Awarded an MBE for Disability AdvocacyIf I were to say 2023 has been a wild ride, it would be a huge understatement - and there are still...reactions1comment
Radical InclusivityDefinition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice...reactions1comment
What is Your Definition of Independence?Living with a disability can make us stubborn in our ways. I know for me it’s the inability to control what my...reactionscomments
5 Tips for Dating with a DisabilityThe dating landscape with social media and dating apps is not always an ideal way to meet others when you have a...reactions2comments
Let’s Make Flying More AccessibleEverybody deserves to get away and chill by the pool or visit their dream destination. But traveling with a disability can be...reactions3comments
Airline Travel When You Have SMA – Tips, Tricks, and What to Know Before You Go!Traveling when you have SMA can be a daunting undertaking. Many individuals who have SMA have never flown on an airplane. Air...reactionscomments
Air TravelMy biggest advice for traveling with SMA through airfare is to communicate, communicate, communicate. OVER-communicate. At least for me, I hate feeling...reactionscomments
Adapting MakeupMakeup for me has always been something I give myself as a gift of self-care. I enjoy doing my makeup every day and...reactionscomments
Smart IndependenceAs an independent disabled adult, one of my fears is that I will be alone with a caregiver and the caregiver will...reactions2comments
Working with SMA I have mentioned in a previous article that I have worked full time. After graduating college, I had a hard time finding...reactionscomments
Cold Weather Tool Kit EssentialsThe anticipation of the winter season brings joy and excitement to many as it heralds the arrival of holidays and gatherings with...reactions5comments
Six Months With My First Power ChairIt has been six months since I started using my first power wheelchair. Over the last 28 years, I used an electric...reactionscomments
Competing In Sports With SMAMy SMA story begins at the age of two. Up until that time, I was meeting all my physical milestones until one...reactions3comments
Traveling For The Holidays With SMAThe holiday season is around the corner, and many of us are gearing up for travel to visit friends and family. I know...reactionscomments
Power of the ChairWhen people see another person in a wheelchair, a subtle transformation occurs, and they do their best to act with kindness. Often...reactions1comment
Patient Assistance Programs for SMAAffording your spinal muscular atrophy (SMA) drugs and other treatment costs can be challenging. Luckily, there are programs that may be able...reactionscomments
The Benefits of Opening an ABLE AccountFinancial planning can be a daunting task for anyone, but for individuals with disabilities, such as spinal muscular atrophy, and their families...reactionscomments
Top Things To Do in NYC That Are AccessibleMy mom and I love to travel, and as we live close to the city, New York City, I wanted to share...reactionscomments
ABLE Account InformationLet’s talk about saving money while being on government assistance in the United States. I am on social security disability which is...reactionscomments
Telling Loved Ones About Your Child's SMA DiagnosisAfter getting news that your child has a serious illness like spinal muscular atrophy (SMA), you will likely turn to family and...reactionscomments
