Active todayCommunity Question: What would you buy?...If you found $50 on the sidewalk and wanted to help yourself manage your SMA, what would you buy?...Reactions0reactionsComments0 repliesResources
Anxious When I Am Alone...I was having a panic attack about being alone. As of writing this, I got a facial yesterday. My parents decided to hang out by the pool in the spa...Reactions0reactionsComments1 comments
Losing Weight With SMA...When people think about losing weight, they often envision crafting an exercise routine tailored to their body's needs—a regimen that promises to target and tone problem areas. They hit the...Reactions0reactionsComments0 comments
Best Experience Ever...I was thrilled to be nominated as one of the finalists for the Women of the Future Award - Asia. The experience itself was nothing short of extraordinary and gave...Reactions0reactionsComments0 comments
Holiday Season Blues...The holiday season, with its festive lights and warm gatherings, often evokes a bittersweet feeling within me. Maybe it's because my birthday coincides with this season, serving as a reminder...Reactions0reactionsComments3 comments
Venting about dating sites...I have used them off and on for years now. I really hate how they are set up. Most of them prioritize photos to an extent that sometimes people have...Reactions0reactionsComments3 repliesDisabilityIntimacy & RelationshipsStigma
SMA Friendly Christmas Gift Guide...As the holiday season rolls around, it’s time to find thoughtful gifts everyone will love. If you’re shopping for a teen or adult with spinal muscular atrophy (SMA), finding the...Reactions0reactionsComments4 comments
Overcoming Obstacles...What has been the biggest obstacle that you have overcome with SMA? What was your greatest challenge and how did you get through it? Health Leader Samantha Przybylski writes: The...Reactions0reactionsComments0 comments
Back Swimming...Recently my son, his brother and I went back to hydrotherapy after 1 and half years. It was an amazing experience. We are hoping to do it every weekend....Reactions0reactionsComments2 replies
Overcoming Obstacles From Painting To The Field...Navigating the challenges associated with neurodegenerative conditions has always been an arduous journey, filled with ups and downs. Living with spinal muscular atrophy (SMA) feels akin to managing a full-time...Reactions0reactionsComments1 comments
FeaturedWould you be willing to share your SMA caregiving story?...We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so, please email us at contact@spinalmuscularatrophy.net. You’re also welcome...Reactions0reactionsComments0 repliesCaregiving
Useful Things For Someone With SMA...With spinal muscular atrophy, you know the easier something is, the better off you are. When you struggle to do the silliest task, having items or tools there to help...Reactions0reactionsComments0 comments
What makes a great present for you?...🎁 What would you like to receive as a disabled person? What would make your life easier? 🎁...Reactions0reactionsComments1 repliesAssistive Equipment
Perks of Living With SMA...Some might think living with spinal muscular atrophy (SMA) is all bad. That life is full of doom and gloom, but I am here to let you know it’s not...Reactions0reactionsComments4 comments
Learning From a Fall: Safety Tips for Wheelchair Users...The other day, I fell out of my wheelchair. It’s not the first time this has happened, but it was definitely the most memorable. I’ll admit, when I was younger...Reactions0reactionsComments0 comments
Braving Surgery: My Journey with SMA and Kidney Stones...Living with spinal muscular atrophy (SMA) Type 2 brings a unique set of challenges into my everyday life, but nothing has tested me quite like my current battle with kidney...Reactions0reactionsComments0 comments
Who Knew Cats Are SMA Friendly?...Throughout my childhood, dogs were a constant presence in my life. From Golden Retrievers to Yorkies and Chihuahuas, I was surrounded by faithful companions who brought immense joy and comfort...Reactions0reactionsComments0 comments
Changing My BiPap Machine...From childhood onward, change has been a constant challenge for me. Every time I needed a new wheelchair or medical device, anxiety would grip me tight. It always felt like...Reactions0reactionsComments0 comments
Looking forward to Winter...December is officially upon us! At the end of the year, I reflect upon it. Usually, my seasonal depression really affects me, and this year, I finally don't feel that...Reactions0reactionsComments0 comments
Looking For the Little Joys with SMA...Recently, I began going to see a therapist for my depression and anxiety. I was diagnosed with major manic depressive disorder. This means when I’m down, I’m really down. Therapy...Reactions0reactionsComments0 comments