Changing My BiPap Machine...From childhood onward, change has been a constant challenge for me. Every time I needed a new wheelchair or medical device, anxiety would grip me tight. It always felt like... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
Looking For the Little Joys with SMA...Recently, I began going to see a therapist for my depression and anxiety. I was diagnosed with major manic depressive disorder. This means when I’m down, I’m really down. Therapy... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
When My Wheelchair Gets Damaged Beyond Repair...Usually, a situation like this would leave me in a very dark place. A few weeks ago, we were in a car accident, and I thank God every day that... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments0 comments
SMA Impacts Job Hunting...Last year, I decided I wanted to begin the process of looking for a job. Up until this point, I’d never worked a steady job before in or outside of... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
Financial Independence, The Food Edition...Let’s talk about financial independence. As you know from my first article here, financial freedom and independence are so hard. With Supplemental Security Income (SSI) limits, I can feel trapped... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments0 comments
My Journey to BiPap...Two years ago, I was hit with some bewildering symptoms. A loud roaring noise invaded my left ear during a visit to my sister in Maryland over the summer. I... By Jennifer Greer4 min readBookmark for laterReactions0reactionsComments0 comments
Navigating Medical Procedures With SMA...If you live with spinal muscular atrophy (SMA) of any type, then you know how difficult it can be to have medical procedures done. There’s a lot of logistics and... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
The Game Changer-BiPAP...I remember this day well. The start of an unbelievable journey. Who would have thought I needed to wear a BiPAP? It has never come to my mind. I wore... By Ainaa Farhanah3 min readBookmark for laterReactions0reactionsComments0 comments
School Safety Drills as a Student with SMA...During my school years, active participation in safety drills, including fire and tornado drills, was mandated. For the average able-bodied child, these drills seemed straightforward. When the alarm sounded, students... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
What has been the biggest obstacle you have overcome with SMA?...What was your greatest challenge, and how did you get through it?...Reactions0reactionsComments0 repliesCopingAwareness
Navigating Large Crowds In A WheelChair: My First Concert Experience...I have anxiety about being surrounded by large groups or crowds of people. But when Taylor Swift announced her 1989 World Tour was coming to Maryland a few years ago... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
Nighttime Tips and Tricks...Based on my friend Allie’s article about her morning routine, I thought I'd offer my nighttime routine. Here are some nightly tips and tricks that really help me. I would... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments0 comments
First Home Renovation...Buying a home is an exciting adventure. However, when you are dealing with a disability like spinal muscular atrophy, you know that you will need to make some renovations. If... By Mike Noon2 min readBookmark for laterReactions0reactionsComments0 comments
My Evrysdi Journey So Far...On December 23, 2016, I celebrated my birthday, marking a momentous occasion: the FDA had approved Spinraza as the inaugural treatment for spinal muscular atrophy (SMA). I recall lying in... By Jennifer Greer4 min readBookmark for laterReactions0reactionsComments0 comments
Traveling Shower Hacks...One of the most common questions I get asked regarding my frequent traveling is how I shower. Of course, this depends on our lodging situation, whether it be a hotel... By Megan DeJarnett3 min readBookmark for laterReactions0reactionsComments0 comments
Having Able-Bodied Siblings As Someone With SMA...I am the youngest of my siblings at twenty nine years old. I have two step-brothers and one step-sister. Due to genetics, I am the only one in my family... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments1 comments
Support Animals...Do you have a support animal? Tell us about it, and we'd LOVE to see a picture!...Reactions0reactionsComments0 repliesCoping
Learning the Hard Way: Ensuring Safety for Students with Disabilities...When I was in school, I had a personal aide who accompanied me every day and followed me through several grades. She knew all about me, my specific needs, and... By Jennifer Greer4 min readBookmark for laterReactions0reactionsComments0 comments
My Process For A New Wheelchair...Hello all! Today I wanted to share my wheelchair stories and my tips for getting a new one! Since my family can't afford a van, (why are they so ridiculously... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments0 comments
Health Literacy and SMA...For people with spinal muscular atrophy (SMA), health literacy is crucial. SMA is a genetic disorder that affects muscle strength and movement. Here is why health literacy matters, the impacts... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments