A Walk With Someone New...Yesterday, a friend invited me on a walk, because she is raising money by walking for a charity. We decided to walk...reactions1comment
The Dreaded "What-If's"...I’m a 44-year-old man living with spinal muscular atrophy type 3. Looking back now, I was pretty independent as a kid all...reactionscomments
How I Met Mike...One of the great things about little kids is that they have no filter. For example, when adults see someone with a...reactions1comment
Mike Noon...Mike lives in the suburbs of Philadelphia, PA. He was first diagnosed with spinal muscular atrophy type 3 in 1989, when he...
Finding the Right Caregivers...Living with a disability, I like to consider a full-contact sport. It requires your mind, body, and soul to be as healthy...reactionscomments
Subscribe...SpinalMuscularAtrophy.net is the leading community for those with spinal muscular atrophy. It's time to get the support you deserve and the information...
Coping and Grief with SMA...Caregiving for a loved one with spinal muscular atrophy (SMA) can be an emotional rollercoaster. It is normal to feel shocked or...
My Life with SMA...It all started here Mom was wondering why a bubbly little girl who can already speak at 10 months old cannot crawl...reactions1comment
Understanding Clinical Trials...A clinical trial is a type of research. Research is the process scientists use to explain how our bodies work or why...reactionscomments
Clinical Trial Participation...Clinical trials are medical studies that pose a question: Does a new treatment work better than older treatments? Each year, thousands of...reactionscomments
Coping With Your Child’s SMA Diagnosis...A child’s diagnosis of spinal muscular atrophy (SMA) can be a life-changing event for parents. Parents say they feel a range of...reactions1comment
Talking to an Employer About SMA...Talking to an employer about spinal muscular atrophy (SMA) can be scary. But many people find that open communication with their employer...reactionscomments
Suzanne Cutler...Suzanne lives in the suburbs of Philadelphia, PA. She graduated from Tulane University with a degree in History. She has a 9...
Clinical Trial Glossary...Clinical trials have a language of their own. It helps to understand the common terms used when describing a clinical trial before...reactionscomments
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