Are You in an Interabled Relationship?...What is your experience like being in an interabled relationship?...Reactions0reactionsComments0 repliesIntimacy & Relationships
Standing my ground...All this to say, have you ever had to set a boundary or gotten to a place where you were tired Reactions0reactionsComments1 repliesMental Health
Traveling with spinal muscular atrophy...If not, why have you chosen not to travel? Share below....Reactions0reactionsComments0 repliesTravel
How do you combat feeling low? What lifts you back up on those hard days? -Jennifer Moderator...Reactions0reactionsComments0 replies
Getting Creative: Lack of Assistive Equipment...Do you have any recent experiences of having to get creative when there is a lack of assistive equipment, or your circumstances...Reactions0reactionsComments3 repliesAssistive Equipment
Independence & SMA...What would complete and total independence look like for you? How would you describe it?...Reactions0reactionsComments2 repliesTips & Advice
A Question For The Community: Comfortable Bed Cushions..."My wife has SMA and we are spending a fortune trying to find the right cushion for her to be able Reactions0reactionsComments2 repliesTips & AdviceAssistive Equipment
SMA 3 with handweakness...years of being a neurologist he has never seen this in a teen. He mentioned specifically spinal muscular atrophy but his legs are Reactions0reactionsComments5 replies
Body Image...What concerns do you have about your body image or perception? Is your perception accurate or do you have an image Reactions0reactionsComments0 repliesAwareness
Loss Support Thread ...Have you lost a loved one to spinal muscular atrophy? This is a safe space for you....Reactions0reactionsComments0 replies
FeaturedTreatment Journey Update...Do you have experience switching or stopping treatment? If you stopped, why did you? Tell us your story below....Reactions0reactionsComments7 repliesTreatment
Mental Health Check...May is mental health awareness month, a time to increase awareness of the importance of mental health and wellness. How are you...Reactions0reactionsComments0 repliesMental Health
Support Animal...Do you have a support animal/pet? What do you love about them? Would you recommend a support animal for other SMA...Reactions0reactionsComments1 repliesTips & Advice
Help us understand the impact of SMA [Update: Survey now closed!]...To better understand the patient experience and realities of spinal muscular atrophy, we are fielding our first In America survey....Reactions0reactionsComments0 replies
Awareness Month 2023 ...Or do you wish there wasn't even an awareness month? All opinions are safe here. Share below....Reactions0reactionsComments1 replies
FeaturedDoctors won’t address my sma...After bringing it up with my doctor, she dismisses it like it’s nothing. Is this something that adults just get as we...Reactions0reactionsComments2 repliesTestingSymptomsHealthcare Team
Will you take our 2023 In America survey and help others understand the true impact of SMA?...To better understand the patient experience and realities of SMA, we are fielding our 2023 SMA In America survey....Reactions0reactionsComments0 repliesAwareness
Will you take our In America survey and help others understand the true impact of SMA?...By taking this anonymous survey, you can help everyone better understand the real impact of SMA....Reactions0reactionsComments0 repliesAwareness
Preventing Pressure Injuries for wheelchair bound...He is wheelchair bound and spends a majority of his day in the wheelchair and weight shifting is difficult....Reactions0reactionsComments3 replies
You are more than someone with SMA. Who are you?...SMA is an all-consuming condition and affects so much of our lives. Other than SMA, how do you describe yourself? What...Reactions0reactionsComments0 repliesAwareness
