Preparing For TakeoffOver the course of the last 5 years, I have had the opportunity to fly around the country. It had been some...reactionscomments
5 Disability Tips for Attending Large Venue EventsWho doesn't like going to a concert, performance, or sporting event? The problem is, it's not always easy to attend events at...reactionscomments
Getting Wheelchair Accessible Concert TicketsIf you’ve ever lost out on accessible/ADA tickets to your favorite band or musician, today is your lucky day because I am...reactionscomments
Grieving Over a Spoon and ForkWho would've known that a seemingly simple pair of utensils could carry such emotional weight? The other night, my sister invited us...reactions1comment
Cooking Without HandsHave you ever had a desire to cook an amazing meal for someone but had a thought, “how would I do that?...reactions2comments
Getting Ready in the MorningGetting ready in the morning when you have spinal muscular atrophy (SMA) can be challenging because of the lack of strength and...reactionscomments
The Importance of ImprovisationMobility aids help many of us with SMA live as independently as possible. We use wheelchairs so we can get around as...reactions1comment
Finding a Disability Friendly HobbyRecently I felt like I was stuck in a rut with my hobbies or activities to unwind. It seemed like I was...reactions6comments
Grips for a Wheelchair JoystickLiving with SMA, it often feels like we’re slowly losing strength or independence daily. Of course, now with the new medications that...reactions1comment
Stop Surviving and Start LivingRecently I just got over my second respiratory infection in two months. Thankfully I hadn’t been sick or needed an antibiotic in...reactions2comments
Feeling Left Behind at TimesWith most of my posts, I try to offer some kind of helpful information from my past experiences. But sometimes I feel...reactions1comment
Accessible Summer Activities for Kids with SMASummertime is an interesting part of the year for people with disabilities, especially children. Warm weather seems great, but really it leads...reactionscomments
Asking For Help With SMA: Grocery ShoppingLiving with spinal muscular atrophy (SMA) Type 2 means navigating a world where asking for help is a constant necessity. My body...reactions2comments
Removing Wisdom Teeth While Dealing with Respiratory IssuesAround the time I got my g-tube, I also realized that I was having problems with my jaw and teeth. After I...reactions1comment
Near Death Experience!Let me tell you the story of the time I almost died...twice. As a person with a spinal fusion and severe scoliosis...reactionscomments
"When I’m an Adult, I Will Walk"Do ducks swim in their own pee? Are babies even real? Or just pretend? When I’m an adult, I will walk. This...reactions4comments
My Process For A New WheelchairHello all! Today I wanted to share my wheelchair stories and my tips for getting a new one! Since my family can't...reactionscomments
On Being Told To Live Independently“You should learn to live independently. There’s a cerebral palsy patient that renovated her house and lives alone” “You should learn how...reactions1comment
Raising Awareness About Early Diagnosis and Immediate TreatmentAs someone living with spinal muscular atrophy (SMA), I know firsthand the challenges and triumphs that come with this condition. That's why...reactions1comment
Why Are You in a Wheelchair?This is the question that every person with SMA will be asked more times than anything else in their life. Parents who...reactionscomments
