Marc Mitnick...Marc Mitnick is a certified Speech Pathologist and patient advocate. He graduated from NovaSoutheastern University, Ft. Lauderdale, FL, with a Master's Degree...
"Most Likely Not To…" The Musical!...On February 29th, 2024, The Times Center officially hosted the first-ever SMA musical in collaboration with SMA My Way and Genentech! I...reactionscomments
Kellie Cusack...Kellie was previously a health leader on SpinalMuscularAtrophy.net. Kellie Cusack is a 23-year-old woman (pronouns: she/they) from New Jersey. She enjoys music...
Navigating Large Crowds In A WheelChair: My First Concert Experience...I have anxiety about being surrounded by large groups or crowds of people. But when Taylor Swift announced her 1989 World Tour...reactions2comments
Nighttime Tips and Tricks...Based on my friend Allie’s article about her morning routine, I thought I'd offer my nighttime routine. Here are some nightly tips...reactionscomments
My Evrysdi Journey So Far...On December 23, 2016, I celebrated my birthday, marking a momentous occasion: the FDA had approved Spinraza as the inaugural treatment for...reactionscomments
First Home Renovation...Buying a home is an exciting adventure. However, when you are dealing with a disability like spinal muscular atrophy, you know that...reactionscomments
Applying for Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your...
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect...
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right...
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team...
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing...
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent...
How Do I Connect With Other People in the SMA Community?...Spinal muscular atrophy (SMA) is a genetic disorder where muscles become weak and waste away. Our goal at SpinalMuscularAtrophy.net is to connect...reactionscomments
Making Friends as an Adult with SMA...Back in elementary school, the worry about making friends lingered—I feared judgment based on my wheelchair and back brace. My hope was...reactionscomments
Traveling Shower Hacks...One of the most common questions I get asked regarding my frequent traveling is how I shower. Of course, this depends on...reactionscomments
Balancing Life When You Are Ill...Life with SMA has two halves - the mobility half, and the illness half. Managing the mobility issues and illness of spinal...reactions2comments
What Does Independence Look Like?...My friends Sawsan and James were in the Easterseals Disability Film Challenge. The film is called Out of Reach. In it, James...reactionscomments
New Year - New Me?...I never liked the phrase "new year, new me." It made me feel like everything I did last year was thrown away...reactionscomments
Honest Look at a Parent’s Heartbreak...The emotions that each parent truly lives with from that first day our child is given a diagnosis of a neuromuscular disease...reactionscomments
