Thriving With SMAIf you live with SMA, then you know the ‘waiting for the other shoe to drop’ mentality. I lived there for a...reactionscomments
Needing My Husband's Help in a Public RestroomI can honestly say some of my funnier moments coping with spinal muscular atrophy have come from having to use public restrooms...reactions1comment
Tips on Dating with a DisabilityI know every person‘s story is different, but the common denominator is the desire to be loved in most people's lives. As...reactionscomments
Eating OutAs I’ve gotten older and my disease, spinal muscular atrophy, has progressed a little more, eating out started to become more of...reactionscomments
The Art of Chewing and Swallowing with SMAIf you’ve lived with spinal muscular atrophy for any length of time you expect to have weakness progress in your body. However...reactions3comments
Wheelchair Accessible Seating HacksWho has dealt with the frustration of securing wheelchair-accessible seats? It can be a pain in the neck sometimes. Over the years...reactions3comments
Preparing For TakeoffOver the course of the last 5 years, I have had the opportunity to fly around the country. It had been some...reactionscomments
5 Disability Tips for Attending Large Venue EventsWho doesn't like going to a concert, performance, or sporting event? The problem is, it's not always easy to attend events at...reactionscomments
Getting Wheelchair Accessible Concert TicketsIf you’ve ever lost out on accessible/ADA tickets to your favorite band or musician, today is your lucky day because I am...reactionscomments
Grieving Over a Spoon and ForkWho would've known that a seemingly simple pair of utensils could carry such emotional weight? The other night, my sister invited us...reactions1comment
Cooking Without HandsHave you ever had a desire to cook an amazing meal for someone but had a thought, “how would I do that?...reactions2comments
Getting Ready in the MorningGetting ready in the morning when you have spinal muscular atrophy (SMA) can be challenging because of the lack of strength and...reactionscomments
The Importance of ImprovisationMobility aids help many of us with SMA live as independently as possible. We use wheelchairs so we can get around as...reactions1comment
Finding a Disability Friendly HobbyRecently I felt like I was stuck in a rut with my hobbies or activities to unwind. It seemed like I was...reactions6comments
Stop Surviving and Start LivingRecently I just got over my second respiratory infection in two months. Thankfully I hadn’t been sick or needed an antibiotic in...reactions2comments
Feeling Left Behind at TimesWith most of my posts, I try to offer some kind of helpful information from my past experiences. But sometimes I feel...reactions1comment
Accessible Summer Activities for Kids with SMASummertime is an interesting part of the year for people with disabilities, especially children. Warm weather seems great, but really it leads...reactionscomments
Removing Wisdom Teeth While Dealing with Respiratory IssuesAround the time I got my g-tube, I also realized that I was having problems with my jaw and teeth. After I...reactions1comment
Near Death Experience!Let me tell you the story of the time I almost died...twice. As a person with a spinal fusion and severe scoliosis...reactionscomments
"When I’m an Adult, I Will Walk"Do ducks swim in their own pee? Are babies even real? Or just pretend? When I’m an adult, I will walk. This...reactions4comments
