FeaturedDoctors won’t address my smaSo, I was reading my mri report and it says I have mild to moderate paraspinal musculature atrophy. You can clearly see atrophy in my right arm. After bringing it...Reactions 0 reactions Comments2 repliesTestingHealthcare TeamSymptoms
You are more than someone with SMA. Who are you?SMA is an all-consuming condition and affects so much of our lives. Other than SMA, how do you describe yourself? What is your passion? How have you adapted living with...Reactions 0 reactions Comments0 repliesAwareness
Government ProgramsWhat government programs do you use to help you manage your SMA? Please share your state or country. Are you happy with the programs? What would you like to see?...Reactions 0 reactions Comments0 repliesAwarenessCostDisability
Accessible Housing TipsHave you made changes to make your house more accessible for someone with spinal muscular atrophy? If so, what changes have you made? Join the conversation....Reactions 0 reactions Comments0 repliesAssistive EquipmentTips & Advice
Accessible Summer FunShare your tips for accessible summer activities for kids OR adults. What do you do to enjoy the 'good old summertime?'...Reactions 0 reactions Comments0 repliesExercise & Activity
Recently Diagnosed Discussion BoardRecently diagnosed? Questions about treatment? Accessibility? Ask your questions here and our patient leaders will respond with their experiences....Reactions 0 reactions Comments0 repliesNewly Diagnosed
Resources What resources are you aware of that could help people with spinal muscular atrophy? Websites? Organizations? Books? Feel free to share here!...Reactions 0 reactions Comments0 repliesResources
Caregiving Are you a caregiver for someone with spinal muscular atrophy? Share your story and experiences here. ...Reactions 0 reactions Comments0 repliesCaregiving
Traveling with spinal muscular atrophyHave you traveled before with SMA? What has your experience been like? Do you have tips for someone who is curious to travel / travel more often? If not, why...Reactions 0 reactions Comments0 repliesTravel
Mental Health MonthMay is Mental Health Month. Do you feel that spinal muscular atrophy has an affect on your mental health? Share your experience with managing mental health with our spinal muscular...Reactions 0 reactions Comments0 repliesTips & AdviceCopingMental Health