FeaturedActive 4 days agoAir Travel with SMAA community member recently asked to learn more about how to air travel with SMA. Have you done lots of traveling before as someone with SMA? Does a loved one...Reactions 0 reactions Comments2 repliesTips & AdviceTravel
FeaturedTreatment Journey UpdateWhere are you on your treatment journey? Have you begun treatment or are you weighing your options? Do you have experience switching or stopping treatment? If you stopped, why did...Reactions 0 reactions Comments5 repliesTreatment
Active 3 days agoDating with SMAWhen dating with SMA, what are some activities one can do other than going out to dinner? The diverse the list the better! Share below...Reactions 0 reactions Comments0 repliesIntimacy & RelationshipsTips & Advice
Active 4 days agoDo you know a solution for those health issues?Hey there, life with SMA has never been easy, but since 2 years I´m having severe problems and need your advice... It all started with my first Covid Vaccination (Astra...Reactions 0 reactions Comments0 repliesMental HealthSleepSymptoms
Some tips for purchasing assistive equipment are ___________.Fill in the blank! What is your experience with purchasing assistive equipment? Are there certain wheelchairs or assistive tools that have helped you greatly? Imagine that you're talking to a...Reactions 0 reactions Comments3 repliesAssistive EquipmentTips & Advice
Welcomed Support for Parent-CaregiversWhat kind of support do you find useful as the parent-caregiver of a child with SMA? Who gives you that support and how do you ask for it...Reactions 0 reactions Comments0 repliesCaregivingFriends & Family
Sma led dync1h1 mutation Hello, I have several dync1h1 mutations and i am looking for expert who can confirm if they are pathogenic (report says acmg likely pathogenic) Thanks...Reactions 0 reactions Comments0 replies
A Question For The Community: Comfortable Bed Cushions "My wife has SMA and we are spending a fortune trying to find the right cushion for her to be able to sit. She started getting bedsores about a year...Reactions 0 reactions Comments0 repliesAssistive EquipmentTips & Advice
Your HeroesTell us about the person who has helped you the most as you've navigated living with SMA. Who has been your hero...Reactions 0 reactions Comments0 repliesCaregivingFriends & FamilyHealthcare Team
Body ImageWhat concerns do you have about your body image or perception? Is your perception accurate or do you have an image of yourself from a younger time? How does disability...Reactions 0 reactions Comments0 repliesAwareness
