Awareness Month 2023 Spotlight: Your SMA Story ...What brings you to our community? Do you identify has a caregiver, patient, or health care provider? Use this forum space to...Reactions0reactionsComments0 repliesAwareness
Warm Weather Essentials...Summer is here! What things do you keep with you on a day to day basis to ensure that you can...Reactions0reactionsComments2 repliesTips & Advice
SMA Awareness Month Discussion Board: What do you wish others knew about SMA?...If there was one thing you could tell the world about SMA, what would it be?...Reactions0reactionsComments6 repliesAwarenessMyths & Misconceptions
Accessible Summer Fun...Share your tips for accessible summer activities for kids OR adults. What do you do to enjoy the 'good old summertime?'...Reactions0reactionsComments0 repliesExercise & Activity
Working with Nonprofits...Do you have experience working with nonprofits? Have you been able to receive funding through them for assistive technology or something else?...Reactions0reactionsComments0 repliesAssistive EquipmentTips & Advice
Finding Kindness ...If you've experienced the opposite, how have you handled situations where you needed help but people were bystanders?...Reactions0reactionsComments0 repliesAwareness
Young Adults With SMA: How do you balance the need for independence with the need for care?...What are your tips for the transition from childhood/teen years to adulthood with SMA?...Reactions0reactionsComments0 repliesTips & Advice
FeaturedTips for Cold/Flu Season...Getting sick is no fun! What're some tips and tricks you have to survive cold and flu season?...Reactions0reactionsComments4 repliesTips & Advice
What's in your winter essentials tool kit?...Have you found a product(s) that helps keep you extra warm during the winter months? Share with our community!...Reactions0reactionsComments4 repliesTips & Advice
How do you manage your energy with SMA?...What tips do you have that have helped you manage and conserve your energy while living with SMA?...Reactions0reactionsComments4 repliesTips & Advice
Do you have experience wearing adaptive clothing?...Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share them with our community!...Reactions0reactionsComments4 repliesTips & Advice
Daily Routines...What is your daily routine? Have you found that a routine helps you manage your SMA? Share below....Reactions0reactionsComments0 repliesTips & Advice
Accessibility Etiquette...What drives you crazy about the way people interact with you as someone with a disability? How do you wish people would treat...Reactions0reactionsComments2 repliesAwarenessFriends & FamilyMyths & Misconceptions
Accessibility Challenges...Have you faced accessibility challenges lately? Maybe when trying to go out and do something social? We want to hear your stories here...Reactions0reactionsComments0 repliesDisabilityTips & Advice
SMA Specialist Discussion Board: What Do You Look For?...Feel free to share your experience with SMA specialists, and what you look for when searching for the right doctor. ...Reactions0reactionsComments5 repliesSpecialists
Your Heroes...Tell us about the person who has helped you the most as you've navigated living with SMA. Who has been your hero?...Reactions0reactionsComments0 repliesCaregivingFriends & FamilyHealthcare Team
Advice: Younger patients with SMA...What advice would you tell your younger self? Are there things you wish someone would've told you?...Reactions0reactionsComments0 repliesTips & Advice
Recently Diagnosed Discussion Board...Ask your questions here and our patient leaders will respond with their experiences....Reactions0reactionsComments0 repliesNewly Diagnosed
Barriers with SMA...What do you feel are your greatest barriers living with SMA? How do you navigate these barriers?...Reactions0reactionsComments0 repliesMental Health
Which assistive devices have you found most helpful?...Please share your experience with spinal muscular atrophy assistive devices. ...Reactions0reactionsComments3 repliesAssistive Equipment
