Managing EnergyI often struggle with low energy, year-round. I'd like to share some things that have helped me and hopefully will help you...reactions6comments
Challenges of SMA and Its ProgressionLiving with a chronic condition like spinal muscular atrophy (SMA) can have significant social and emotional impacts on individuals and their families...reactions1comment
Accessibility EtiquetteWe asked our Health Leaders who live with spinal muscular atrophy: "What needs to make it into an 'accessibility etiquette' guide? What...reactionscomments
Embracing Freedom: Swimming with SMAAs someone with spinal muscular atrophy, swimming has always held a special place in my heart. Ever since I was a child...reactionscomments
Loss in the SMA CommunityMy SMA community was struck hard this winter season by a string of deaths. Blow by blow it broke me. My friend...reactions1comment
Managing Thoughtless CommentsIf you use a wheelchair or scooter like me, because of spinal muscular atrophy, I am sure you have heard all of...reactionscomments
Feeling Emotional About Things People SayI gave up whenever someone asked, “Oh, what is she doing now?" (She as in me.) And your family answered it with...reactions3comments
Accessible Getaway TipsWe asked our Health Leaders for some summertime advice: Do you have a summer vacation or getaway planned? What makes for the...reactionscomments
CourageSometimes I find my confidence and insecurity going hand in hand. I know this might sound strange, but it's true. I don't...reactionscomments
Challenges of Being Your Partner's Full-time CaregiverCaring for a loved one with a disability like spinal muscular atrophy can be both a rewarding and challenging experience. One of...reactions1comment
Wheelchair Accessible Seating HacksWho has dealt with the frustration of securing wheelchair-accessible seats? It can be a pain in the neck sometimes. Over the years...reactions3comments
Adaptive Fashion and the Double Take Fashion ShowHello everyone! Today, since it's officially June as I write this, and the warm weather is here, (my favorite season!) I wanted...reactionscomments
Define LoveDefine love. It would be a broader definition for everyone. As I moved into the adulthood phase I started to get involved...reactionscomments
Medicare Denials and Wonderful NonprofitsI recently wrote about my first wheelchair seating clinic experience. Since I wrote that article I was denied by Medicare for the...reactions1comment
Independence and AccessibilityAccessibility and independence go hand-in-hand but often times people do not realize that they rely on each other. I have spoken with...reactions7comments
Transitioning to My First Electric WheelchairI’ve been using my new Permobil wheelchair for just about a month now. The last few months that I was using my...reactions2comments
Therapy and Mental Health with SMAWarning: This post discusses my experience with mental health including anxiety and depression. Reader discretion is advised. I wanted to discuss my...reactions2comments
Living With a Disability: Movie RecommendationsWe asked our Health Leaders, "What good movies or television shows give a credible account of living with disability?" Here are some...reactions2comments
Dressing Room Experience as a Wheelchair User: Tips and Personal InsightsTrying on clothes in a department store can be a daunting task for anyone, but it can be even more challenging if...reactionscomments
Interabled Relationships are Just Like Any Other RelationshipLove knows no boundaries, and when it comes to interabled relationships, it is no different. Mike and I are in an interabled...reactionscomments
