An Open Letter to Newly Diagnosed ParentsIf you are reading this, you have probably been recently told that your lovely child has spinal muscular atrophy (SMA). You probably have had to sit through various appointments with...reactions1comment
Managing CaregiversWhen I was of college age, I was fortunate enough to attend a school that at the time offered a dormitory providing 24/7 care for those with disabilities. I was...reactionscomments
Thanksgiving & Difficulty SwallowingSo, the fourth Thursday of every November in the US is Thanksgiving. For our international friends, it is a national holiday centered around giving thanks for any blessings experienced during...reactions1comment
Living Life in a WheelchairLiving life in a wheelchair, you often encounter and have to react to two different situations that sound the same: stairs and stares. While stairs need to be handled on...reactionscomments
A Walk With Someone NewYesterday, a friend invited me on a walk, because she is raising money by walking for a charity. We decided to walk on my street, which is a flat cul-de-sac...reactions1comment
To Trach or Not to TrachThat is the question. Whether tis nobler... Despite that Shakespearean introduction, this is a serious topic that many of us will have to face if we have not already. Depending...reactions1comment
Finding the Right CaregiversLiving with a disability, I like to consider a full-contact sport. It requires your mind, body, and soul to be as healthy as possible. And in most cases, it requires...reactionscomments
