Do you have experience wearing adaptive clothing?...Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share them with our community!...reactions6repliesTips & Advice
Tips on Speaking Up!...How do you speak up for yourself? Do you rely on others to help you? Share some tips for others living with...reactions1replyTips & Advice
Feeling Emotional About Things People Say...I gave up whenever someone asked, “Oh, what is she doing now?" (She as in me.) And your family answered it with...reactions3comments
Accessible Getaway Tips...We asked our Health Leaders for some summertime advice: Do you have a summer vacation or getaway planned? What makes for the...reactionscomments
Courage...Sometimes I find my confidence and insecurity going hand in hand. I know this might sound strange, but it's true. I don't...reactionscomments
Challenges of Being Your Partner's Full-time Caregiver...Caring for a loved one with a disability like spinal muscular atrophy can be both a rewarding and challenging experience. One of...reactions1comment
Wheelchair Accessible Seating Hacks...Who has dealt with the frustration of securing wheelchair-accessible seats? It can be a pain in the neck sometimes. Over the years...reactions3comments
ABLE Accounts...Living on disability income often means living at or below the poverty line. Qualifying for assistance requires having limited resources. That reality...
Adaptive Fashion and the Double Take Fashion Show...Hello everyone! Today, since it's officially June as I write this, and the warm weather is here, (my favorite season!) I wanted...reactionscomments
Define Love...Define love. It would be a broader definition for everyone. As I moved into the adulthood phase I started to get involved...reactionscomments
Daily Routines...What is your daily routine? Have you found that a routine helps you manage your SMA? Share below....reactions1replyTips & Advice
Accessibility Etiquette...What guidelines need to be written in an “accessibility etiquette” guide? What drives you crazy about the way people interact with you...reactions2repliesAwarenessFriends & FamilyMyths & Misconceptions
Medicare Denials and Wonderful Nonprofits...I recently wrote about my first wheelchair seating clinic experience. Since I wrote that article I was denied by Medicare for the...reactions1comment
Independence and Accessibility...Accessibility and independence go hand-in-hand but often times people do not realize that they rely on each other. I have spoken with...reactions7comments
Transitioning to My First Electric Wheelchair...I’ve been using my new Permobil wheelchair for just about a month now. The last few months that I was using my...reactions2comments
Therapy and Mental Health with SMA...Warning: This post discusses my experience with mental health including anxiety and depression. Reader discretion is advised. I wanted to discuss my...reactions2comments
Living With a Disability: Movie Recommendations...We asked our Health Leaders, "What good movies or television shows give a credible account of living with disability?" Here are some...reactions2comments
Are You in an Interabled Relationship?...What is your experience like being in an interabled relationship? If you need inspiration, read Suzanne's perspective: https://spinalmuscularatrophy.net/living/interabled-relationships Share below!...reactionsrepliesIntimacy & Relationships
Accessibility Challenges...Have you faced accessibility challenges lately? Maybe when trying to go out and do something social? We want to hear your stories...reactionsrepliesTips & AdviceDisability
Dressing Room Experience as a Wheelchair User: Tips and Personal Insights...Trying on clothes in a department store can be a daunting task for anyone, but it can be even more challenging if...reactionscomments
