Articles

Well, folks! It's been a wild ride – a decade of liberation from marriage and an interesting tango with spinal muscular atrophy (SMA). Who needs a partner when you can...

*This article was inspired by Balancing Life When You Are Ill by Michaela Hollywood* As of writing this, I was sick this past Thursday and then finally felt better today...

In October, my mom caught a little cold during a trip to her doctor's office. She suffered a sore throat, cough, runny nose, and a mild migraine for about four...

In my life, aches and pains have been constant companions. In my younger years, I chalked them up as part of the growing-up process with SMA, something we all had...

Many people with disabilities, like spinal muscular atrophy, may struggle with self-care necessities, especially bathing/showering when access is hard. My situation was no different, and I want to describe the...

I really wanted to go to The CureSMA Conference this year! I have no idea why Mike didn’t sign us up. I’m still so mad at him! Why on earth...

It can be frustrating shopping for clothes that fit my body comfortably, especially dress clothes. I am at an age now where I am getting out of always wearing sweatpants...

Last year, to make a long story short, I had a bunch of GI issues. The GI team decided to give me a peg tube. I want to be friends...

Going out can be nerve-wracking for anyone, but when you're a wheelchair user with spinal muscular atrophy, the stress can multiply. From accessibility concerns to dealing with a crowd of...

I never liked the phrase "new year, new me." It made me feel like everything I did last year was thrown away, and none of it mattered. What's wrong with...

People say travel friendships can last a lifetime. With traveling, it shows how solid your friendships are because you will know how they are through day and out. Just like...

Getting ready in the morning when you have spinal muscular atrophy (SMA) can be challenging because of the lack of strength and inability to move much, but with a little...

Today I wanted to talk about SMA (spinal muscular atrophy). Most folks out there aren’t exactly experts on it, so I want to break it down in simple terms. SMA...

If you have a child with spinal muscular atrophy (SMA) or are a carrier of the SMA gene, you face some serious decisions. It can be helpful to learn more...

In general, I believe that all of us would like to be and stay healthy as much as possible. With spinal muscular atrophy (SMA), we have a bunch of doctors...

I cannot believe it’s already that time of year. I’m getting the question, “What do you want for Christmas!?” I have found myself wanting to give practical yet creative ideas that...

I have spinal muscular atrophy (SMA), a condition that affects my muscles and mobility. But the amazing part is that I went to a regular school for first grade way...

If I were to say 2023 has been a wild ride, it would be a huge understatement - and there are still several weeks left! I live in the UK...

Definition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice or policy of providing equal access to opportunities...

The anticipation of the winter season brings joy and excitement to many as it heralds the arrival of holidays and gatherings with loved ones. However, for those of us living...