Articles

Going out can be nerve-wracking for anyone, but when you're a wheelchair user with spinal muscular atrophy, the stress can multiply. From accessibility concerns to dealing with a crowd of...

I never liked the phrase "new year, new me." It made me feel like everything I did last year was thrown away, and none of it mattered. What's wrong with...

People say travel friendships can last a lifetime. With traveling, it shows how solid your friendships are because you will know how they are through day and out. Just like...

Getting ready in the morning when you have spinal muscular atrophy (SMA) can be challenging because of the lack of strength and inability to move much, but with a little...

Today I wanted to talk about SMA (spinal muscular atrophy). Most folks out there aren’t exactly experts on it, so I want to break it down in simple terms. SMA...

If you have a child with spinal muscular atrophy (SMA) or are a carrier of the SMA gene, you face some serious decisions. It can be helpful to learn more...

In general, I believe that all of us would like to be and stay healthy as much as possible. With spinal muscular atrophy (SMA), we have a bunch of doctors...

I cannot believe it’s already that time of year. I’m getting the question, “What do you want for Christmas!?” I have found myself wanting to give practical yet creative ideas that...

I have spinal muscular atrophy (SMA), a condition that affects my muscles and mobility. But the amazing part is that I went to a regular school for first grade way...

If I were to say 2023 has been a wild ride, it would be a huge understatement - and there are still several weeks left! I live in the UK...

Definition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice or policy of providing equal access to opportunities...

The anticipation of the winter season brings joy and excitement to many as it heralds the arrival of holidays and gatherings with loved ones. However, for those of us living...

We've all witnessed that mom clutching her child's hand like it's a lifeline as they navigate a chaotic parking lot. This could be an accident waiting to happen for anyone...

It has been six months since I started using my first power wheelchair. Over the last 28 years, I used an electric scooter to get around. The biggest reason for...

Every year when we come to the festive season (for us in Malaysia it's Hari Raya Aidilfitri), it is the hardest time for me. Not just for me, but also...

Sometimes I can't help but hold myself to an able-bodied standard. By this I mean, I can't help but think it's bad to rest and will trigger my depression if...

The holiday season is around the corner, and many of us are gearing up for travel to visit friends and family. I know I am! I’m currently counting down the days...

My SMA story begins at the age of two. Up until that time, I was meeting all my physical milestones until one day, my twin sister, Rachel, began walking up...

As someone living with spinal muscular atrophy (SMA), I know firsthand the challenges and triumphs that come with this condition. That's why I'm writing to emphasize the importance of early...

When people see another person in a wheelchair, a subtle transformation occurs, and they do their best to act with kindness. Often strangers extend their hands to hold open doors...