Navigating Medical Procedures With SMA...If you live with spinal muscular atrophy (SMA) of any type, then you know how difficult it can be to have medical...reactionscomments
Teaching Your Kids About Disabilities...From a very young age, I've been intimately familiar with the world of disabilities. Diagnosed with SMA type 2 at just 18...reactionscomments
The Game Changer-BiPAP...I remember this day well. The start of an unbelievable journey. Who would have thought I needed to wear a BiPAP? It...reactionscomments
Community...Have a question? Ask the community! Share your story or read about others living with spinal muscular atrophy. Post in our forum...
School Safety Drills as a Student with SMA...During my school years, active participation in safety drills, including fire and tornado drills, was mandated. For the average able-bodied child, these...reactionscomments
Michaela Hollywood...Michaela is a 30-something woman living in County Down, Northern Ireland. The youngest of four girls, she loves being surrounded by family...
Megan DeJarnett...Megan DeJarnett is a wife, mother of 2, children's book author, and disability advocate and influencer. She loves encouraging others that there's...
Marc Mitnick...Marc Mitnick is a certified Speech Pathologist and patient advocate. He graduated from NovaSoutheastern University, Ft. Lauderdale, FL, with a Master's Degree...
"Most Likely Not To…" The Musical!...On February 29th, 2024, The Times Center officially hosted the first-ever SMA musical in collaboration with SMA My Way and Genentech! I...reactionscomments
Kellie Cusack...Kellie was previously a health leader on SpinalMuscularAtrophy.net. Kellie Cusack is a 23-year-old woman (pronouns: she/they) from New Jersey. She enjoys music...
Navigating Large Crowds In A WheelChair: My First Concert Experience...I have anxiety about being surrounded by large groups or crowds of people. But when Taylor Swift announced her 1989 World Tour...reactions2comments
Nighttime Tips and Tricks...Based on my friend Allie’s article about her morning routine, I thought I'd offer my nighttime routine. Here are some nightly tips...reactionscomments
My Evrysdi Journey So Far...On December 23, 2016, I celebrated my birthday, marking a momentous occasion: the FDA had approved Spinraza as the inaugural treatment for...reactionscomments
First Home Renovation...Buying a home is an exciting adventure. However, when you are dealing with a disability like spinal muscular atrophy, you know that...reactionscomments
Applying for Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your...
How Do I Connect With Other People in the SMA Community?...Spinal muscular atrophy (SMA) is a genetic disorder where muscles become weak and waste away. Our goal at SpinalMuscularAtrophy.net is to connect...reactionscomments
Making Friends as an Adult with SMA...Back in elementary school, the worry about making friends lingered—I feared judgment based on my wheelchair and back brace. My hope was...reactionscomments
Traveling Shower Hacks...One of the most common questions I get asked regarding my frequent traveling is how I shower. Of course, this depends on...reactionscomments
Balancing Life When You Are Ill...Life with SMA has two halves - the mobility half, and the illness half. Managing the mobility issues and illness of spinal...reactions2comments
What Does Independence Look Like?...My friends Sawsan and James were in the Easterseals Disability Film Challenge. The film is called Out of Reach. In it, James...reactionscomments
