Best Experience Ever...I was thrilled to be nominated as one of the finalists for the Women of the Future Award - Asia. The experience...reactionscomments
Holiday Season Blues...The holiday season, with its festive lights and warm gatherings, often evokes a bittersweet feeling within me. Maybe it's because my birthday...reactions3comments
My Spark is Music, Not SMA...This year's theme for SMA Month was SMA does not define us. For Allie Williams, a patient leader for SpinalMuscularAtrophy.net, her life...reactions1comment
Sports and Recreation: Finding the Right Fit...Different types of SMA come with different physical abilities. Some people have a mild form of the illness and can walk. Others...reactionscomments
Mental Health with SMA – A Cellphone Analogy...The best way I can describe living with a chronic disease like SMA is that I am a cellphone and my disease...reactions3comments
Challenges with SMA Treatments...We asked our team of advocates: What challenges have you faced around SMA treatment options?Allie: Due to how the approval of the...reactionscomments
Overcoming Obstacles From Painting To The Field...Navigating the challenges associated with neurodegenerative conditions has always been an arduous journey, filled with ups and downs. Living with spinal muscular...reactions1comment
How to Maintain Privacy with Around-the-Clock Care at Home...The other day I was in my home observing the business. I had two caregivers shuffling through my bedroom and kitchen, kids...reactionscomments
Independent Living With SMA...A common concern for adults with spinal muscular atrophy (SMA) is a loss of independence. As muscle weakness worsens over time, adults...
Caring For A Loved One...Being paid to take care of someone is a thought that never crossed my mind. Growing up in a large family and...reactionscomments
Looking forward to Winter...December is officially upon us! At the end of the year, I reflect upon it. Usually, my seasonal depression really affects me...reactionscomments
My Favorite Accessible Gifts...I know that, overall, finding gifts can be tough, especially finding things for someone who is disabled and has specific needs, like...reactionscomments
Braving Surgery: My Journey with SMA and Kidney Stones...Living with spinal muscular atrophy (SMA) Type 2 brings a unique set of challenges into my everyday life, but nothing has tested...reactionscomments
Who Knew Cats Are SMA Friendly?...Throughout my childhood, dogs were a constant presence in my life. From Golden Retrievers to Yorkies and Chihuahuas, I was surrounded by...reactions3comments
Looking For the Little Joys with SMA...Recently, I began going to see a therapist for my depression and anxiety. I was diagnosed with major manic depressive disorder. This...reactionscomments
When My Wheelchair Gets Damaged Beyond Repair...Usually, a situation like this would leave me in a very dark place. A few weeks ago, we were in a car...reactionscomments
SMA Impacts Job Hunting...Last year, I decided I wanted to begin the process of looking for a job. Up until this point, I’d never worked...reactions2comments
Financial Independence, The Food Edition...Let’s talk about financial independence. As you know from my first article here, financial freedom and independence are so hard. With Supplemental...reactionscomments
Tips for Talking to Your Doctor About SMA...Most people living with spinal muscular atrophy (SMA) need care from multiple doctors. Regular doctor’s visits help you or your child manage...reactionscomments
