How to Maintain Privacy with Around-the-Clock Care at Home...The other day I was in my home observing the business. I had two caregivers shuffling through my bedroom and kitchen, kids...reactionscomments
Independent Living With SMA...A common concern for adults with spinal muscular atrophy (SMA) is a loss of independence. As muscle weakness worsens over time, adults...
Caring For A Loved One...Being paid to take care of someone is a thought that never crossed my mind. Growing up in a large family and...reactionscomments
Looking forward to Winter...December is officially upon us! At the end of the year, I reflect upon it. Usually, my seasonal depression really affects me...reactionscomments
My Favorite Accessible Gifts...I know that, overall, finding gifts can be tough, especially finding things for someone who is disabled and has specific needs, like...reactionscomments
Braving Surgery: My Journey with SMA and Kidney Stones...Living with spinal muscular atrophy (SMA) Type 2 brings a unique set of challenges into my everyday life, but nothing has tested...reactionscomments
Who Knew Cats Are SMA Friendly?...Throughout my childhood, dogs were a constant presence in my life. From Golden Retrievers to Yorkies and Chihuahuas, I was surrounded by...reactions3comments
Looking For the Little Joys with SMA...Recently, I began going to see a therapist for my depression and anxiety. I was diagnosed with major manic depressive disorder. This...reactionscomments
When My Wheelchair Gets Damaged Beyond Repair...Usually, a situation like this would leave me in a very dark place. A few weeks ago, we were in a car...reactionscomments
SMA Impacts Job Hunting...Last year, I decided I wanted to begin the process of looking for a job. Up until this point, I’d never worked...reactions2comments
Samantha Przybylski...Samantha Przybylski is a 33-year-old mother and wife, living in Wisconsin. She was diagnosed with spinal muscular atrophy type 3 at the...
Financial Independence, The Food Edition...Let’s talk about financial independence. As you know from my first article here, financial freedom and independence are so hard. With Supplemental...reactionscomments
Tips for Talking to Your Doctor About SMA...Most people living with spinal muscular atrophy (SMA) need care from multiple doctors. Regular doctor’s visits help you or your child manage...reactionscomments
Navigating Medical Procedures With SMA...If you live with spinal muscular atrophy (SMA) of any type, then you know how difficult it can be to have medical...reactionscomments
Teaching Your Kids About Disabilities...From a very young age, I've been intimately familiar with the world of disabilities. Diagnosed with SMA type 2 at just 18...reactionscomments
The Game Changer-BiPAP...I remember this day well. The start of an unbelievable journey. Who would have thought I needed to wear a BiPAP? It...reactionscomments
Community...Have a question? Ask the community! Share your story or read about others living with spinal muscular atrophy. Post in our forum...
School Safety Drills as a Student with SMA...During my school years, active participation in safety drills, including fire and tornado drills, was mandated. For the average able-bodied child, these...reactionscomments
Michaela Hollywood...Michaela is a 30-something woman living in County Down, Northern Ireland. The youngest of four girls, she loves being surrounded by family...
Megan DeJarnett...Megan DeJarnett is a wife, mother of 2, children's book author, and disability advocate and influencer. She loves encouraging others that there's...
