Articles

Who has dealt with the frustration of securing wheelchair-accessible seats?  It can be a pain in the neck sometimes. Over the years I’ve gone to hundreds of sporting events and...

Hello everyone! Today, since it's officially June as I write this, and the warm weather is here, (my favorite season!) I wanted to talk about adaptive fashion and how this...

Define love. It would be a broader definition for everyone. As I moved into the adulthood phase I started to get involved in more things. Of course one of the...

I recently wrote about my first wheelchair seating clinic experience. Since I wrote that article I was denied by Medicare for the seat elevator. Medicare evidently has a policy in...

Accessibility and independence go hand-in-hand but often times people do not realize that they rely on each other. I have spoken with many parents of children with disabilities like spinal...

I’ve been using my new Permobil wheelchair for just about a month now. The last few months that I was using my scooter became a little more difficult. I’ve been...

Warning: This post discusses my experience with mental health including anxiety and depression. Reader discretion is advised. I wanted to discuss my experience with therapy and mental health because it...

We asked our Health Leaders, "What good movies or television shows give a credible account of living with disability?" Here are some ideas for good things to watch when you...

Trying on clothes in a department store can be a daunting task for anyone, but it can be even more challenging if you use a wheelchair. As a woman with...

Love knows no boundaries, and when it comes to interabled relationships, it is no different. Mike and I are in an interabled relationship. Basically meaning that Mike is disabled and...

I just went on a birthday cruise on the Disney Wish with my mama! I wanted to share about accessibility and what helped the most to make the cruise the...

Living with spinal muscular atrophy, you'll often find yourself consulting a pulmonologist from a young age. Over the years, there have been significant advancements in pulmonology for this rare condition...

May was designated National Mental Health Awareness Month in 1949 by the United States Congress due to the increased number of veterans suffering from mental illnesses after returning from World...

Our family journey began when Mike was five years old. After a barrage of testing and doctor appointments, we were given the diagnosis of Muscular Dystrophy. The name of just...

Our lives will be constantly changing. This is true for everyone. Whether you are disabled or not. Life never stays stagnant so how can we adapt and stay positive?  Staying...

I went to the Cure SMA Conference for the first time when I was 10 with my mom, dad, and grandparents (my mom's parents). To be honest, I was in...

Recently, I had an experience I didn’t know I desperately needed. I went to volunteer in my daughter’s kindergarten classroom. I was nervous because I did not want my wheelchair...

Caretaking for a loved one is a full-time gig. I purposely used the word gig instead of job. I really love what I do. I get paid to be with Mike...

I have been writing about my spinal muscular atrophy journey for a few years now. I often wonder who out there is reading these articles. Obviously it can be intimidating...

Yes, your role as a parent changes remarkably as your child grows from that little toddler into school age and then again into that teenager. Finally into that young adult...