Living With a Disability: Movie RecommendationsWe asked our Health Leaders, "What good movies or television shows give a credible account of living with disability?" Here are some ideas for good things to watch when you... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments2 comments
Where I Got Stuck, and Other StoriesWe asked our Patient Leaders if they have any stories (humorous or otherwise) that only someone else with SMA or a disability would understand. Here are their responses: Michaela: One... By SpinalMuscularAtrophy.net Team2 min readBookmark for laterReactions0reactionsComments0 comments
Personal HeroesWe asked our Patient Leaders to tell us about the person who has helped them the most as they've navigated living with SMA. Here are their responses: Michaela: My sister... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
How Do You Handle Cold Weather?We asked our Patient Leaders here at SpinalMuscularAtrophy.net, "How do you handle colder weather?" Does cold weather impact their SMA symptoms? Do they have go-to workarounds to avoid going out?... By Editorial Team 5 min readBookmark for laterReactions0reactionsComments0 comments
Celebrating the Holidays and Special OccasionsWe asked our patient leaders about how they celebrate the holidays: Are there any special accommodations they and their family/friends have adopted to make special occasions easier? What is the... By Editorial Team 5 min readBookmark for laterReactions0reactionsComments0 comments
Hope for the New YearIt’s 2023, a new year and new beginnings. We asked our patient leaders to tell us about their hope for the new year for themselves and others living with spinal... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Tips for TravelWhether it's for vacation, business, a chance to visit far-away relatives or friends, or to attend a special event like a friend's wedding, travel is part of life. For anyone... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Helpful Government ProgramsDepending where you live, your country or state may have different programs that you can access to help you manage disability caused by spinal muscular atrophy. We asked our patient... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Tips for Accessible HousingWe asked our patient leaders: What housing tips do you have for someone with spinal muscular atrophy (SMA)? Have you taken steps to make your house more accessible? If so... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Frequently Asked Questions (FAQs) About Spinal Muscular AtrophyWhether you are living with spinal muscular atrophy (SMA) or a caregiver for someone with SMA, here is a guide to the basics of SMA. Spinal muscular atrophy (SMA) is... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
