Holiday Season Blues...The holiday season, with its festive lights and warm gatherings, often evokes a bittersweet feeling within me. Maybe it's because my birthday...reactions3comments
Venting about dating sites...I have used them off and on for years now. I really hate how they are set up. Most of them prioritize...reactions3repliesDisabilityIntimacy & RelationshipsStigma
SMA Friendly Christmas Gift Guide...As the holiday season rolls around, it’s time to find thoughtful gifts everyone will love. If you’re shopping for a teen or...reactions4comments
Overcoming Obstacles...What has been the biggest obstacle that you have overcome with SMA? What was your greatest challenge and how did you get...reactionscomments
Back Swimming...Recently my son, his brother and I went back to hydrotherapy after 1 and half years. It was an amazing experience. We...reactions2replies
Overcoming Obstacles From Painting To The Field...Navigating the challenges associated with neurodegenerative conditions has always been an arduous journey, filled with ups and downs. Living with spinal muscular...reactions1comment
FeaturedWould you be willing to share your SMA caregiving story?...We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so...reactionsrepliesCaregiving
Useful Things For Someone With SMA...With spinal muscular atrophy, you know the easier something is, the better off you are. When you struggle to do the silliest...reactions3comments
What makes a great present for you?...🎁 What would you like to receive as a disabled person? What would make your life easier? 🎁...reactions1replyAssistive Equipment
Perks of Living With SMA...Some might think living with spinal muscular atrophy (SMA) is all bad. That life is full of doom and gloom, but I...reactions4comments
Learning From a Fall: Safety Tips for Wheelchair Users...The other day, I fell out of my wheelchair. It’s not the first time this has happened, but it was definitely the...reactionscomments
Braving Surgery: My Journey with SMA and Kidney Stones...Living with spinal muscular atrophy (SMA) Type 2 brings a unique set of challenges into my everyday life, but nothing has tested...reactionscomments
Who Knew Cats Are SMA Friendly?...Throughout my childhood, dogs were a constant presence in my life. From Golden Retrievers to Yorkies and Chihuahuas, I was surrounded by...reactions3comments
Changing My BiPap Machine...From childhood onward, change has been a constant challenge for me. Every time I needed a new wheelchair or medical device, anxiety...reactionscomments
Looking forward to Winter...December is officially upon us! At the end of the year, I reflect upon it. Usually, my seasonal depression really affects me...reactionscomments
Looking For the Little Joys with SMA...Recently, I began going to see a therapist for my depression and anxiety. I was diagnosed with major manic depressive disorder. This...reactionscomments
When My Wheelchair Gets Damaged Beyond Repair...Usually, a situation like this would leave me in a very dark place. A few weeks ago, we were in a car...reactionscomments
My Favorite Accessible Gifts...I know that, overall, finding gifts can be tough, especially finding things for someone who is disabled and has specific needs, like...reactionscomments
SMA Impacts Job Hunting...Last year, I decided I wanted to begin the process of looking for a job. Up until this point, I’d never worked...reactions2comments
Financial Independence, The Food Edition...Let’s talk about financial independence. As you know from my first article here, financial freedom and independence are so hard. With Supplemental...reactionscomments
