Staying Mentally HealthyI’m in my mid 40’s and I find it encouraging that mental health has become more out in the open. I know...reactionscomments
When Your Significant Other Becomes Your PCASuzanne and I met over 6 years ago. We both had an attraction to each other. Our friendship grew into a relationship...reactionscomments
Helping Others Helps MeLiving with a disability like spinal muscular atrophy can be difficult at times. My 46 years of experience have taught me some...reactionscomments
Dealing With GuiltGuilt can be rough to deal with. Everyone deals with guilt on some level. I’m sure my parents and siblings have dealt...reactionscomments
The Weight of Guilt: My Struggle With SMA and its Impact on CaregiversI’ve talked about the guilt I deal with in regards to the amount of work people need to exert in order to...reactions3comments
The Frustrations of Broken EquipmentWhen living with a disability like spinal muscular atrophy, we heavily rely on equipment that gives us our independence. This freedom is...reactions2comments
How Expensive Is That Minivan?I want to talk about the extra expenses for anyone who deals with a physical disability. Dealing with the physical aspects of...reactions4comments
My Experience With Massage Therapy and SMAI wrote an article talking about the benefits I have been experiencing from stretching. I also had a long run at receiving...reactions2comments
Transitioning to My First Electric WheelchairI’ve been using my new Permobil wheelchair for just about a month now. The last few months that I was using my...reactions2comments
The Importance of StretchingBeginning in my early 30’s, SMA started to take away a lot of my strength. As a result, I began sitting more...reactionscomments
Patronizing CommentsI was on a Zoom call with other people who were disabled. One of the moderators who wasn’t disabled made a comment...reactions2comments
Red OctoberAny sports fan in the Philadelphia area will understand the phrase Red October. For those of you who are not lucky enough...reactionscomments
Adapting and Fitting InWe all want to fit in. What does that look like? Who do we want to be? I believe that everyone deals...reactions2comments
A Family AffairI have been writing about my spinal muscular atrophy journey for a few years now. I often wonder who out there is...reactions2comments
Traveling with SMAWhen it came to my level of independence, I have been pretty lucky. An area of my life that was always a...reactionscomments
Trying to Experience an Inaccessible WorldI have so many stories to tell regarding this topic. I have talked about how lucky I consider myself in previous articles...reactions3comments
Maintaining Friends While Living With a DisabilityThis topic recently came up while talking with other writers from this page. I am very outgoing and have always loved being...reactions3comments
The Awkward GreetingA few weeks ago Suzanne and I went out to dinner with friends of ours to a new restaurant. We arrived first...reactionscomments
Why is He in a Wheelchair?"Why is he in a wheelchair?" If I had a dollar every time I heard that phrase, I would be rich. I...reactionscomments
What Is an Accessible Home? I have been house shopping. There is a better chance of winning the lottery than finding the perfect home that is 100%...reactionscomments
