Navigating the Dating Scene When You Have SMA...The dating landscape with social media and dating apps is not always an ideal way to meet others when you have a...reactions2comments
When My Wheelchair Stopped Feeling Like Home...For many people with spinal muscular atrophy (SMA), a wheelchair is more than a piece of equipment. It’s an extension of the...reactionscomments
How to Cope When Your Child Is Diagnosed With SMA...A child’s diagnosis of spinal muscular atrophy (SMA) can be a life-changing event for parents. Parents say they feel a range of...reactions1comment
My Son's Own Apartment ...When we moved into our new home in 1988 we had an apartment included for Grandma. In 2000 she decided to move...reactionscomments
Essential Items for Managing Daily Life With SMA...Living with spinal muscular atrophy takes a lot of preparation and planning ahead. We reached out to our team of advocates here...reactions3comments
What to Consider When Choosing Between Spinraza and Evrysdi...If you are taking Spinraza® (nusinersen) for spinal muscular atrophy (SMA), then you may be curious about Evrysdi® (risdiplam). Both therapies are...reactionscomments
Non-Invasive Breathing Support (NIV)...People with spinal muscular atrophy (SMA) often have difficulty breathing because of chest muscle weakness. Breathing support can make sure they get...
How I Protect My Physical and Mental Health with SMA...Living with spinal muscular atrophy (SMA) causes a toll on your mental and physical health on a daily basis. You learn to live...reactionscomments
My Experience with Wheelchair Joystick Grips...Living with SMA, it often feels like we’re slowly losing strength or independence daily. Of course, now with the new medications that...reactions1comment
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who...
Summertime With SMA...Good old summertime! How do you manage the summer with your SMA? Do you embrace the hot summer weather or prefer to...reactionscomments
Understanding Mental Health and Mental Health Resources...Living with a chronic illness is about more than just physical symptoms. It also impacts how you think, feel, and act. For...
What an Interabled Relationship is Really Like: A Perspective on SMA and Love...Love knows no boundaries, and when it comes to interabled relationships, it is no different. Mike and I are in an interabled...reactionscomments
Samantha Przybylski...Samantha Przybylski is a 38-year-old mother and fiancé, living in Wisconsin. She was diagnosed with spinal muscular atrophy type 3 at the...
Community Health Leaders...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with spinal muscular atrophy...
A Guide to Disclosing SMA to Your Employer...Talking to an employer about spinal muscular atrophy (SMA) can be scary. But many people find that open communication with their employer...reactionscomments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent...
Keeping Positive During Life’s Transitions...Our lives will be constantly changing. This is true for everyone. Whether you are disabled or not. Life never stays stagnant so...reactionscomments
My Diagnosis Story: Living With Spinal Muscular Atrophy...It all started here Mom was wondering why a bubbly little girl who can already speak at 10 months old cannot crawl...reactions1comment
Allie Williams...Allie Williams is a 45-year-old woman with spinal muscular atrophy type 2. She was diagnosed at age 18 months, and her parents...
