Samantha Przybylski...Samantha Przybylski is a 38-year-old mother and fiancé, living in Wisconsin. She was diagnosed with spinal muscular atrophy type 3 at the...
Community Health Leaders...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with spinal muscular atrophy...
A Guide to Disclosing SMA to Your Employer...Talking to an employer about spinal muscular atrophy (SMA) can be scary. But many people find that open communication with their employer...reactionscomments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent...
Keeping Positive During Life’s Transitions...Our lives will be constantly changing. This is true for everyone. Whether you are disabled or not. Life never stays stagnant so...reactionscomments
My Diagnosis Story: Living With Spinal Muscular Atrophy...It all started here Mom was wondering why a bubbly little girl who can already speak at 10 months old cannot crawl...reactions1comment
Allie Williams...Allie Williams is a 45-year-old woman with spinal muscular atrophy type 2. She was diagnosed at age 18 months, and her parents...
Coping as a Young Adult With SMA...We asked a couple of our young Health Leaders, Kellie and Jennifer, about the transition from their teenage years to adulthood, how...reactions6comments
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who...
Coping with Anxiety and Helplessness with SMA When Alone...I was having a panic attack about being alone. As of writing this, I got a facial yesterday. My parents decided to...reactions7comments
What Does It Mean to Be a Silent Carrier for SMA?...Spinal muscular atrophy (SMA) is a rare genetic disorder passed from parents to their children. SMA affects the spinal nerves by causing...reactionscomments
Dealing with SMA in the Age of Social Media...This article is more for parents of younger children who have SMA. There are a lot of Facebook groups revolving around SMA...reactions4comments
My Go-To Tips for Dealing With Low Energy with SMA...I often struggle with low energy, year-round. I'd like to share some things that have helped me and hopefully will help you...reactions6comments
4 Fun and Accessible Date Ideas for Interabled Couples...I’m a firm believer that dating your spouse is equally as important when you’re 5 or 10 years into marriage than it...reactionscomments
A Parent's Long Journey to Finding SMA Treatment...When we are given a health issue, we face a new journey. When it’s our own personal journey, we do our best...reactions1comment
Asking For Help With SMA: Grocery Shopping...Living with spinal muscular atrophy (SMA) Type 2 means navigating a world where asking for help is a constant necessity. My body...reactions2comments
My Favorite Assistive Devices for Living with SMA...With spinal muscular atrophy, you know the easier something is, the better off you are. When you struggle to do the silliest...reactions5comments
Wheelchair Recommendations and Favorite Features...As someone with spinal muscular atrophy, I understand the importance of selecting the correct wheelchair. Not only is it a huge financial...reactions1comment
Tips for a Successful Night Out as a Wheelchair User...Going out can be nerve-wracking for anyone. But when you're a wheelchair user with spinal muscular atrophy, the stress can multiply. From...reactions3comments
The Ultimate SMA Gift Guide for Adults and Teens...No matter the time of year, we can always use a thoughtful gift. Here’s a guide to gifts that are accessible, thoughtful...reactions4comments
