Enter the Giveaway: Adapting Your World

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Living with spinal muscular atrophy (SMA) means an endless stream of adapting the world to you, and you to the world.

We are celebrating Spinal Muscular Atrophy Awareness Month by bringing attention to the creative ways people living with SMA have adapted their surroundings to suit their abilities and improve their quality of life. Join us this month by sharing and being a part of a community of others who live with SMA.

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For a chance to win a $50 Gift Card for Adaptive Clothing retailer:

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Adaptive clothing helps with self expression

"Living with spinal muscular atrophy (SMA) brings its own set of challenges. Some challenges are glaringly obvious. Others play out behind the scenes. Growing up, I didn’t really care much about what I wore. As long as it was comfy and let me move freely, I was good."

Read the full article: Getting Comfortable in My Style by Jennifer Greer, Health Leader

Also read: Struggling to Find The Right Fit

Hacks to make everyday life easier

"Able-bodied people take for granted every day the ability to just jump in the bath or shower and have clean running water pouring over their heads and into a drain. I want to describe the way I took a 'shower' for 6 months of my life."

Read the full article: The Evolution of Adaptive Showering Equipment by Allie Williams, Health Leader

Also read: Hiding Medical Equipment

Accessibility begins at home

"I have been house shopping. There is a better chance of winning the lottery than finding the perfect home that is 100 percent accessible to meet my needs. The trick is to start with a list. I have made a list of what is important to me."

Read the full article: What Is an Accessible Home? by Mike Noon, Health Leader

Also read: Modifying Your Home for More Independence

Harnessing technology to improve lifestyle

"I was talking to my public partnerships consultant a few weeks ago, and she mentioned how she uses Alexa as an alarm. I thought how funny it was because I only thought of it as a disability tool."

Read the full article: How Alexa Became One of My Disability Must-Haves by Kellie Cusack, Health Leader.

Also read: Computer Assistive Technology

Enjoying a night out with friends

"Going out can be nerve-wracking for anyone, but when you're a wheelchair user with spinal muscular atrophy, the stress can multiply. From accessibility concerns to dealing with a crowd of unfamiliar faces, the obstacles can seem overwhelming."

Read the full article: Tips for a Successful Night Out as a Wheelchair User by Megan DeJarnett, Health Leader.

Also read: Getting Wheelchair-Accessible Concert Tickets

Learn how to connect with other people in the SMA community

Our goal at SpinalMuscularAtrophy.net is to connect people living with SMA and their caregivers with each other and build an online community that helps bridge the gap.

Learn more about how to connect with others here.

The giveaway ends on Aug 30, 2024, at 12:00 PM ET. The winner will be notified via email. The winner has 48 hours to claim their prize before an alternate winner will be selected. For more information, please read our Terms & Conditions. Good luck!