Anxious When I Am AloneI was having a panic attack about being alone. As of writing this, I got a facial yesterday. My parents decided to hang out by the pool in the spa...Reactions0reactionsComments0 comments
Losing Weight With SMAWhen people think about losing weight, they often envision crafting an exercise routine tailored to their body's needs—a regimen that promises to target and tone problem areas. They hit the...Reactions0reactionsComments0 comments
Best Experience EverI was thrilled to be nominated as one of the finalists for the Women of the Future Award - Asia. The experience itself was nothing short of extraordinary and gave...Reactions0reactionsComments0 comments
Holiday Season BluesThe holiday season, with its festive lights and warm gatherings, often evokes a bittersweet feeling within me. Maybe it's because my birthday coincides with this season, serving as a reminder...Reactions0reactionsComments3 comments
SMA Friendly Christmas Gift GuideAs the holiday season rolls around, it’s time to find thoughtful gifts everyone will love. If you’re shopping for a teen or adult with spinal muscular atrophy (SMA), finding the...Reactions0reactionsComments4 comments
Overcoming ObstaclesWhat has been the biggest obstacle that you have overcome with SMA? What was your greatest challenge and how did you get through it? Health Leader Samantha Przybylski writes: The...Reactions0reactionsComments0 comments
Overcoming Obstacles From Painting To The FieldNavigating the challenges associated with neurodegenerative conditions has always been an arduous journey, filled with ups and downs. Living with spinal muscular atrophy (SMA) feels akin to managing a full-time...Reactions0reactionsComments1 comments
Perks of Living With SMASome might think living with spinal muscular atrophy (SMA) is all bad. That life is full of doom and gloom, but I am here to let you know it’s not...Reactions0reactionsComments4 comments
Learning From a Fall: Safety Tips for Wheelchair UsersThe other day, I fell out of my wheelchair. It’s not the first time this has happened, but it was definitely the most memorable. I’ll admit, when I was younger...Reactions0reactionsComments0 comments
Braving Surgery: My Journey with SMA and Kidney StonesLiving with spinal muscular atrophy (SMA) Type 2 brings a unique set of challenges into my everyday life, but nothing has tested me quite like my current battle with kidney...Reactions0reactionsComments0 comments
Who Knew Cats Are SMA Friendly?Throughout my childhood, dogs were a constant presence in my life. From Golden Retrievers to Yorkies and Chihuahuas, I was surrounded by faithful companions who brought immense joy and comfort...Reactions0reactionsComments0 comments
Changing My BiPap MachineFrom childhood onward, change has been a constant challenge for me. Every time I needed a new wheelchair or medical device, anxiety would grip me tight. It always felt like...Reactions0reactionsComments0 comments
Looking forward to WinterDecember is officially upon us! At the end of the year, I reflect upon it. Usually, my seasonal depression really affects me, and this year, I finally don't feel that...Reactions0reactionsComments0 comments
Looking For the Little Joys with SMARecently, I began going to see a therapist for my depression and anxiety. I was diagnosed with major manic depressive disorder. This means when I’m down, I’m really down. Therapy...Reactions0reactionsComments0 comments
When My Wheelchair Gets Damaged Beyond RepairUsually, a situation like this would leave me in a very dark place. A few weeks ago, we were in a car accident, and I thank God every day that...Reactions0reactionsComments0 comments
My Favorite Accessible GiftsI know that, overall, finding gifts can be tough, especially finding things for someone who is disabled and has specific needs, like those that come with spinal muscular atrophy. Here...Reactions0reactionsComments0 comments
SMA Impacts Job HuntingLast year, I decided I wanted to begin the process of looking for a job. Up until this point, I’d never worked a steady job before in or outside of...Reactions0reactionsComments2 comments
Financial Independence, The Food EditionLet’s talk about financial independence. As you know from my first article here, financial freedom and independence are so hard. With Supplemental Security Income (SSI) limits, I can feel trapped...Reactions0reactionsComments0 comments
My Journey to BiPapTwo years ago, I was hit with some bewildering symptoms. A loud roaring noise invaded my left ear during a visit to my sister in Maryland over the summer. I...Reactions0reactionsComments0 comments
Navigating Medical Procedures With SMAIf you live with spinal muscular atrophy (SMA) of any type, then you know how difficult it can be to have medical procedures done. There’s a lot of logistics and...Reactions0reactionsComments0 comments