Hope for the New YearIt’s 2023, a new year and new beginnings. We asked our patient leaders to tell us about their hope for the new...reactionscomments
Frequently Asked Questions (FAQs) About Spinal Muscular AtrophyWhether you are living with spinal muscular atrophy (SMA) or a caregiver for someone with SMA, here is a guide to the...reactionscomments
Living With a Disability: Movie RecommendationsWe asked our Health Leaders, "What good movies or television shows give a credible account of living with disability?" Here are some...reactions2comments
Celebrating the Holidays and Special OccasionsWe asked our patient leaders about how they celebrate the holidays: Are there any special accommodations they and their family/friends have adopted...reactionscomments
Where I Got Stuck, and Other StoriesWe asked our Patient Leaders if they have any stories (humorous or otherwise) that only someone else with SMA or a disability...reactionscomments
Personal HeroesWe asked our Patient Leaders to tell us about the person who has helped them the most as they've navigated living with...reactionscomments
How Do You Handle Cold Weather?We asked our Patient Leaders here at SpinalMuscularAtrophy.net, "How do you handle colder weather?" Does cold weather impact their SMA symptoms? Do...reactionscomments
Tips for TravelWhether it's for vacation, business, a chance to visit far-away relatives or friends, or to attend a special event like a friend's...reactionscomments
Helpful Government ProgramsDepending where you live, your country or state may have different programs that you can access to help you manage disability caused...reactionscomments
Tips for Accessible HousingWe asked our patient leaders: What housing tips do you have for someone with spinal muscular atrophy (SMA)? Have you taken steps...reactionscomments
