Now Closed: SpinalMuscularAtrophy.net GiveawayThe SpinalMuscularAtrophy.net Giveaway is now closed. Thank you for your interest! We're excited to announce a special giveaway for our community! We...reactionscomments
The Silent Battle and ResilienceIt’s a bittersweet reality when the person who has always been your guiding light becomes the one needing care themselves. In August...reactions1comment
Dressing with Confidence: Finding Adaptive Clothing for Life with SMAWhen living with spinal muscular atrophy (SMA), finding comfortable, functional, and stylish clothes can be a significant challenge. See some tips below...reactionscomments
Performing on the Stage With SMAThe bright lights of Broadway have long been a beacon for dreamers, a symbol of passion, talent, and hard work converging to...reactionscomments
Needing Speech Therapy With SMARecovering from my kidney stone removal didn’t go as planned. I expected some discomfort, but I never anticipated the complications that followed...reactionscomments
Asking For Help With SMA: Grocery ShoppingLiving with spinal muscular atrophy (SMA) Type 2 means navigating a world where asking for help is a constant necessity. My body...reactions2comments
Debunking Myths About Living With a Rare DiseaseSince spinal muscular atrophy is part of a rare disease, I’m taking this opportunity to recap the journey. To be able to...reactionscomments
Curious About How Others Manage SMA? Share Your Experience in Our PollsNavigating life with Spinal Muscular Atrophy (SMA) encompasses a myriad of challenges and triumphs, particularly concerning treatment experiences, personal relationships, and quality...reactionscomments
Embracing The ChallengesI had the opportunity to participate in a video production for Rare Disease Day 2025, and it was a truly wonderful experience...reactions1comment
Making Medical Care More Accessible: 5 Simple Steps to Get It RightIf you’ve ever felt frustrated during a doctor’s visit, you’re not alone. For many of us with disabilities, those visits can sometimes...reactions1comment
Navigating Life Decisions with SMAA few weeks ago, I went in for my routine pulmonary checkup. These appointments happen every six to twelve months because of...reactions4comments
Anxious When I Am AloneI was having a panic attack about being alone. As of writing this, I got a facial yesterday. My parents decided to...reactions3comments
Losing Weight With SMAWhen people think about losing weight, they often envision crafting an exercise routine tailored to their body's needs — a regimen that...reactions2comments
Best Experience EverI was thrilled to be nominated as one of the finalists for the Women of the Future Award - Asia. The experience...reactionscomments
Holiday Season BluesThe holiday season, with its festive lights and warm gatherings, often evokes a bittersweet feeling within me. Maybe it's because my birthday...reactions3comments
SMA Friendly Christmas Gift GuideAs the holiday season rolls around, it’s time to find thoughtful gifts everyone will love. If you’re shopping for a teen or...reactions4comments
Overcoming ObstaclesWhat has been the biggest obstacle that you have overcome with SMA? What was your greatest challenge and how did you get...reactionscomments
Overcoming Obstacles From Painting To The FieldNavigating the challenges associated with neurodegenerative conditions has always been an arduous journey, filled with ups and downs. Living with spinal muscular...reactions1comment
Useful Things For Someone With SMAWith spinal muscular atrophy, you know the easier something is, the better off you are. When you struggle to do the silliest...reactionscomments
Perks of Living With SMASome might think living with spinal muscular atrophy (SMA) is all bad. That life is full of doom and gloom, but I...reactions4comments
