An Open Letter to Newly Diagnosed ParentsIf you are reading this, you have probably been recently told that your lovely child has spinal muscular atrophy (SMA). You probably...reactions1comment
Managing CaregiversWhen I was of college age, I was fortunate enough to attend a school that at the time offered a dormitory providing...reactionscomments
Thanksgiving & Difficulty SwallowingSo, the fourth Thursday of every November in the US is Thanksgiving. For our international friends, it is a national holiday centered...reactions1comment
Living Life in a WheelchairLiving life in a wheelchair, you often encounter and have to react to two different situations that sound the same: stairs and...reactionscomments
A Walk With Someone NewYesterday, a friend invited me on a walk, because she is raising money by walking for a charity. We decided to walk...reactions1comment
To Trach or Not to TrachThat is the question. Whether tis nobler... Despite that Shakespearean introduction, this is a serious topic that many of us will have...reactions1comment
Finding the Right CaregiversLiving with a disability, I like to consider a full-contact sport. It requires your mind, body, and soul to be as healthy...reactionscomments
