Food alternativesI am a SMA type 3 person and onset started around age 13. I am currently 38 and ambulatory, though it is annoying and painful when I walk for long...Reactions 0 reactions Comments3 repliesDiet & Nutrition
Standing my ground Hello everyone! I recently wrote an article that I'm waiting to get published all about standing my ground. I've gotten better at boundaries (even though I feel the guilt sometimes...Reactions 0 reactions Comments0 repliesMental Health
Loss Support Thread Have you lost a loved one to spinal muscular atrophy? This is a safe space for you....Reactions 0 reactions Comments0 replies
Accessibility EtiquetteWhat guidelines need to be written in an “accessibility etiquette” guide? What drives you crazy about the way people interact with you as someone with a disability? How do you...Reactions 0 reactions Comments2 repliesAwarenessFriends & FamilyMyths & Misconceptions
Can I be I was hurt on the job in 2018 I was hit in the head by a 250lb beem and after 6 surgerys im left prelized on my left side and...Reactions 0 reactions Comments1 repliesDepression
Awareness Month 2023 Spotlight: Your SMA Story What brings you to our community? Do you identify has a caregiver, patient, or health care provider? Use this forum space to connect with others. Join the conversation!...Reactions 0 reactions Comments0 repliesAwareness
Have you experienced thoughtless comments recently?One of our patient leaders, Mike, shared in a recent article that he's heard thoughtless comments from folks about being in wheelchair. These comments really strike him the wrong way...Reactions 0 reactions Comments0 repliesTips & AdviceStigma
Awareness Month 2023 If there was one thing you'd tell someone about SMA, what would it be? Do you wish there was more awareness around this rare condition? Or do you wish there...Reactions 0 reactions Comments1 replies
Tips on Speaking Up!How do you speak up for yourself? Do you rely on others to help you? Share some tips for others living with SMA on how they can speak up for...Reactions 0 reactions Comments1 repliesTips & Advice
Accessibility IssuesHave you run into recent accessibility issues lately? Maybe trying to get into a store that didn't have a ramp for your wheelchair? If so, how did you handle this?...Reactions 0 reactions Comments0 repliesDisabilityResources