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Are You in an Interabled Relationship?

What is your experience like being in an interabled relationship?

If you need inspiration, read Suzanne's perspective: https://spinalmuscularatrophy.net/living/interabled-relationships

Share below!

  1. I am having difficulty having an intimate sexual relationship with my nondisabled partner. He has no interest in physical intimate touch. We watch videos and self stimulate separately.

    1. , that can be difficult to navigate. Is he open about why he feels the way he does? I wanted to share an article that I hope may be helpful: https://spinalmuscularatrophy.net/dating-intimacy . Would he be willing to seek counseling tgether, or even individually? - Warmly, Donna (Team Member)

  2. Dating for me at times feels like coordinating the storming of Normandy. After get past finding a date must deal with transportation issues, places to go and things can do with a disability, accessibility, and simply financial cost.

    1. I like the comparison. It's a lot to pull together. One of our health leaders wrote this article about fun date ideas for interabled couples. Maybe one of her ideas will resonate with you. All the best, Kathy (Team member)

  3. Hallo liebe SMA Gemeinschaft, ich erhoffe mir von euch Profis in SMA einige hilfreiche Tipps für das Intimleben mit meinem wundervollen Partner, der SMA2 in seiner Genetik trägt und inzwischen 42 Jahre alt ist. Es gestaltet sich als Herausforderung Sex miteinander zu haben, aber diese nehme ich gerne in Kauf. Nix ist so schön wie ihn in mir spüren zu können und sich diese Nähe schenken zu können. Gerne würde ich mich mit Betroffenen austauschen, welche Stellungen und Hilfsmittel uns unterstützen können.


    Vielen Dank für eure Antwort!
    Herzlichst Jane

    1. , at this time, we can only moderate in English. I believe you are asking about intimacy with your partner. While you are waiting for feedback from the community, I wanted to share a couple of articles that may be helpful:
      https://spinalmuscularatrophy.net/myths
      https://spinalmuscularatrophy.net/living/debunking-myths
      https://spinalmuscularatrophy.net/dating-intimacy
      - Warmly, Donna (Team Member)


    2. English version:


      Hello dear SMA community, I hope you professionals in SMA will share some helpful tips for intimate life with my wonderful partner, who has SMA2 in his genetics and is now 42 years old. It is a challenge to have sex with each other, but I am happy to accept them. Nix is as beautiful as being able to feel it in me and to be able to give yourself that closeness. I would like to discuss with those affected which positions and aids can support us.
      Thank you very much for your reply!
      Sincerely Jane @

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