FeaturedA Letter to Your Younger Self What's one thing you would tell your younger self with SMA? Comment below and start the discussion....Reactions 0 reactions Comments0 replies
FeaturedStaying Positive with SMA Do you have a special way to keep positive despite the challenges of SMA? What works for you? Join the conversation below....Reactions 0 reactions Comments3 repliesCopingMental Health
Is this SMA?Besides having severe multilevel spinal stenosis, my MRI says There is a left paraspinal muscular atrophy. Multilevel degenerative changes with multilevel disc desiccation is seen. Is this SMA? Thanks! Alan...Reactions 0 reactions Comments2 repliesAwareness
Making Dreams A RealityHow has SMA affected your biggest, wildest dreams? Were you still able to make that dream a reality or did you have to adapt/change your expectations? Start the conversation here....Reactions 0 reactions Comments0 repliesCoping
SMA Awareness Month Discussion Board: What do you wish others knew about SMA?If there was one thing you could tell the world about SMA, what would it be?...Reactions 0 reactions Comments6 repliesAwarenessMyths & Misconceptions
Resources for AssistanceWhat non-profit organizations have you found helpful? What services do they provide (financial, caregiving, other supportive services)?...Reactions 0 reactions Comments0 repliesCost
FeaturedThank A Healthcare Professional Discussion BoardDo you have a favorite doctors/specialist? Maybe someone who went above and beyond for you during a hospital stay? Give them a shout out and tell us their story....Reactions 0 reactions Comments1 repliesHealthcare Team
Barriers with SMAWhat do you feel are your greatest barriers living with SMA? How do you navigate these barriers? Start the conversation and let our community member join in....Reactions 0 reactions Comments0 repliesMental Health
FeaturedTeaching Children About Disabilities Discussion Board When you were a child, was it difficult to interact with non-disabled children? Did your school help introduce them to your disability? Was that helpful? Read an article about navigating...Reactions 0 reactions Comments4 repliesEducation & Schooling Friends & FamilyDisability
SMA Specialist Discussion Board: What Do You Look For? Feel free to share your experience with SMA specialists, and what you look for when searching for the right doctor. ...Reactions 0 reactions Comments5 repliesSpecialists