Mental Health Awareness MonthMay was designated National Mental Health Awareness Month in 1949 by the United States Congress due to the increased number of veterans suffering from mental illnesses after returning from World... By Mike Noon2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Promise of TreatmentOur family journey began when Mike was five years old. After a barrage of testing and doctor appointments, we were given the diagnosis of Muscular Dystrophy. The name of just... By Maryalice Noon2 min readBookmark for laterReactions 0 reactions Comments0 comments
Keeping Positive During Life’s TransitionsOur lives will be constantly changing. This is true for everyone. Whether you are disabled or not. Life never stays stagnant so how can we adapt and stay positive? Staying... By Mike Noon2 min readBookmark for laterReactions 0 reactions Comments0 comments
Cure SMA Conference TipsI went to the Cure SMA Conference for the first time when I was 10 with my mom, dad, and grandparents (my mom's parents). To be honest, I was in... By Kellie Cusack2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Mom In The WheelchairRecently, I had an experience I didn’t know I desperately needed. I went to volunteer in my daughter’s kindergarten classroom. I was nervous because I did not want my wheelchair... By Samantha Przybylski2 min readBookmark for laterReactions 0 reactions Comments0 comments
Maintaining Relationships with Family and FriendsCaretaking for a loved one is a full-time gig. I purposely used the word gig instead of job. I really love what I do. I get paid to be with Mike... By Suzanne Cutler2 min readBookmark for laterReactions 0 reactions Comments1 comments
A Family AffairI have been writing about my spinal muscular atrophy journey for a few years now. I often wonder who out there is reading these articles. Obviously it can be intimidating... By Mike Noon2 min readBookmark for laterReactions 0 reactions Comments2 comments
We Flow with the Changes in Our ChildYes, your role as a parent changes remarkably as your child grows from that little toddler into school age and then again into that teenager. Finally into that young adult... By Maryalice Noon2 min readBookmark for laterReactions 0 reactions Comments0 comments
Disability Does Not Make You Immune to HardshipRecently, I have had a huge life transition and not a positive one. I feel society often thinks that disabled individuals do not go through hardship. That we don’t have... By Samantha Przybylski2 min readBookmark for laterReactions 0 reactions Comments0 comments
Caring For A Loved OneBeing paid to take care of someone is a thought that never crossed my mind. Growing up in a large family and being the oldest of 5 kind of made... By Suzanne Cutler2 min readBookmark for laterReactions 0 reactions Comments0 comments
Where I Got Stuck, and Other StoriesWe asked our Patient Leaders if they have any stories (humorous or otherwise) that only someone else with SMA or a disability would understand. Here are their responses: Michaela: One... By SpinalMuscularAtrophy.net Team2 min readBookmark for laterReactions 0 reactions Comments0 comments
Boredom BustersI can't tell you how many times I've Googled "Things to do in the winter when bored," or "Boredom busters" just to be met with able-bodied people telling me to... By Kellie Cusack3 min readBookmark for laterReactions 0 reactions Comments5 comments
Red OctoberAny sports fan in the Philadelphia area will understand the phrase Red October. For those of you who are not lucky enough to live here and understand the phrase let... By Mike Noon2 min readBookmark for laterReactions 0 reactions Comments0 comments
Parenting From a WheelchairBeing a mother is an adventure in itself, but when you add two young children and a wheelchair to the mix, things get even more interesting! As a mother, with... By Megan DeJarnett2 min readBookmark for laterReactions 0 reactions Comments0 comments
Honest Look at a Parent’s HeartbreakThe emotions that each parent truly lives with from that first day our child is given a diagnosis of a neuromuscular disease. In reality, each parent feels that same initial... By Maryalice Noon2 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Find Worth in CaretakingTaking care of someone can be hard and trying. Especially when it is a 24/7 gig. There are days I wish I could get a break. As of right now... By Suzanne Cutler2 min readBookmark for laterReactions 0 reactions Comments0 comments
Large Medical Team Helps a Child With SMAWhen our daughter, Jessie was born we were overjoyed. We were unaware of what was in store for my daughter and our family. Jessie was not meeting her age-related milestones... By Marc Mitnick3 min readBookmark for laterReactions 0 reactions Comments0 comments
My First Wheelchair Seating ClinicIn previous articles, I’ve written about perception. How we are perceived is a big part of ourselves. When I went off to college, I knew that I wouldn’t be able... By Mike Noon2 min readBookmark for laterReactions 0 reactions Comments0 comments
Becoming Financially IndependentThe other day, I visited the Supplemental Security Income (SSI) office. I had to visit because I now have my first job. I wanted to make sure that I would... By Kellie Cusack2 min readBookmark for laterReactions 0 reactions Comments2 comments
Wheelchair Recommendation and Favorite FeaturesAs someone with spinal muscular atrophy, I understand the importance of selecting the correct wheelchair. Not only is it a huge financial commitment but is a piece of our body... By Megan DeJarnett3 min readBookmark for laterReactions 0 reactions Comments0 comments