Teaching Your Kids About DisabilitiesFrom a very young age, I've been intimately familiar with the world of disabilities. Diagnosed with SMA type 2 at just 18...reactionscomments
Rocking the Solo LifeWell, folks! It's been a wild ride – a decade of liberation from marriage and an interesting tango with spinal muscular atrophy...reactions1comment
Worst Case Scenario: a Cold*This article was inspired by Balancing Life When You Are Ill by Michaela Hollywood* As of writing this, I was sick this...reactions1comment
What A Small Cold Can DoIn October, my mom caught a little cold during a trip to her doctor's office. She suffered a sore throat, cough, runny...reactionscomments
My Battle With Chronic Pain and SMAIn my life, aches and pains have been constant companions. In my younger years, I chalked them up as part of the...reactions1comment
The Evolution of Adaptive Showering EquipmentMany people with disabilities, like spinal muscular atrophy, may struggle with self-care necessities, especially bathing/showering when access is hard. My situation was...reactions2comments
Sorry To Miss The CureSMA ConferenceI really wanted to go to The CureSMA Conference a recent year! I have no idea why Mike didn’t sign us up...reactions3comments
Struggling to Find the Right FitIt can be frustrating shopping for clothes that fit my body comfortably, especially dress clothes. I am at an age now where...reactions1comment
OverwhelmedLast year, to make a long story short, I had a bunch of GI issues. The GI team decided to give me...reactions2comments
Tips for a Successful Night Out as a Wheelchair UserGoing out can be nerve-wracking for anyone, but when you're a wheelchair user with spinal muscular atrophy, the stress can multiply. From...reactions3comments
New Year - New Me?I never liked the phrase "new year, new me." It made me feel like everything I did last year was thrown away...reactionscomments
Friends That Travel Together, Stay TogetherPeople say travel friendships can last a lifetime. With traveling, it shows how solid your friendships are because you will know how...reactionscomments
Getting Ready in the MorningGetting ready in the morning when you have spinal muscular atrophy (SMA) can be challenging because of the lack of strength and...reactionscomments
Things I Wish People KnewToday I wanted to talk about SMA (spinal muscular atrophy). Most folks out there aren’t exactly experts on it, so I want...reactions2comments
Planning a Family With SMA: Things to ConsiderIf you have a child with spinal muscular atrophy (SMA) or are a carrier of the SMA gene, you face some serious...reactionscomments
Adding Fun to Tiring Doctors AppointmentsIn general, I believe that all of us would like to be and stay healthy as much as possible. With spinal muscular...reactions2comments
Thoughtful Christmas Gifts for Wheelchair UsersI cannot believe it’s already that time of year. I’m getting the question, “What do you want for Christmas!?” I have found myself...reactionscomments
First Grade-How My Advocacy StartedI have spinal muscular atrophy (SMA), a condition that affects my muscles and mobility. But the amazing part is that I went...reactionscomments
Awarded an MBE for Disability AdvocacyIf I were to say 2023 has been a wild ride, it would be a huge understatement - and there are still...reactions1comment
Radical InclusivityDefinition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice...reactions1comment
