Working With Health Aids and In-Home Assistants...Children with spinal muscular atrophy (SMA) face difficulties with daily activities at home and school. They also require around-the-clock monitoring and care to prevent complications. For many children, daily care... By Editorial Team 3 min readBookmark for later
Careers and ADA...Adults with spinal muscular atrophy (SMA) have the same career goals as other adults. Symptoms of SMA can sometimes get in the way of working. However, people with SMA still... By Editorial Team 3 min readBookmark for later
Feeding Tubes...People with spinal muscular atrophy (SMA) have muscle weakness that can lead to difficulty chewing and swallowing. If it becomes hard to get enough nutrients safely by mouth, a feeding... By Editorial Team 3 min readBookmark for later
Assistive Equipment: Infants and Children...Infants and children with spinal muscular atrophy (SMA) can have difficulty with daily tasks because of low mobility. However, assistive equipment can increase mobility and independence. This refers to devices... By Editorial Team 3 min readBookmark for later
Type 2 Dubowitz...People with type 2 spinal muscular atrophy (SMA) have symptoms of moderate severity. Most can sit unsupported, but they may have a delay in achieving this and lose the ability... By Editorial Team 3 min readBookmark for later
Type 4 Adult...Type 4 is on the mild end of the spectrum of spinal muscular atrophy (SMA). People with type 4 SMA usually experience leg muscle weakness after age 30. Other mild... By Editorial Team 2 min readBookmark for later
Nissen Fundoplication Surgery...A surgical procedure called Nissen fundoplication can treat acid reflux in people with spinal muscular atrophy (SMA). Acid reflux happens when stomach material travels back into the esophagus. This can... By Editorial Team 2 min readBookmark for later
Complications of Spinal Muscular Atrophy: Malnutrition And Aspiration Pneumonia...Children with spinal muscular atrophy (SMA) often have progressive muscle weakness in the tongue, throat, and jaw. This usually makes it difficult for those with type 1 or type 2... By Editorial Team 3 min readBookmark for later
Complications of Spinal Muscular Atrophy: Respiratory Problems...People with spinal muscular atrophy (SMA) have weaker chest muscles because of a problem with their motor neurons. In severe types of SMA, progressive chest weakness leads to breathing problems... By Editorial Team 3 min readBookmark for later
Frequently Asked Questions About Mental Health...Mental health includes how you think, feel, and act. It can fall on a spectrum and vary for each person. You may have questions about mental health conditions, treatment options... By Editorial Team 3 min readBookmark for later
Complications of Spinal Muscular Atrophy...Muscle weakness is progressive in the major types of spinal muscular atrophy (SMA). This means that over time, muscles become weaker. As important muscles weaken, complications can occur. For example... By Editorial Team 3 min readBookmark for later
Type 1 Werdnig-Hoffmann...Infants with type 1 spinal muscular atrophy (SMA) have severe symptoms compared to those with other common types of SMA. Symptoms usually begin within 6 months of age. Infants may... By Editorial Team 3 min readBookmark for later
Complications of Spinal Muscular Atrophy: Urinary Incontinence...Children with spinal muscular atrophy (SMA) have progressive muscle weakness due to defective motor neurons in the spine. This can lead to potentially life-threatening complications that impair mobility. One complication... By Editorial Team 3 min readBookmark for later
Clinical Trial Glossary...Clinical trials have a language of their own. It helps to understand the common terms used when describing a clinical trial before you sign up. Here are some of the... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Clinical Trial Participation...Clinical trials are medical studies that pose a question: Does a new treatment work better than older treatments? Each year, thousands of treatments are tested in controlled experiments called clinical... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Understanding Clinical Trials...A clinical trial is a type of research. Research is the process scientists use to explain how our bodies work or why our bodies stop working well. Clinical trials are... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
SMA Specialist Discussion Board: What Do You Look For? ...Feel free to share your experience with SMA specialists, and what you look for when searching for the right doctor. ...Reactions0reactionsComments5 repliesSpecialists
Which assistive devices have you found most helpful? ...Please share your experience with spinal muscular atrophy assistive devices. ...Reactions0reactionsComments3 repliesAssistive Equipment
Caregiving ...Are you a caregiver for someone with spinal muscular atrophy? Share your story and experiences here. ...Reactions0reactionsComments0 repliesCaregiving
Resources ...What resources are you aware of that could help people with spinal muscular atrophy? Websites? Organizations? Books? Feel free to share here!...Reactions0reactionsComments0 repliesResources
