) are supportive techniques. These are therapies that may delay or prevent complications and improve quality...
My Journey to Create an Accessible Gaming Setup...Recently I went on a search to find an accessible hobby that didn’t include technology or staring at a screen. I didn’t...reactions6comments
My Thoughts on Treatment - Both Good and Bad...The term that has always been used in the SMA community prior to treatment was a cure. Fight for the Cure, Cure...reactions2comments
Using Computer Assistive Technology With Spinal Muscular Atrophy...Computer assistive devices and strategies can help people with SMA communicate, maintain more independence, and potentially carry out job duties. As more...reactionscomments
Things I Wish People Knew...Today I wanted to talk about SMA (spinal muscular atrophy). Most folks out there aren’t exactly experts on it, so I want...reactions2comments
Finding Adaptive Clothing for SMA: Community Tips and Tricks...When living with spinal muscular atrophy (SMA), finding comfortable, functional, and stylish clothes can be a significant challenge. See some tips below...reactionscomments
First Grade-How My Advocacy Started...I have spinal muscular atrophy (SMA), a condition that affects my muscles and mobility. But the amazing part is that I went...reactionscomments
Rocking the Solo Life...Well, folks! It's been a wild ride – a decade of liberation from marriage and an interesting tango with spinal muscular atrophy...reactions1comment
The Frustration of "Inaccessible" Accessibility...“Come visit this awesome new restaurant,” my friends begged me. “It’s got great Yelp reviews and we’ve wanted to visit it.” “This...reactions6comments
