First Home RenovationBuying a home is an exciting adventure. However, when you are dealing with a disability like spinal muscular atrophy, you know that...reactionscomments
Abilities ExpoI have been using my new powered wheelchair for about a year. When I am sitting for long periods of time, I...reactionscomments
Lack of Accessible UbersIn May, I was out to dinner with my girlfriend Suzanne and a few of my old colleagues. After dinner, Suzanne wanted...reactionscomments
Buying My First HomeAfter almost 2 years of searching and being outbid, my dream of becoming a homeowner has come to fruition. I would imagine...reactionscomments
Can Someone Really Predict Life Expectancy?I was about 4 years old when my parents became concerned about my physical well-being. My younger brother was becoming stronger than...reactionscomments
Genetic CounselingI was born in the 1970s and, while genetic counseling started in 1969, it wasn’t what it is today. There was no...reactions1comment
Personal GrowthBeing born with a genetic disorder like spinal muscular atrophy forces us to adapt to a world that wasn’t built for disabled...reactions2comments
Six Months With My First Power ChairIt has been six months since I started using my first power wheelchair. Over the last 28 years, I used an electric...reactionscomments
Helping Others Helps MeLiving with a disability like spinal muscular atrophy can be difficult at times. My 46 years of experience have taught me some...reactionscomments
Managing Thoughtless CommentsIf you use a wheelchair or scooter like me, because of spinal muscular atrophy, I am sure you have heard all of...reactionscomments
Wheelchair Accessible Seating HacksWho has dealt with the frustration of securing wheelchair-accessible seats? It can be a pain in the neck sometimes. Over the years...reactions3comments
Medicare Denials and Wonderful NonprofitsI recently wrote about my first wheelchair seating clinic experience. Since I wrote that article I was denied by Medicare for the...reactions1comment
Transitioning to My First Electric WheelchairI’ve been using my new Permobil wheelchair for just about a month now. The last few months that I was using my...reactions2comments
Mental Health Awareness MonthMay was designated National Mental Health Awareness Month in 1949 by the United States Congress due to the increased number of veterans...reactionscomments
Keeping Positive During Life’s TransitionsOur lives will be constantly changing. This is true for everyone. Whether you are disabled or not. Life never stays stagnant so...reactionscomments
A Family AffairI have been writing about my spinal muscular atrophy journey for a few years now. I often wonder who out there is...reactions2comments
Red OctoberAny sports fan in the Philadelphia area will understand the phrase Red October. For those of you who are not lucky enough...reactionscomments
My First Wheelchair Seating ClinicIn previous articles, I’ve written about perception. How we are perceived is a big part of ourselves. When I went off to...reactionscomments
Body PerceptionOne of my missions is giving teenagers the confidence that life isn’t all doom and gloom when dealing with a disability. Back...reactions1comment
Hurt Back and Guilty ConsciousI’ve talked about the guilt I deal with in regards to the amount of work people need to exert in order to...reactions1comment
