Things I Wish People Knew...Today I wanted to talk about SMA (spinal muscular atrophy). Most folks out there aren’t exactly experts on it, so I want...reactions2comments
Finding Adaptive Clothing for SMA: Community Tips and Tricks...When living with spinal muscular atrophy (SMA), finding comfortable, functional, and stylish clothes can be a significant challenge. See some tips below...reactionscomments
First Grade-How My Advocacy Started...I have spinal muscular atrophy (SMA), a condition that affects my muscles and mobility. But the amazing part is that I went...reactionscomments
Rocking the Solo Life...Well, folks! It's been a wild ride – a decade of liberation from marriage and an interesting tango with spinal muscular atrophy...reactions1comment
The Frustration of "Inaccessible" Accessibility...“Come visit this awesome new restaurant,” my friends begged me. “It’s got great Yelp reviews and we’ve wanted to visit it.” “This...reactions6comments
The Evolution of Adaptive Showering Equipment...Many people with disabilities, like spinal muscular atrophy, may struggle with self-care necessities, especially bathing/showering when access is hard. My situation was...reactions2comments
My Accessible Home Adventure With SMA...On Valentine’s Day in 2019, my life was pushed into a tailspin. I was a full-time college student and I was renting a...reactions1comment
Staying Mentally Healthy...I’m in my mid 40’s and I find it encouraging that mental health has become more out in the open. I know...reactionscomments
When Your Significant Other Becomes Your PCA...Suzanne and I met over 6 years ago. We both had an attraction to each other. Our friendship grew into a relationship...reactionscomments
Things We Learned as Parents...Mike’s brother, Dan, was a competitive runner since fourth grade and he was Dan’s biggest fan and supporter. By high school, Mike...reactions1comment
Helping Others Helps Me...Living with a disability like spinal muscular atrophy can be difficult at times. My 46 years of experience have taught me some...reactionscomments
Dealing With Guilt...Guilt can be rough to deal with. Everyone deals with guilt on some level. I’m sure my parents and siblings have dealt...reactionscomments
The Weight of Guilt: My Struggle With SMA and its Impact on Caregivers...I’ve talked about the guilt I deal with in regards to the amount of work people need to exert in order to...reactions3comments
Navigating the Pros and Cons of Owning an Accessible Van...I feel as though having a disability is a constant balancing act of freedom and cost. Owning an accessible van can be...reactions10comments
Independence and Accessibility...Accessibility and independence go hand-in-hand but often times people do not realize that they rely on each other. I have spoken with...reactions7comments
My Top Travel Tips...The holidays are upon us. If you’re like me, and you are going to be traveling to other people’s homes for the...reactions1comment
The Joy of Finding My Four-Legged Support...Life has its moments – some challenging, some joyful. As a full-time electric wheelchair user with limited arm mobility due to spinal...reactions1comment
The Frustrations of Broken Equipment...When living with a disability like spinal muscular atrophy, we heavily rely on equipment that gives us our independence. This freedom is...reactions2comments
How Expensive Is That Minivan?...I want to talk about the extra expenses for anyone who deals with a physical disability. Dealing with the physical aspects of...reactions4comments
My Journey to Becoming A Mom in a Wheelchair: Part 1...Finding the right doctor. As a little 4-year-old girl, I used to pretend I was pregnant. I would stuff a pillow up...reactionscomments
