First Home RenovationBuying a home is an exciting adventure. However, when you are dealing with a disability like spinal muscular atrophy, you know that you will need to make some renovations. If...reactionscomments
Abilities ExpoI have been using my new powered wheelchair for about a year. When I am sitting for long periods of time, I can become uncomfortable. I reached out to my...reactionscomments
Lack of Accessible UbersIn May, I was out to dinner with my girlfriend Suzanne and a few of my old colleagues. After dinner, Suzanne wanted to go to Homegoods to look at some...reactionscomments
Buying My First HomeAfter almost 2 years of searching and being outbid, my dream of becoming a homeowner has come to fruition. I would imagine the majority of the able bodied population enjoys...reactionscomments
Can Someone Really Predict Life Expectancy?I was about 4 years old when my parents became concerned about my physical well-being. My younger brother was becoming stronger than me, and this alerted my parents that something...reactionscomments
Genetic CounselingI was born in the 1970s and, while genetic counseling started in 1969, it wasn’t what it is today. There was no known history of any kind of muscular dystrophy...reactions1comment
Personal GrowthBeing born with a genetic disorder like spinal muscular atrophy forces us to adapt to a world that wasn’t built for disabled people. As a child, we experience this from...reactions2comments
Six Months With My First Power ChairIt has been six months since I started using my first power wheelchair. Over the last 28 years, I used an electric scooter to get around. The biggest reason for...reactionscomments
Helping Others Helps MeLiving with a disability like spinal muscular atrophy can be difficult at times. My 46 years of experience have taught me some life lessons about what is important to me. ...reactionscomments
Managing Thoughtless CommentsIf you use a wheelchair or scooter like me, because of spinal muscular atrophy, I am sure you have heard all of the comments. Wow, that looks fun. Wanna race? ...reactionscomments
Wheelchair Accessible Seating HacksWho has dealt with the frustration of securing wheelchair-accessible seats? It can be a pain in the neck sometimes. Over the years I’ve gone to hundreds of sporting events and...reactions3comments
Medicare Denials and Wonderful NonprofitsI recently wrote about my first wheelchair seating clinic experience. Since I wrote that article I was denied by Medicare for the seat elevator. Medicare evidently has a policy in...reactions1comment
Transitioning to My First Electric WheelchairI’ve been using my new Permobil wheelchair for just about a month now. The last few months that I was using my scooter became a little more difficult. I’ve been...reactions2comments
Mental Health Awareness MonthMay was designated National Mental Health Awareness Month in 1949 by the United States Congress due to the increased number of veterans suffering from mental illnesses after returning from World...reactionscomments
Keeping Positive During Life’s TransitionsOur lives will be constantly changing. This is true for everyone. Whether you are disabled or not. Life never stays stagnant so how can we adapt and stay positive? Staying...reactionscomments
A Family AffairI have been writing about my spinal muscular atrophy journey for a few years now. I often wonder who out there is reading these articles. Obviously it can be intimidating...reactions2comments
Red OctoberAny sports fan in the Philadelphia area will understand the phrase Red October. For those of you who are not lucky enough to live here and understand the phrase let...reactionscomments
My First Wheelchair Seating ClinicIn previous articles, I’ve written about perception. How we are perceived is a big part of ourselves. When I went off to college, I knew that I wouldn’t be able...reactionscomments
Body PerceptionOne of my missions is giving teenagers the confidence that life isn’t all doom and gloom when dealing with a disability. Back in 2017 I was lucky to be invited...reactions1comment
Hurt Back and Guilty ConsciousI’ve talked about the guilt I deal with in regards to the amount of work people need to exert in order to assist me throughout the day because of my...reactions1comment
