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...It’s a bittersweet reality when the person who has always been your guiding light becomes the one needing care themselves. In August 2024, my mum, who has been my primary...

...When living with spinal muscular atrophy (SMA), finding comfortable, functional, and stylish clothes can be a significant challenge. See some tips below for finding adaptable clothing, and hear what others...

...The bright lights of Broadway have long been a beacon for dreamers, a symbol of passion, talent, and hard work converging to create magic on stage. But let's be honest:...

...Recovering from my kidney stone removal didn’t go as planned. I expected some discomfort, but I never anticipated the complications that followed. Since it was an outpatient procedure, I went...

...Living with spinal muscular atrophy (SMA) Type 2 means navigating a world where asking for help is a constant necessity. My body simply cannot do everything I want it to...

...Since spinal muscular atrophy is part of a rare disease, I’m taking this opportunity to recap the journey. To be able to share my experiences and stories for good is...

...Navigating life with Spinal Muscular Atrophy (SMA) encompasses a myriad of challenges and triumphs, particularly concerning treatment experiences, personal relationships, and quality of life. Understanding these facets is crucial for...

...I had the opportunity to participate in a video production for Rare Disease Day 2025, and it was a truly wonderful experience. The shooting took place in an entirely different...

...If you’ve ever felt frustrated during a doctor’s visit, you’re not alone. For many of us with disabilities, those visits can sometimes feel more like obstacles to overcome than opportunities...

...A few weeks ago, I went in for my routine pulmonary checkup. These appointments happen every six to twelve months because of my spinal muscular atrophy type 2 (SMA) and...

...I was having a panic attack about being alone. As of writing this, I got a facial yesterday. My parents decided to hang out by the pool in the spa...

...When people think about losing weight, they often envision crafting an exercise routine tailored to their body's needs — a regimen that promises to target and tone problem areas. They...

...I was thrilled to be nominated as one of the finalists for the Women of the Future Award - Asia. The experience itself was nothing short of extraordinary and gave...

...The holiday season, with its festive lights and warm gatherings, often evokes a bittersweet feeling within me. Maybe it's because my birthday coincides with this season, serving as a reminder...

...As the holiday season rolls around, it’s time to find thoughtful gifts everyone will love. If you’re shopping for a teen or adult with spinal muscular atrophy (SMA), finding the...